still have hives but stomach issues now - Thyroid UK

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still have hives but stomach issues now

Daisydoo2 profile image
11 Replies

Hi again

I still have hives. ( back to allergy clinic at end of month)

Now I have developed digestive issues both stomach area and upper abdomen. Pains that come and go but seem to be on the increase. I am anxious about this but do you think hashis hives and stomach could all be related?

I gave up dairy last week and hives subsided and stomach aches went but now they have returned … so couldn’t have been the lack of dairy.!

I have bloods in 2 weeks time but my last test at allergy clinic TSH only was

5.03 range 0.35-5.5

anyone else have stomach issues / hives ?

Thank you

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Daisydoo2
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11 Replies
Jaydee1507 profile image
Jaydee1507Administrator

If your TSH is 5 then you're not taking enough Levo. Insist on a dose increase from GP.

You had some recommendations here about testing vitamin levels which are also very important to keep track of and supplement to optimal levels: healthunlocked.com/thyroidu...

Being under replaced can bring many symptoms. Many members find they have to become their own health advocate and drive their treatment with their GP.

Daisydoo2 profile image
Daisydoo2 in reply to Jaydee1507

Thank you … yes I will seek an increase and hope that sorts things out.

Jaydee1507 profile image
Jaydee1507Administrator in reply to Daisydoo2

You may well need more than one increase with a TSH that high.

Do get vitamin levels checked and start a new post when you have the results.

Daisydoo2 profile image
Daisydoo2 in reply to Jaydee1507

Yes thank you I will. I don’t get why GPs don’t recommend an increase.

Jaydee1507 profile image
Jaydee1507Administrator in reply to Daisydoo2

They are usually very conservative with Levo treatment because they believe that too much will harm you, so instead they dont give us enough.

Unless you make a fuss you will never get an increase, so try different doctors and dont give up asking.

StormsPass profile image
StormsPass

I’m in a break out of hives and reflux at the moment. TSH is 2.8 range (.27 - 4.2) so bring that down I’m hoping will sort it.

I’m just staying out of the sun, sleeping in a cold room under a thin blanket and taking antihistamines when I need them. Currently one every 3/4 days.

The hives breaks out at night. I am focusing on an anti inflammatory and a low histamine diet at the moment too which might help.

Sorry I don’t have any answers but I’m in the same boat.

Daisydoo2 profile image
Daisydoo2 in reply to StormsPass

Thank you. It’s good to know I’m not the only one.

SlowDragon profile image
SlowDragonAdministrator

2 months ago, (and a year before that), it was recommended you get 25mcg dose increase in levothyroxine

You need FULL thyroid and vitamin testing again 2-3 months after increase to 100mcg levothyroxine daily

Daisydoo2 profile image
Daisydoo2 in reply to SlowDragon

thank you. Yes I will definitely seek an increase this time and not be so passive when I’m told the results are within range.

SlowDragon profile image
SlowDragonAdministrator

Gut issues extremely common when hypothyroid

Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)

pathlabs.rlbuht.nhs.uk/tft_...

Guiding Treatment with Thyroxine:

In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.

The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).

The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.

……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.

The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.

Some people need a bit less than guidelines, some a bit more

TSH should be under 2 as an absolute maximum when on levothyroxine

gponline.com/endocrinology-...

Graph showing median TSH in healthy population is 1-1.5

web.archive.org/web/2004060...

Comprehensive list of references for needing LOW TSH on levothyroxine

healthunlocked.com/thyroidu....

onlinelibrary.wiley.com/doi...

If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).

Daisydoo2 profile image
Daisydoo2 in reply to SlowDragon

Thank you. I lost a lot of weight so 75 mcg was sufficient. I have probably put on a little bit since then which may indicate a dose increase necessary

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