Thyroid Fatigue & Leg Pain: Hi folks hope you’re... - Thyroid UK

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Thyroid Fatigue & Leg Pain

LaineyMac82
LaineyMac82

Hi folks hope you’re safe & well. I wondered if anyone had any suggestions as to what I can do for the pains in my lower legs. It’s got so bad recently almost like restless leg syndrome. And the fatigue. I’ve been resting but it’s difficult when your legs wake u up. Tia.

12 Replies
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Do you have any recent blood tests to share? What level of meds are you taking? Are your key nutrient levels good?

I ask because I have lower leg pain when under-medicated; but fayray posting last night has the same problem whilst over-medicated. So I guess it's all about finding your sweet spot.

Hidden
Hidden in reply to fuchsia-pink

I had problem when overmedicated with Levo. Endo told me it’s a known issue for some people.

I got my bloods done last week but with the pandemic, I’m unable to get them from my gp. Was reading some posts below and noticed how hrt can affect. I went private a year ago and was put on 175 (gp had me on 50) then was sent to gynae specialist as I had no oestrogen so I’m on oestrogen patches & a bio progesterone. Think I need to see an endo again. Thank you for your reply tho. X

Can you call or email your GP to ask for your blood results to be posted? Mine has agreed to this. They ask you to post repeat prescriptions through a letter box to the side of the surgery entrance, so if yours does the same, you could post a written note through there asking for them ... I had to ask in writing, and did so just after the blood draw while still at the surgery.

whispers
whispers in reply to LaineyMac82

Do you not have online access to your records? Most if not all, Gps now offer this service, I would ask the surgery about it

Low Iron could be a problem. Have you had B12 - Folate - Ferritin - VitD tested ? Magnesium would help too - choose with care - there are many types ...

LaineyMac82
LaineyMac82 in reply to Marz

Thank you. I’ve been on folic acid for years. Can’t remember what I get tested. Always just look for tsh/oestrogen levels

Marz
Marz in reply to LaineyMac82

Folic Acid is B9 - not Iron.

Marz
Marz in reply to LaineyMac82

Folic Acid can mask B12 Deficiency I have read ...

SlowDragon
SlowDragonAdministrator

Low vitamin D...low magnesium also strongly linked

How much levothyroxine are you currently taking

Can you add most recent results and ranges

What vitamin supplements are you currently taking.

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to REGULARLY retest vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

A magnesium supplement and topical spray fixes my leg aches.

I have read that bone pain can be lack of vitamin D, I think I had that when young and it was called growing pains when I was very deficient.

Magnesium Citrate helps with restless legs, it helps me.

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