Leg pain

[Pulp88]

I'm hyperthyroidOn 5mg twice a week now

Qq. Does anyone ever get leg pain, in there lower leg? Hard to describe but feels like like knocked my leg on something

If yes, how do you manage the pain

[pennyannie]

Hey there again :

Did you ever find the Graves antibody reading - TSH - Thyroid Receptor - maybe written as a TRab - with a single number alongside the wording :

You were first started on 25 mcg T4 - Levothyroxine - can you share the blood test results then please and were there any readings for TPO antibodies ?

Have you now stopped T4 - Levothyroxine and now just take the Carbimazole -

Can you share the first set of TSH, T3 and T4 before you started the Carbimazole and when you were still taking the Levothyroxine - T4 ?

Sorry - I haven't answered your question but just confused by what I'm reading from the start of your posts.

[Pulp88 in reply to pennyannie]

I have graves anti bodiesNumbers I don't have to hand will try and find

Only taking carbimazole 5mg Monday and Friday that's the plan for 6 weeks

then for the next 6 weeks I'm going to stop taking all together and see what happens

[pennyannie in reply to Pulp88]

These joint and limb pains could be associated with too low a level T3 -

so please share any blood test result/ranges and the antibody reading when you find them. :

[Pulp88 in reply to pennyannie]

Recent results ( a week ago)

T4 15.4

Tsh 2.61

T3 4.4

[pennyannie in reply to Pulp88]

If you have the ranges there - can you go back into your reply to me - press the More button - select Edit and pop each ranges alongside the relevant blood test result :

Thank you :

[Pulp88 in reply to pennyannie]

Isn't the above ok?

[pennyannie in reply to Pulp88]

It is a far as it goes - yes -

but all blood test results sit within a range and if these results above or below the range the NHS will investigate -

ranges change from laboratory to laboratory -

so we need to know the ranges used to know if your blood tests are -

first in the ranges - and then high enough in the range - to give you back your wellness.

With a TSH over 2 you are likely looking at too low a level of thyroid hormones :

and both T3 and T4 ' look low ' in most ranges we see - but without the ranges it's all a guess rather than fact:

[Pulp88 in reply to pennyannie]

Results

Results

[pennyannie in reply to Pulp88]

OK - so your T4 is around 36% through its range with your T3 around 35% - so both much too low to be able to function on and likely why you have these aches and pains in your limbs.

The AT drug is semi-blocking your own new daily thyroid hormone production and now needs to stopped - and hopefully your T3 and T4 will level off, in the ranges, at a higher level that will relieve these aches and pains being suffered.

Looking back it seems you were first started on T4 - Levothyroxine - and then following a hyper episode switched to the Anti Thyroid drug ?

We really do need to know which antibodies were found positive and over the range before you started on T4 -Levothyroxine - can you scroll back as see any TPO / TgAB's numbers anywhere at the very first blood test before the doctor prescribed the T4 - Levothyroxine -

and to have been switched to an Anti Thyroid - there should be another blood test detailing a TSH and high/over range T3 / T4 - and an antibody blood test reading for a TRab - or wording such as TSH Thyroid Receptor antibody and a single number and range.

Very important to also maintain optimal core strength vitamins and minerals as when metabolism slows the body struggles to extract key nutrients through food no matter how well and clean you eat and non optimal ferritin, folate, B12 and vitamin D can also compromise your health further than necessary.

[Sjalotte]

Yes, I have pain i my lower legs. Started that way but now I often have pain in hands, arms, legs and feet. Sometimes it's still only in the lower legs, though. I have never found the reason or a treatment. My GP shrugs and acupuncture, new diet, massage and so on hasn't made a difference.

I'm not medicated since I have managed my Hashimotos with a diet change so far (four years). Sometimes I feel very poorly but am not able to get medicated because my numbers are within range. Numbers come before patients' experience!

[Pulp88 in reply to Sjalotte]

Sorry I hear

I'm now tapering down on my dose

But even before then I was having issues

So annoying

I'm just taking pain killers all the time and some days I feel house bound

[Sjalotte in reply to Pulp88]

Yes, it's very annoying! I'm in a lot of pain but I know that my doctor will have no solutions. I don't take painkillers because - as you say yourself - I would have to take them all the time which wouldn't make my liver happy.

I find that going for walks takes my mind a bit from the pain so I try to do that.

This disease is such a struggle!

[Pulp88 in reply to Sjalotte]

Don't want to sound negative but I Didn't think having a thryorid issue would be this challenging. Thought it would be take the meds and all is good

But since having it it's been one things after another....

[Sjalotte in reply to Pulp88]

It's okay to sound negative There are so many crazy symptoms and healthy people have no idea what we are struggling with. Most doctors don't either.

If you haven't looked into changing your diet I would highly recommend it. That alone can take away some of your symptoms. It'll be a big and uncomfortable change, but so are thyroid issues :/

Taking medication can relieve symptoms but it won't cure the underlying cause, which is the immune system overreaction because of diet and/or other things.

[Pulp88 in reply to Sjalotte]

From a diet point. I do eat less of stuff but haven't cut stuff out completely which might be the next step

[Sjalotte in reply to Pulp88]

Yeah, unfortunately less is often not enough. When you get desperate enough, you'll go the rest of the way It didn't take long for me to feel a lot better.

[Pulp88 in reply to Sjalotte]

Do you have a diet plans you would recommend or any websites?

[Sjalotte in reply to Pulp88]

I follow a modified paleo diet which is recommended by a lot of practitioners. I started a diet from a Danish practitioner (I live in Denmark) and then I began following Izabella Wentz' plan and did a couple of her courses:

thyroidpharmacist.com

I was given mealplans and new exactly what to do which can be difficult to do on your own.

There's also Sarah Ballantyne and Dr. Osborne who taught me a lot.

Many sufferers get great results and so did I. But now I'm having a flare up and I also have problems with thyroid nodules so I have to dig deeper into my triggers. There can be so many but if you start by leaving out gluten, dairy, sugar and soy it's a good start. Most people will start feeling better. I know it sounds challenging - and so it is - but once you start feeling better it will be so worth it

Maybe I should say that I have Hashimoto's which is an autoimmune disease, but I think the advice would also help in your case.

[MarvelDC]

check iron, b12, vit D and folate, deficiencies in all of these can cause leg pain, and is very common in people with thyroid issues