Endo declined request to up T3: Results 14/02/2... - Thyroid UK

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Endo declined request to up T3

Klawd profile image
28 Replies

Results 14/02/24

Free T4 (fT4) 16.7 pmol/L (12 - 22) 47.0%

Free T3 (fT3) 4.9 pmol/L (3.1 - 6.8) 48.6%

I took slowDragon advice, told Endo some improvment but still symptoms & asked for slight increase of 5mg T3,

Endo replied Thyroid function normal continue on 10mg Liothyronine.

I plan to reply - state I still suffering symptoms & T3 still low.

Would really appreciate any advice please?

thanks

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Klawd profile image
Klawd
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28 Replies
TiggerMe profile image
TiggerMeAmbassador

With results like those I'd be inclined to increase your t4 which often needs to be above 60% to feel well even after adding T3, so if he refuses I'd tweak this if you have enough supplies

Did he do the usual Endo thing and get you to reduce your T4 by too much before adding T3?

Klawd profile image
Klawd in reply toTiggerMe

Thank you All for replies, not sure how to reply when theres more than 1, so just picked the last one - is that how your supposed to do it?

Oh, yes I wish my Thyroid was normal 🙄

So you think I should be upping T4 not T3?

If I doubled the dose think I'd run out before being able to request another script - they have date on that you are unable to reorder before.

PinkSkittles profile image
PinkSkittles in reply toKlawd

Is your medication on repeat? Are you sure you cant order it sooner so you can just double the dose without telling them? This is a screenshot of my medication. As you can see the next reissue date is April but I can click on the button to order it now.

Photo
Klawd profile image
Klawd in reply toPinkSkittles

No mine says last issued and then date you can order after with the button to reorder greyed out.

Do I need T4 or T3 upping?

PinkSkittles profile image
PinkSkittles in reply toKlawd

Ahh thats soo annoying!!! Mine isn't greyed out.

Sorry I cant comment on what to do re dosing

Klawd profile image
Klawd in reply toPinkSkittles

thank you anyway : )

PinkSkittles profile image
PinkSkittles in reply toKlawd

When you say reply to the endo do you mean via email? Or face to face?

Klawd profile image
Klawd in reply toPinkSkittles

It was email

PinkSkittles profile image
PinkSkittles in reply toKlawd

Okay in that case its easier to be bold compared to face to face!

I cant give you advice on what dose to increase/decrease but I can suggest what you could say to the Dr.

You could say something like:

I've been researching hypothyroid symptoms and talking to other people in thyroid groups online who have ft3 and ft4 just under the middle of the range like mine and feel terrible. They have found that when they get their ft3 (and sometimes their ft4 too) to the top of the range they feel alot better.

Then you could say either:

Based on my research Ive increased my t3 (just pretend) (if thats what this forum ends up suggesting) and Im starting to feel better-(explain how). Please could you change my prescription to reflect that?

(At the end of the day you get to decide what goes into your body not a Dr).

Or:

Based on my research I'd like to increase my t3 medication (if thats what you decide you need to do) to get my ft3 up to (state the range you want to get it up to) to see if x,y,z symptoms of low thyroid hormones get better. Please can you prescribe X dose.

Klawd profile image
Klawd in reply toPinkSkittles

That's great, I will battle just sometimes my confidence gets shaken with it & go from 🦁 to 🐭 & doubt myself, the people & advice on here helps me find my strengh again.

Thank you.

PinkSkittles profile image
PinkSkittles in reply toKlawd

Yes exactly thats why you need people backing you. Be confident about it. Its your body, your choice.

TiggerMe profile image
TiggerMeAmbassador in reply toKlawd

Yep, just press Reply under whoever you are aiming at

I found when adding T3 my fT4 dropped below 50% and I felt tragic until I upped it, even with a decent level of fT3.

