Since my last post healthunlocked.com/thyroidu... I have started taking Thybon Henning to optimise my T3 with some success. Currently taking 10 mgs T3 at night, and have dropped my levo from 125 to 100. T3 has gone to 4.7 from 4 but I understand it should be nearer to 6. However, TSH has increased from .885 to 1.72 in a year, and T4 has dropped from 21.5 to 13.9 since taking T3.
Questions
- I am thinking that I will increase Thybon to 15mcg ?
- Should i be worried about my T4 reducing
- No idea if related but I had covid in May I am recovering from, and also have developed oral thrush so clearly something else going own in the microbiome.
Results and trends attached. As always very grateful for any inputs.
Written by
StanleyThyroid
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Can I just clarify that the ‘100 levo’ result above is really T4 100/T3 50 and you’ve been on that new dose how long assuming you very slowly introduced T3? It does look like a huge dose for your blood results…to me it would suggest perhaps the oral thrush ( and treatment?) is making a difference to absorption. FT4 does go down with T3 in my experience. I have had Long Covid for 4 1/2 years and in my case it has ‘knocked on’ effects to lots of my body…
oops sorry yes, I went through Roseway started on 5mcg for 6 weeks and been on 10mcg for the last few months.
I sympathise with you on Covid. Took me a long time to recover 3 yrs ago and since having it since May has knocked my fitness which was good (40 vo2 max) to 28 (poor). Still learning I think it affects so much.
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test
Is this how you did your test
If you left too long between last dose T3 and test result will be false low
Your low Ft4 is because you reduced your levothyroxine
Many people find they need BOTH Ft4 and Ft3 at good levels
Suggest initially you INCREASE Levo back up by 12.5mcg daily to 112.5mcg daily
Retest in 8 weeks
Meanwhile when were vitamin D, folate, ferritin and B12 last tested
Sorry started T3 on 1/5/24 on 5mcg then to 10 after 6 weeks which is what I am now. Tested last week (in original post) I took all my T3 12 hours before and the levo 24 hours before. 9am test after fasting and just water.
Also I am taking vit D+K, B complex, Magnesium, Zinc,Fish Oil, L-Glutamine.
I was working on the basis that getting the T3 right is the most important, but from what you are saying T4 needs to be correct as well. And I shouldnt worry about TSH if its around 1 although my GP gets excited if its below that (no not meaning to get you started )
Yes Roseway, I will have another consultation with them when I run out. I found the clinician to be very helpful so +1 for the forum recommendation from me.
Morning dippydame and thank you for your message. Rather annoyingly I have posted 2 long replies to you yesterday, neither of which seems to have been posted, so I will try again!
I haven’t seen the list of symptoms, but it comes as no surprise that I have or have had probably 2/3rds of them – I’ll try posting the image separately. The fact that there is a linkage with ADHD, thyroid, gluten/food intolerance and my IBS symptoms has been illuminating. Like you and others I am on a constant journey to get to the bottom of things.
With regards to the oral thrush, I am awaiting anti-fungal prescription. However, gargling with ACV and salt water, as well as reducing dairy and sugar seems to have made an effect in the couple of days I have been doing this. Unfortunately, as my lungs have been compromised by my recent COVID infection, I need to take some steroids which will aggravate the situation.
As has been suggested I will increase my Thybon by 5mcg and test again in a couple of months.
Your bio is an epic read- thank you for posting. Like you I had a serious RTA at 18 and have had 2 major concussions. The last one 5 years ago has taken along time to recover and I only started making progress a couple of years ago when I discovered my hypothyroidism and ADHD. Your contribution and others have made this group a lifeline in treating my condition.
Morning Stanley,Thank you for your post. I am a newbie on here. May I ask. Where do you get your T3 Thybon from? Do you require a prescription? Thank you.
Hello Autumn welcome you have come to a good place. Yes you need a prescription in the UK but it's possible to buy abroad without one. Roseway labs have been used a lot here and they offer a consultation and prescription service in the UK. I found them to be very good.
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