Blood Results 2Months after diagnosis - Thyroid UK

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Blood Results 2Months after diagnosis

WorriedUser profile image
8 Replies

Free T3- June 2024- 17.3 pmol/L

Free T3 August 2024 - 7.0 pmol/L

Normal Range 3.1-6.8

Free T4 - June 2024- no reading taken

Free T4- August 2024 - 30.4 pmol/L

Normal Range 10.8-25.5

Serum TSH Level - June 2024- 0.02 mlU/L

Serum TSH Level - August 2024- 0.02 mlU/L

Normal Range 0.27 - 4.2

Meds since June: Carbimazole 20mg once a day

Proponanol 40mg x 3 a day

I’ve been feeling a lot less tired and the itchiness is gone.

Do these results look like they are in the right direction and results will continue to improve? Is it expected that the Serum TSH is still low?(next Endo appointment not until end October)

Thank you.

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WorriedUser
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pennyannie profile image
pennyannie

Hey there again :

It looks like you are being treated for Graves Disease - but we really do need to have the medical evidence of which antibody was positive and over range at diagnosis ?

Glad you are feeling a little more comfortable and your symptoms eased.

If with Graves the TSH is very much under the control of your immune system at this point in time and it's more reliable to monitor and titrate down your medication based on your T3 and T4 readings.

Your T3 is almost back in range as it your T4 - and it is too high a T3 for you that causes the symptoms of hyperthyroidism just as too low a T3 for you will lead to you experiencing the equally disabling symptoms of hypothyroidism.

The Carbimazole is an Anti Thyroid drug and all it does is ' buy you time ' while we wait for your immune system to calm back down again and hopefully your thyroid reset itself without the need for any drugs.

The Propranolol is a beta blocker and helps take the strain off your heart and also slows down the conversion of T4 into T3.

Have either doses of the AT drug or the Propranolol been reduced now ?

When metabolism runs too fast as in hyper or too slow as in hypo - the body struggles to extract key nutrients through food - no matter how well and clean you eat -

so it would be a good idea to ask your doctor to run your core strength vitamins and minerals - ferritin, folate, B12 and vitamin D -

as if these are not maintained at optimal levels your health can be compromised further than need be and we can advise where best in the ranges these need to sit.

The NHS allocates a treatment window with an AT drug for around 15-18 months and if remission is not found or seen as possibility suggest alternative more invasive treatments.

We do now have some research you may like to keep :

pubmed.ncbi.nlm.nih.gov/338...

ncbi.nlm.nih.gov/pubmed/306...

P.S. Quite why the NHS still offers RAI thyroid ablation as a ' therapy ' in what we see as a health care centre is beyond my understanding.

The most well rounded of all I researched when I became much more ill, post RAI thyroid ablation for Graves back in 2005 is that of Elaine Moore - books and now website - elaine-moore.com

FallingInReverse profile image
FallingInReverse

Hi worrieduser!

Just to reiterate Penny’s comment on getting antibodies tested. Some are more indicative of hyper some for hypo… but as the attached image shows there is quite an overlap. And as Pennys pointed out - sometimes someone with hyper-overactive results can swing later to hypo-underactive depending on the underlying cause.

Acronyms can be confusing, but these are the 4 I’ve always had on my blood test list. Penny or others might have a better articulation of these from a hyper perspective.

1) TRab

2) TSI

3) TPOab

4) TGab

Abs
SlowDragon profile image
SlowDragonAdministrator

2 months ago you said

I have an appointment to get bloods done for a TSH receptor antibody test in 8 weeks, along with my other levels to be run again.

Was this done?

Also ESSENTIAL to test vitamin D, folate, B12 and ferritin levels

WorriedUser profile image
WorriedUser

Thank you all. They only ran T4, T3 and serum TSH…

I am taking Vitamin D supplements and a multi vitamin, but haven’t had my levels re tested.

I will speak to my doctor and ask for the other tests that have been suggested above.

So pleased I have come across this group. Super helpful, reassuring and kind.

pennyannie profile image
pennyannie in reply toWorriedUser

There is more than one reason why you have become hyperthyroid -

and not all reasons are prescribed an AT drug -

It's essential that the antibody blood test is run as this is the medical evidence of which antibody has been found positive in your bloods so that the most appropriate medication can be prescribed -

Maybe the antibody blood test has been run, and just not been mentioned to you -

Do you have online access and can scroll through all the previous blood test results ?

WorriedUser profile image
WorriedUser in reply topennyannie

I do have access, yes- but can’t see anything relevant. I have a call with my GP this morning (they requested after my results) so will ask. Thank you.

WorriedUser profile image
WorriedUser in reply topennyannie

TSH recepton antibody test-

3.34 (normal range 0-0.39)

GP says this is consistent with Graves Disease diagnosis

pennyannie profile image
pennyannie in reply toWorriedUser

Yes - it would seem so :

How are you feeling ?

I think I've already replied above in some depth - but am happy to try and answer any other questions you may have at this point in time.

Very important to keep your core strength vitamins and minerals optimal as low levels in these can compound your ill health further than necessary and when metabolism runs too fast or too slow ferritin, folate, B12 and vitamin D can nose dive through their ranges.

Makes sense to also get tested for celiac and pernicious anemia as both these AI diseases tend to occur when any thyroid related AI disease is diagnosed.

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