The doctor put my Levo down from 100mcg to 75mcg a few months ago, she wouldn’t have it that I felt better on a higher dose. I’m pretty sure I talked about this previously in a post.
But lately my digestion has been bad, I am so tired in the afternoon that I’m yawning a lot, it’s not as if I don’t sleep because I’m usually flat out for 7 hours. My nails have started flaking, my hair is a mess, my skin is dry, no energy or get up and go.
I’m sure all this has got something to do with not being on the 100 Levo because the same thing happened in ‘22 I think it was, so I raised my dose from 75 myself. That time another doctor had dropped me down from 100. They all seem to think that I’m about to die!
Annoyingly they didn’t test everything I asked them to test so I only have these results from March 15th. 2024.
TSH - 0.04 [0.32 - 4.94]
T4 - 14.8 [9.0 - 19.0]
Do you think all these new problems could be down to the lower dose and I need to raised again? Thank you.
I can’t afford private blood tests.
Written by
Ellie-Louise
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I tried that different dosage before, I can’t remember if it was you mentioned it that time as well. But doc refused to agree (did argue with her) and told me had to be 75.
I had asked to be tested for all 5 as recommended here and was shocked when I saw only 2 had been tested. I especially asked for them too. My surgery used to be fantastic!
I weigh roughly around 70k sometimes a few grams over.
So if GP won’t increase dose, obviously she’s just looking at TSH
Request referral to endocrinologist of your choice
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Trouble is, most referrals to NHS endocrinologist are taking over a year and they may simply refuse to see you
Next step is to test vitamin levels and retest thyroid including Ft3
if going to go private essential to get full thyroid and vitamin testing BEFORE booking consultation
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
FT3 a month ago yes. I changed doctors since seeing her but she has control of the tests that she ordered. I think I’ll talk to my present doctor about it.
All I know is that I had the same when I was put on 75 before because a completely different doctor had seen my low TSH a couple of years ago. After 8 months of it I couldn’t stand feeling like that any more and put it back up to 100 myself, and I told them about it.
I started feeling back to my old self with no symptoms to talk about within weeks…until another blood test which seemed to scare the heck out of yet another doc who worried more about keeping her job than me, so she made me go back down to 75 which is what my post is about, resulting in me getting all my old symptoms back.
I might have higher numbers, that’s down to being born during the last century, but I certainly don’t feel old in any which way or loose. 😉
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