T3 in UK: I've just relocated to UK from Asia and... - Thyroid UK

Thyroid UK

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T3 in UK

Mamafish100 profile image
7 Replies

I've just relocated to UK from Asia and will be trying to get T3 in the NHS as I've been on this for 13 years and am non functional without it. However, it seems that Thybon Henning does not work for me and I also need to supplement this with T3 from Sigma Pharm. Has anyone else experienced issues with Thybon Henning alone? What other options are there for T3 in the UK? Any tips for persuading doctors here to prescribe it?

Thank you

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Mamafish100
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helvella profile image
helvellaAdministrator

Getting T3 prescribed might be hard - at least, through the NHS.

Be aware that the Sigmapharm product in the UK is in 5 and 20 microgram tablets - whereas the USA version is in 5 and 25 microgram tablets. The markings are also different. But I think the ingredients are identical.

Those who take T3 are probably better placed to answer the rest of your questions.

helvella's medicines documents (UK and Rest of the World) can be found here:

helvella - Thyroid Hormone Medicines

helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world. There is now a specific world desiccated thyroid document.

I highly recommend viewing on a computer screen, or a decent sized tablet, rather than a phone. Even I find it less than satisfactory trying to view them on my phone.

helvella - Thyroid Hormone Medicines - UK

The UK document contains up-to-date versions of the Summary Matrixes for levothyroxine tablets, oral solutions and also liothyronine available in the UK. Includes descriptions of tablet markings which allow identification. Latest updates include all declared ingredients for all UK products and links to Patient Information Leaflets, etc.

dropbox.com/s/bo2jzxucgp9hl...

helvella - World Desiccated Thyroid

Contains details of all known desiccated thyroid products.

helvella - Thyroid Hormone Medicines - RotW

Contains details of all levothyroxine, liothyronine and combination products - excluding desiccated thyroid products. Details available vary by country and manufacturer.

The link below takes you to a blog page which has direct links to the documents from Dropbox and QR codes to make it easy to access from phones. You will have to scroll down or up to find the link to the document you want.

helvella.blogspot.com/p/hel...

TaraJR profile image
TaraJR

Where in UK have you moved to? Accessing T3 is rather a postcode lottery.

Mamafish100 profile image
Mamafish100 in reply toTaraJR

London W4 - any ideas what that's like?

TaraJR profile image
TaraJR in reply toMamafish100

I'll try to check it out. What's the name of it, rather than the postcode?

Mamafish100 profile image
Mamafish100 in reply toTaraJR

Thank you! Chiswick in London.

Jgoodwin977 profile image
Jgoodwin977 in reply toTaraJR

Following this thread . Thanks

TaraJR profile image
TaraJR in reply toTaraJR

Hmm. Chiswick is under South West London ICB (integrated Care Board). Their formulary is not helpful, and doesn't tally with current national guidance, and seems to say they prescribe T3 through a hospital for cancer and depression. They do not mention hypothyroidism. They say only for existing patients (not new ones) Their 2020 position statement link doesn't work.

swljointmedicinesformulary....

They link to the August 2023 NHS guidance "Items which should not routinely be prescribed in primary care: policy guidance" - thyroid patient groups have been fighting the sentence "Deprescribe in all patients" as they had promised it would not say that for T3. It directly contradicts their August 2023 guidance "Liothyronine – advice for prescribers". This is the crucial document that should be given to anyone who says T3 cannot be prescribed.

england.nhs.uk/long-read/li...

Sorry this look complicated! An NHS endocrinologist is supposed to initiate a trial of T3 if you're still symptomatic on T4. If successful, prescribing can then go to your GP. If you're lucky, a GP might carry on prescribing if you've been given it by a private endo, or if you transfer from somewhere else. But it's certainly not guaranteed. The "Liothyronine – advice for prescribers" is a crucial document to argue with!

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