still have hives but stomach issues now - Thyroid UK

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still have hives but stomach issues now

Daisydoo2 profile image
20 Replies

Hi again

I still have hives. ( back to allergy clinic at end of month)

Now I have developed digestive issues both stomach area and upper abdomen. Pains that come and go but seem to be on the increase. I am anxious about this but do you think hashis hives and stomach could all be related?

I gave up dairy last week and hives subsided and stomach aches went but now they have returned … so couldn’t have been the lack of dairy.!

I have bloods in 2 weeks time but my last test at allergy clinic TSH only was

5.03 range 0.35-5.5

anyone else have stomach issues / hives ?

Thank you

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Daisydoo2
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20 Replies
Jaydee1507 profile image
Jaydee1507Administrator

If your TSH is 5 then you're not taking enough Levo. Insist on a dose increase from GP.

You had some recommendations here about testing vitamin levels which are also very important to keep track of and supplement to optimal levels: healthunlocked.com/thyroidu...

Being under replaced can bring many symptoms. Many members find they have to become their own health advocate and drive their treatment with their GP.

Daisydoo2 profile image
Daisydoo2 in reply toJaydee1507

Thank you … yes I will seek an increase and hope that sorts things out.

Jaydee1507 profile image
Jaydee1507Administrator in reply toDaisydoo2

You may well need more than one increase with a TSH that high.

Do get vitamin levels checked and start a new post when you have the results.

Daisydoo2 profile image
Daisydoo2 in reply toJaydee1507

Yes thank you I will. I don’t get why GPs don’t recommend an increase.

Jaydee1507 profile image
Jaydee1507Administrator in reply toDaisydoo2

They are usually very conservative with Levo treatment because they believe that too much will harm you, so instead they dont give us enough.

Unless you make a fuss you will never get an increase, so try different doctors and dont give up asking.

StormsPass profile image
StormsPass

I’m in a break out of hives and reflux at the moment. TSH is 2.8 range (.27 - 4.2) so bring that down I’m hoping will sort it.

I’m just staying out of the sun, sleeping in a cold room under a thin blanket and taking antihistamines when I need them. Currently one every 3/4 days.

The hives breaks out at night. I am focusing on an anti inflammatory and a low histamine diet at the moment too which might help.

Sorry I don’t have any answers but I’m in the same boat.

Daisydoo2 profile image
Daisydoo2 in reply toStormsPass

Thank you. It’s good to know I’m not the only one.

SlowDragon profile image
SlowDragonAdministrator

2 months ago, (and a year before that), it was recommended you get 25mcg dose increase in levothyroxine

You need FULL thyroid and vitamin testing again 2-3 months after increase to 100mcg levothyroxine daily

Daisydoo2 profile image
Daisydoo2 in reply toSlowDragon

thank you. Yes I will definitely seek an increase this time and not be so passive when I’m told the results are within range.

SlowDragon profile image
SlowDragonAdministrator

Gut issues extremely common when hypothyroid

Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)

pathlabs.rlbuht.nhs.uk/tft_...

Guiding Treatment with Thyroxine:

In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.

The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).

The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.

……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.

The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.

Some people need a bit less than guidelines, some a bit more

TSH should be under 2 as an absolute maximum when on levothyroxine

gponline.com/endocrinology-...

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

Comprehensive list of references for needing LOW TSH on levothyroxine

healthunlocked.com/thyroidu....

onlinelibrary.wiley.com/doi...

If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).

Daisydoo2 profile image
Daisydoo2 in reply toSlowDragon

Thank you. I lost a lot of weight so 75 mcg was sufficient. I have probably put on a little bit since then which may indicate a dose increase necessary

milkwoman profile image
milkwoman

Recent post with excellent info on other causes to consider for your stomach issues.

healthunlocked.com/thyroidu...

diamondial profile image
diamondial

This is probably not relevant to you but my husband, who does not have thyroid issues, was having problems with hives appearing daily, diarrhoea and intermittent stomach pains for a couple of months. I bought him Zoe shots from M&S and he took 3 initially (3 in a pack) which didn't help and then after a week another 3 and all his problems disappeared completely. Of course that's not proof that it was the Zoe shots which cured him but it does seem a bit of a coincidence.

Divine1990 profile image
Divine1990

I have Hashimoto's and Pernicious Anaemia. I have experienced episodes of hives and stomach issues. The hives seemed to appear when I was under treated with my Thyroid meds. I was not converting T3 well. After eventually finding the right dose of NDT and maximising my vitamin levels this has helped alot. I have had no break outs for sometime. When I was having problems with hives I found an antihistamine helped together with ' Superdrug ' own brand Eczema and Psriosis products. I still regularly use the shower gel. My stomach issues are also worse when under treated but are complicated by the fact I have Pernicious Anaemia ( autoimmune conditions often come in pairs or more). After a recent gastroscopy I was found to have Gastric Atrophy and a small Neuroendocrine Tumour which was not a surprise bearing in mind my diagnosis of PA.

My stomach symptoms were bloating, nausea. burning sensation, pain and nausea. Again symptoms have improved with correct dose of NDT and vitamins. Also taking a good probiotic (Symprove), Low dose Naltrexone (LDN) and B12 Hydroxocobalamin injections which I mainly self administer. Also going gluten free , being dairy free I found much more difficult but goats milk/cheese seems OK.

The frustrating thing about all of this is the time it takes to work out what is going wrong and why. I have steam rollered into trying all sorts of tricks and tips all at the same time. Sometimes it is alot to take in. I am now feeling the best I have in a long time after nearly 4 years. You may well not have exactly the same issues as me but I am hope something in my story may be of some help.

Take it one step at a time following the advice of the knowledgeable people on the forum. As sometimes all the information is very overwhelming. The advice that benefitted me the most was being on the correct dose of Thyroid meds for 'me ' and checking my vitamin levels.

Good Luck

Batty1 profile image
Batty1

The hives could be coming from your Levo I had issues with an inactive ingredient in my Levo (acacia) Helvella has a list of inactive ingredients in thyroid pills… worth a look.

hashihairloss profile image
hashihairloss

YES!!! I was getting hives all the time and it was really affecting my quality of life. Most times it was on my face - lips, eyes - and made my face look so disfigured that I would cancel all appointments for the day. For the longest time I thought it was food related and so I started journaling everything I ate, and reached the conclusion that it was related to sulfite allergy. Finally consulted an allergy specialist who told me that while sulfites may be an aggravating factor in my case, the underlying cause is hashimoto's, and that the link between hashis and hives is well established. Then started a treatment of monthly injections (Xolair) which are supposed to calm down the system. Once I reached a point of stability, we started tapering off the frequency of injections and next month is my last injection. Fingers crossed. Ever since I started this treatment, I have not suffered from the weekly attacks of urticaria, and have been living a 'normal' life.

momindenver profile image
momindenver

For me avoiding gluten, dairy, tree nuts, and nightshades (potatoes, tomatoes, peppers) seems to prevent stomach and skin issues.

Daisydoo2 profile image
Daisydoo2 in reply tomomindenver

Thank you. I am gf and now trying going dairy free.

klr31 profile image
klr31

Cut down on gluten or cut it out as this may be affecting your stomach.

Karen

Daisydoo2 profile image
Daisydoo2 in reply toklr31

Yes thank you. I am GF

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