Endochrinology Appointment

[Guineapiggy]

I am due to see an NHS endochrinologist in Chichester next week. My intention is to try and persuade her to prescribe liothyronine rather than my having to purchase it. Chichester is one of the areas that is not willing to prescribe it so I have to be as polite and firm as possible to convince her of my need.

For the last year I have been experimenting and weaned myself off Metavive to see if I could manage with levothyroxine alone. I feel the results here do prove that I do not convert T4 well and so need added T3 but I need to convince the endo.

Has anyone got any advice that may help please?

[SlowDragon Administrator]

What’s the reason for your hypothyroidism

Autoimmune?

Are you on gluten free or dairy free diet

What vitamin supplements are you taking

What are most recent vitamin D, folate, ferritin and B12 results

Do you always get same brand levothyroxine at each prescription

Have you ever done Dio2 gene test

over 66,000 prescriptions in England in last year for T3

Searchable by ICB area

openprescribing.net/analyse...

[Guineapiggy in reply to SlowDragon]

There was a list of trusts published fairly recently [possibly via this site] where University Hospitals, Sussex , was regarded as less likely to prescribe liothyronine. On the chart in the link there is an NHS West Sussex which does show a reasonable number of prescriptions, so I must remain hopeful!

I am regarded as having autoimmune disease although the antibodies have never been very high. I did try a gluten free diet for six months but did not notice any difference. I take a high dose multivitamin, selenium, magnesium, zinc, vitamin D. The results are from Aug 2023. I do take folate and in previous tests it has been the high end of range. I don't always have the same levo brand. My 23&Me test indicated that I was a poor converter.

Test results

[SlowDragon Administrator in reply to Guineapiggy]

Multivitamins generally not recommended on here

Most contain iodine, best avoided completely when on Levo

Looking at these results you don’t need any extra iron either

Retest vitamin D, folate, ferritin and B12 annually

Taking a daily vitamin B complex and vitamin D should be sufficient

[Guineapiggy in reply to SlowDragon]

Thank you.

[TiggerMe]

Seems they aren't totally against prescribing it... 🤞

You certainly have the evidence to prove T4 isn't doing it for you!

Liothyronine items

[Guineapiggy in reply to TiggerMe]

I wish I could find the list that rated them recently. No idea where it came from but here was most likely. It didn't reflect the graph but the NHS trust on the graph has a different name that is not the same. The trust is University Hospitals Sussex NHS Foundation Trust.

[Obsdian]

How long did you have to wait for your appointment? Only this afternoon I was told Chichester was 49 weeks and Brighton 37 weeks. I am considering going private as that's too long to wait.

[Guineapiggy in reply to Obsdian]

August 2023 is when I saw my GP so I assume she wrote to St. Richard's soon after that. It suited me as I was about to start buying liothyronine to prove I needed it before seeing her.

[Obsdian in reply to Guineapiggy]

So that waiting list is roughly accurate then. Boo

[Guineapiggy in reply to Obsdian]

Unfortunately, but you never know. You may get seen sooner. Good luck!