Morning lovely people,So I finally managed to stick at my dose increase to 100 levo (thanks to all who have helped me crack this). I did 5 weeks at 87.5 then 8 weeks at 100.
My new results are:
TSH 1.81 (0.27-4.2)
T4 17.7 (12 - 22) 57%
T3 4.9 (3.1 - 6.8) 48.6%
They have not moved as much as I expected from May when I was on 75mcg
TSH 3.38 (0.27-4.2)
T4 17 (12 -22)
T3 4.7 (3.1 - 6.8)
So from this, I assume I have room for another increase to 125mcg (I'll start with 112.5). Does my conversion look okay? My T3 has only gone up by .2 ? I assume this is why I still feel exhausted.
Thanks all ☺️
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Dahliasanddaisies
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Assuming test is negative you can immediately go on strictly gluten free diet
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten. Dairy is second most common.
A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
As you are dairy free consider changing to lactose free Levo
Best option is Vencamil - lactose and Mannitol free
Vencamil (currently 100mcg only) is lactose free and mannitol free. 25mcg and 50mcg tablets hopefully available from summer 2024 …..but not arrived yet
Yes I did try Vencamil and still have 2 boxes, after 4/5 days I felt awful, really extreme anxiety. I'm reluctant to take again. Do you not think I just need a dose increase on Accord?
It was probably just the 'usual' anxiety I get during a dose increase. I swapped from 100 accord to 100 vencamil at some point in May and the spike in my anxiety sent me back to 75mcg of accord. It was probably due to the increase rather than the brand really. I'll maybe try again when I'm feeling more settled
Congrats on a wonderfully patient low and slow increase!
I’ve done almost identical! 87.5 to 100 and currently in the middle of 112.5) except I also have 10 T3.
I was mid range FT4 and top FT3. And do think bringing my ft4 up has helped, as many say it should, but won’t know until a couple weeks if I’ve overshot.
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