hello, I was diagnosed at the end of June with Hyperthyroidism, and subsequently tests confirmed Graves’ disease.
I am due to see the consultant end of this month, so will have more bloods done just before. I take Carbimazole and Propranolol and my last bloods indicated that my levels were starting to come into range (FT3 and FT 4 were anyway!) but not quite there yet.
Most of my symptoms have subsided, but I’m still quite tired… is this common, or should I expect to feel better with more energy? I know it’s only been a few months, but as my levels were going the right way, maybe I was expecting more…
Would love others experience please.
Free T3 August 2024 - 7.0 pmol/L
Normal Range 3.1-6.8
Free T4 - June 2024- no reading taken
Free T4- August 2024 - 30.4 pmol/L
Normal Range 10.8-25.5
Serum TSH Level - June 2024- 0.02 mlU/L
Serum TSH Level - August 2024- 0.02 mlU/L
Normal Range 0.27 - 4.2
Meds since June: Carbimazole 20mg once a day
Proponanol 40mg x 3 a day
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WorriedUser
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You will be very tired - one does not bounce back from Graves Disease.
The body has been in a ' heightened state ' and there is something of a brain / body mismatch -
With your brain suggesting several activities - but with your body too weak to get off the sofa
It is a waiting game, so be kind to yourself and just do things you enjoy and try not to stress about ' stuff ' :
The Carbimazole and beta blocker are now pretty much controlling your metabolism, most of your symptoms have been relieved and now it's a case of finding a dose of Carbimazole that keeps you stable -
and we need to aim for your T4 and T3 back in the range - at around midpoint -
hopefully resulting in you feeling - neither hyper nor hypo -
while we wait for your immune system to calm back down again.
As detailed in my previous reply the NHS generally allocate a treatment window of around 15-18 months with the AT drugs with the hope being your thyroid returns to ' normal ' without the need for any drugs.
No 2 peoples journey with Graves is the same but stress and anxiety are common triggers for this poorly understood and badly treated Auto Immune disease.
Most important to keep your core strength vitamins and minerals at optimal levels -
do you have any readings for ferritin, folate, B12 and vitamin D as mentioned previously if these are not maintained at optimal levels your health issues will be compounded further than necessary.
You can find your 2 previous posts and all your replies by just pressing on your Profile icon which sits alongside My Hub - Chat - Post - Alert - and Menu which sits top right on my laptop screen now facing me.
Ok - your ferritin looks a little high - but this can be a false high as it can be driven upwards by inflammation in the body - is there a reading there for CRP ?
I now aim to maintain my ferritin at around 100 - folate around 20 - active B12 125 ( serum B12 500++ ) and vitamin D at around 125.
So your vitamin D and I'm guessing this serum B12 reading and both much too low -
Have you been checked out for pernicious anemia and celiac disease as these other AI conditions can follow on from Graves ?
Ok - so inflammation is ' highish ' as one would expect as you are not well and your body struggling and under stress -
so ferritin may or may not be an issue -
everything else still stands - so worth getting these further tests run on the NHS as some AI diseases tend to ' run together ' and if this a serum B12 it is too low :
Many find they have gluten intolerance and ' tests ' need to be done eating your foods of choice - and not after you start eliminating certain food stuffs in order to ' heal ' whatever might be going on.
Yes - Graves means being a patient and practising patience as it is now a waiting game - there is no quick fix - and you need to start being kind to yourself :
Might sound a strange thing to say - but very often we are the backbone holding things together for others - just speaking from my own situation - but it seems a common thread, especially with women -
I think I suggested you dipping into Elaine Moore previously - I found her sections on alternative and more holistic treatment options interesting - though it was a too late for me as I had already had RAI thyroid ablation - a treatment I deeply regret - and I became more ill after ' the treatment ' than I had ever been !!
Morning Worried User, I have Graves’ disease diagnosed in April 2022 after suffering from hyperthyroidism with all the awful symptoms that go with it, I am now in remission and have been for the last 6 months and no longer taking medication. It takes time for your body to adjust and one blood test showed my vitamin D levels were really low so I was prescribed a loading dose for 4 weeks and I’m now on a maintenance dose prescribed by my endocrinologist indefinitely. I also take vitamin B every day and selenium for hair and nails. I would check to make sure your vitamin levels are normal and I can honestly say that some days I do get tired especially if I have been really busy or stressed out. I have learned to take things easy when I’m feeling tired instead of ploughing on. Not sure if this is connected to my Graves’ disease as I’m 56, working part time and a grandmother to a lively 4 year old but I would definitely recommend vitamins and if you’re feeling tired be kind to yourself and rest up whenever possible, I also recommend gentle exercise, I do yoga twice a week and it has been really beneficial for my wellbeing. Hope this advice helps.
Hello - I have found that I feel best when my T3 is closer to the lower number. Your's is still out of range (a bit) in the slow range. You might be less tired if your number was 2.0 or lower. provider I had stated that most of the patients with thyroid issues that she knew of, felt better when their T3 was closer to the lower range. Good luck!
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Hyperthyroidism 
What do these mean?
update on taking carbimazole and ndt at same time
Urgent! Need test results advice
Thyroid levels normal, still feel crap