You wouldn't need to double your dose just add in an extra 12.5mcg to start and see how that goes, didn't he drop you from 150mcg to 100mcg when adding T3 which is way too much and then you added back in 12.5mcg so I'd suggest going back to 125mcg daily

Your fT3 isn't terrible and a little more T4 might drag it up a little higher whilst you wait to do battle with Endo

PinkSkittles profile image
PinkSkittles in reply toTiggerMe

In what way did you feel tragic?

Klawd profile image
Klawd in reply toPinkSkittles

I wouldn't really say tragic, but brain frog trying to keeping my line of thoughts a struggle & random fatigue engulfs me at Sensitive to heat & cold.

PinkSkittles profile image
PinkSkittles in reply toKlawd

Oh Im so sorry I was replying to Tiggerme.

Klawd profile image
Klawd in reply toPinkSkittles

Thats ok, you made me LOL ...... as tho I don't do a good enough job of confusing myself 😳... 🤣

PinkSkittles profile image
PinkSkittles in reply toKlawd

Sorry!

TiggerMe profile image
TiggerMeAmbassador in reply toPinkSkittles

Everyway... exhausted but wired so poor sleep, rattling with cold, dry eyes, aching, nausea, poor digestion... just crawled back to bed most of the time or into a hot bath until the increase kicked in 3-4 weeks later ☹️

PinkSkittles profile image
PinkSkittles in reply toTiggerMe

Tiggerme- Can i pm you about this as I dont want to get in the way of Klawd's conversation?

TiggerMe profile image
TiggerMeAmbassador in reply toPinkSkittles

About to go and soak in the bath (minimum of 1 hour)... happy to chat though it might be good to start a new post then others can join in... I've picked up so many useful tips just from the seemingly casual discussions we've had on here 🤗

Klawd profile image
Klawd in reply toTiggerMe

Sorry if Im not answering in sequence or missing answering someone, I get in a muddle with this ....& loose the plot 😵‍💫 Iv been on 112,5mg T4 ever since i added 12.5mg at Christmas.

In readiment for T3 mid November, I reduced T4 by 25mg Then after a week added 5mg T3 then did same till I was on 100mg T4 & 10mg T3 So that took bout 6weeks.

Can I just clarify, you think I should up T4 so that I'll be on 125mg? am I on the right dose of T3?

PinkSkittles profile image
PinkSkittles in reply toKlawd

^^^ I would maybe copy and paste this and put it in your post so everyone sees

Klawd profile image
Klawd in reply toPinkSkittles

Thank you 🙂

TiggerMe profile image
TiggerMeAmbassador in reply toKlawd

Answer anyway you please, it's fine as long as you use the Reply button then the person gets notified, it is a clunky system but you'll get the hang of it 🙃

This is what I though, you reduced your T4 twice by 25mcg when you needn't have done the second drop of 25mcg before adding the second dose of 5mcg T3 early December as it dropped your fT4 too low

I understand the need for the first drop as your fT4 was at 21.6 when on 150mcg T4 but quite often once you add even a little T3 it has a habit of lowering fT4 as well, sometimes just for a short while and sometimes for good and you need to add a little back in

Hope that is clear, I've suddenly got lots of replies to do... shout me if not 🤗

greygoose profile image
greygoose

Endo replied Thyroid function normal continue on 10mg Liothyronine.

Stupid thing to say. If your thyroid function was 'normal' you wouldn't need any thyroid hormone replacement at all! But, I suppose he meant 'thyroid status', meaning results all in range, without understanding that even that isn't 'normal' even for someone without a thyroid problem (euthyroid) because the Frees are too low. And hypos need them higher than euthyroid, anyway. So, just goes to show how much he knows about thyroid! :(

PinkSkittles profile image
PinkSkittles

Will he know if you double your dose?

Klawd profile image
Klawd in reply toPinkSkittles

Ok, I see I should've replied to the most recent. No I reduced T4 as I was advised on here.

PinkSkittles profile image
PinkSkittles in reply toKlawd

You click the reply button underneath each individual reply.

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