hi all
Sadly I can no longer afford to self fund my Liothyronine T3.
I have been taking it for over 4 months at 10mg daily.
please can you advise how to stop as I am concerned about stopping it suddenly. I have capsules not tablet so am unable to break in half.
many thanks for your advice.
Are you precribed 10mcg tablets, because if you are thats an expensive way of buying T3. Much cheaper to get prescribed 20mcg Thybon Henning at 60-70pence per tablet.
If you really need to stop, then how much Levo did you drop?
Its usually suggested toreduce by 5mcgs at a time and hold for 2-3 weeks.
Hi Jaydee
Yes I am prescribed 10mg. They are capsules because the tablets are more expensive again! I can’t change my prescription because just a phone call appointment to discuss is another £150!
I was going to take one every other day for say 2 weeks then one every 3 days for a week and so on do you think that will be ok?
Its not a good idea to alternate with T3, better to have the same dose every day or your body wont know if its coming or going.
With capsules you can open the capsule and tip some out, or open capsule, mix contents with water then drink half etc
Recommend investigating Roseway prescribing service.
capsules are much more expensive that Thybon Henning 20mcg tablets - £60-£80 per 100 tablets
Cut in half (or 1/4’s) by sharp craft scalpel or pill cutter
Suggest you change to Thybon Henning initially
Then it would be much easier to reduce dose SLOWLY by 5mcg
But have you tried getting T3 on NHS
Over 65,000 prescriptions in England in last year on NHS and increasing steadily
openprescribing.net/analyse...
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations then transfer
thyroiduk.org/contact-us/ge...
Hi
I can’t change my prescription because just a phone call to discuss is another £150.
I am worn down trying to get it on the NHS.
My Levo was reduced from 100mg to 75. Then wrongly reduced further to 75/50 alternate days when I ended up in A&E with palpitations and a high heart rate. They said my TSH was too low at 0.18 and ignored the fact that I was on a new BP medication. (My T3 and T4 was nicely in range at the time but they said I was hyper on the basis of my TSH alone)
I have already asked for my Levo to be put back up to the original 100mg. I have also got a NHS endo appointment finally but it is in December!
To be honest, I’m not sure I feel any benefits from the T3 although initially I thought I felt brighter. I think this was a placebo effect. At least if I stop I will be able to see if I feel any different. I have blurred vision a tight chest and anxiety for the first time in my life and I am keen to see if that is side effects of the T3.
Hopefully spacing my dose out will be a safe way to come off. What do you think?
So what are your latest TSH, Ft4 and Ft3 results
And vitamin D, folate, ferritin and B12 levels
Many, many members find they need BOTH Ft4 and Ft3 at least 60-70% through range
Far too often Levo dose is reduced inappropriately
If you are under medicated, vitamin levels likely poor
It will be very difficult to drop T3 by 10mcg in one go
I sent you a pm
T3 4.7 (3.6 - 6.8)
T4 16.2 (12 - 22)
TSH 0.12 (0.27 - 4.2)
This was 24th May prior to reducing Levothyroxine from 75 to 75/50 alternate days.
Vit D 113
Ferritin 324 ug/L
Active B12 51 pmol/L
Folate 3.4 ug/L
Free T4 (fT4) 16.2 pmol/L (12 - 22) 42.0%
Free T3 (fT3) 4.7 pmol/L (3.1 - 6.8) 43.2%
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test
Most people find they need BOTH Ft4 and Ft3 at least 70% through range
Results show under medicated and that was BEFORE reduction in levo further
B12 and folate both far too low
What vitamin supplements are you taking
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Highly effective B12 drops
natureprovides.com/products...
Or
B12 sublingual lozenges
uk.iherb.com/pr/jarrow-form...
cytoplan.co.uk/shop-by-prod...
B12 range in U.K. is too wide
Interesting that in this research B12 below 400 is considered inadequate
healthunlocked.com/thyroidu...
Low folate
supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)
This can help keep all B vitamins in balance and will help improve B12 levels too
Difference between folate and folic acid
healthline.com/nutrition/fo...
B vitamins best taken after breakfast
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose
Post discussing different B complex
healthunlocked.com/thyroidu...
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12
Post discussing how biotin can affect test results
You need more T4.In May while on 75mcg daily you were only 42% through range and then you dropped dosage further to approx 64mcg daily.I myself am on T4/T3 combo and after a few tweaks I ended up dropping my Levo by just 8mcg daily whilst adding a little lio.
I strongly suggest you buy it privately without prescription which is far cheaper than the price you have been paying. You will need to test your levels using Monitor My Health or a similar laboratory. You can use the results as evidence in a discussion with your GP. You may also choose to test for the DI02 mutation which causes poor conversion of T4 to T3. I will message you privately.
I agree with BenLabrador
I self fund my own T3....100 Thybon Henning 20mcg tablets for £60. I cut them to suit whatever dose I am taking. FAR cheaper to self source and self fund this way. 100 tablets last me months.
I could PM you if you want to know my supplier.
I wonder if you could try Roseway labs - from what I hear they are very good, quick and much cheaper.
Yes I had to cut down on the price of non NHS thyroid treatment as other Long Covid health matters costing! Swopped private endo zoom appointment at similar £150 a throw ( tho initial consultation I think was more) for what had become a 10 min phone call for Roseway Labs’ lovely prescriber…last c.£30 phone appointment to discuss thyroid problems with recent full thyroid test …again just swopped Medichecks for slightly cheaper Monitor my Health ( got the full £65 with lots of things included but also another 10% off with Thyroid UK10 code, but are ones half this price). Resulted in prescription to last a year for about 4 lots of Thybon Henning 20 T3 which I chop up not 5s, at £60 per 100 tablets. So saved many hundreds of pounds!
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