Drs appointment was as predicted a waste of time.

[Zuzka1]

Hi All, greygoose

So I had the Drs a couple of hours ago. As predicted it was a total waste of time. She kept asking me if I am depressed. I'm not! I'm ill. She refused to prescribe me T3 as she said my kevels are all in range. I tried to explain it to her but it was totally pointless. She did however give me the prescription for all the various bloods I need testing so I will get that done ASAP and re post on here.

I do have a appointment with a Endo on the 30th, the only review they have said they are terrible! The other good Endo near to me is full until June next year!! I'm going to search other big cities near me and get appointments.

So, my big question is....... I need help. I feel so tired its unreal. I now want to self medicate with T3 which I will buy on line. My question is how much do I have? It's sold in 25mg tablets. I understand I split it up during the day but how? In half? Do I take it the same time as my levo? And then again in the afternoon?

I do not want to self medicate but I totally feel like I have no choice. I have a three and a half year old boy and a 20 month old daughter. I need to be their mother. I cannot continue to watch from the sidelines. This is my life and I need to take control.

Any advice as always so so gratefully received.

Thanx x

[greygoose]

Maraphipps, I really, really would not start self-treating with T3 before you see the endo. He may be useless, you don't know, but at least wait and see - the appointment is so close. If you start self-treating, you will skew your blood tests, and if you tell him you're self-treating, you could get his back up and make him hostile.

So, either you self-treat OR you go to the endo. But at this point in your journey, I would not try doing both. If the endo is useless, then yes, get your own T3. But, at least wait and see what the endo says.

[Zuzka1 in reply to greygoose]

OK. I hear you. I will wait but it feels soooooooo frustrating.

I've got another appointment now also with another Endo on the 3rd October as well. I don't know if they are any good or not. They are a hour or so away.

I just want to feel normal 😢

[Zuzka1 in reply to Zuzka1]

So many people on here are saying what a waste of time the Endo was. Feels all a big depressing.

[greygoose in reply to Zuzka1]

Yes, it's frustrating. And of course you just want to feel normal. That's what we all want. None of us like having this disease, but we've got it, and we have to learn how to manage it the best we can. Life isn't fair. People very rarely get what they deserve, but that's the way it is. We've all had to learn patience, and that's the best advice we can give any newcomers : prends ta mal en patience ! You will get there in the end, but rushing things isn't going to help.

OK, so you're doing very well so far! Much better than you would do here in the UK, where people have to wait for months to get appointments. Yes, people on here are very often disappointed by their endos, but that's the NHS for you. You're not dealing with the NHS, there aren't all the restrictions. How much your endos will know about thyroid, is anybody's guess, but at least you're in with a fighting chance. And, if they both turn out to be rubbish, then you can consider the 'systeme D' - i.e. self-treating. All is far from lost. A little bit of stiff-upper-lip, there, please! Remember you're British! lol

And, remember, you've always got us!

[Zuzka1 in reply to greygoose]

This I have just learned and I honestly honestly cannot thank you enough for your support. In theory I now have 3 different Endos to see so I shall wait. I would like to give u a virtual hug 🤗

[Zuzka1 in reply to greygoose]

Goose....I've just called the annecy hospital as well. They've told me to send my new blood tests in and then they will assess/see me. Just want you to know.

[hw7342]

What greygoose said. Hold tight until the 30th. But also you will get the necessary vitamin test results in the meantime hopefully - they are very important in all of this. Hugs to you, you are not alone.

[Zuzka1 in reply to hw7342]

Ok I'm going to wait and I will get my bloods done ssap. Thank you

[hw7342 in reply to Zuzka1]

you have done well sorting out those two endo appointments. If they are rubbish then you will have known that you did your best and exhausted that route and that you will have no choice but to self medicate. You know that people on here understand even if the endos don't.

[Zuzka1 in reply to hw7342]

Thank you. I'm just sat in a heap crying because I don't want to feel like this. I've no energy. I just want to be me and be a good mum. That's the bit that's killing me.

[Barrister]

I saw an Endo privately last year ( from the list!) and he was fine - offered me NDT or T3, the choice was mine. My GP won't prescribe T3 but I buy it myself and I'm doing okay. I can tell you who I saw if you pm me. Clemmie

[Zuzka1 in reply to Barrister]

Hi. Thank you. Problem is I live in France....I'm not sure what NDT is? Thank for for helping me

[Barrister in reply to Zuzka1]

I have a friend who lives in France, Lac Aiguebelette, and she gets her T3 prescribed by an Endo near to where she lives. Clemmie

[Barrister in reply to Barrister]

By the way Natural Dessicated Thyroid (NDT). Clemmie

[luley]

I would simply self medicate with NDT rather than t3

Its likely you cannot cope with synthetic rubbish levothyroxine just like my lot cant

NdT is complete and far better generally

[greygoose in reply to luley]

NDT is illegal in France.

[Zuzka1]

Complete as its T4 and T3?

[greygoose in reply to Zuzka1]

NDT is dessicated pig gland. People like to believe that it contains T2, T1 and calcitonin, as well as T4 and T3. The problem with that idea is that most T2 and T1 comes from conversion, not from the gland. And if there is any in the gland, there's no guarantee that it would survive the pill-making process - yes, it's not as natural as all that! And, it would be such a tiny, weeny dose, there's no guarantee it would do any good.

In any case, NDT does not suit everyone, no matter what they say. Some people do much better on synthetic. And, to top it off, it's illegal in France! So, your best bet is to go after the synthetic T3.

[Barrister]

I tried NDT but it caused my lymphocytic colitis to flare so obviously the fillers didn't suit me , whereas I've been fine on T3. Clemmie