Hashimoto's symptoms getting worst

[ChloeEllen]

hello

I was recently diagnosed with Hashimotos and have had hypothyroidism for years. My TSH has constantly fluctuated even under my endocrine consultant!I have had many dose changes. It will stabilise for around 2 months then out of no where just goes crazy abnormal again.

I am awaiting celiac testing to see if I’m absorbing the medication properly, but my bloods years ago seemed fine.

Just have some questions for others going through the similar thing:

- Does anyone else get painful stomach/bowel cramps every morning and a feeling of adrenaline rush? My bowels feel so sore and I’m constantly going from diarrhea to constipation? I just want to know if this could be linked to the Hashimotos ? If so how did you get your pain under control ?

- did anyone notice that working night shifts completely makes the fatigue worse that comes along with Hashimotos ( I am a nurse that does shift work)

- does anyone else have a weird metal taste in their throat a few hours after taking the medication ? - I get this all the time !

- I’m taking the accord brand (Teva wasn’t god with me) is anyone else experiencing problems on this brand ?

- anyone else just having generalised pain every day?

I’d appreciate any comments as my symptoms are starting to control my life now I’m stuck for help!

[SlowDragon Administrator]

Previous post with detailed advice

please add full thyroid and vitamin test results and ranges

Exactly what dose Levo and what vitamin supplements are you taking

If you have been tested already for coeliac no point retestIng just start on strictly gluten free diet

Retest thyroid 6-8 weeks later

[ChloeEllen in reply to SlowDragon]

hi currently my TSH is 0.26 (keeps fluctuating)

Currently taking 50mcg x6week then 75mcg x1 week (already tried alternating doses, and 75mcg x2 a week)

My consultant has told me to continue taking folic acid, but no need to take any different vitamins ? - what do you recommend? I’m a bit worried taking them if it might make my stomach pain worst ?

Okay thanks il try gluten free diet for few weeks

[SlowDragon Administrator in reply to ChloeEllen]

Just testing TSH is completely inadequate

ALWAYS Test early morning, ideally before 9am, only drinking water between waking and test and last dose levothyroxine 24 hours before test

Which brand levothyroxine are you taking. Do you always get same brand at each prescription

Get FULL thyroid and vitamin testing done 6 weeks after going strictly gluten free

Approximately how much do you weigh in kilo

Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose

pathlabs.rlbuht.nhs.uk/tft_...

Guiding Treatment with Thyroxine:

In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.

The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).

The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.

……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.

The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.

Some people need a bit less than guidelines, some a bit more