With results like those I'd be inclined to increase your t4 which often needs to be above 60% to feel well even after adding T3, so if he refuses I'd tweak this if you have enough supplies
Did he do the usual Endo thing and get you to reduce your T4 by too much before adding T3?
Is your medication on repeat? Are you sure you cant order it sooner so you can just double the dose without telling them? This is a screenshot of my medication. As you can see the next reissue date is April but I can click on the button to order it now.
Okay in that case its easier to be bold compared to face to face!
I cant give you advice on what dose to increase/decrease but I can suggest what you could say to the Dr.
You could say something like:
I've been researching hypothyroid symptoms and talking to other people in thyroid groups online who have ft3 and ft4 just under the middle of the range like mine and feel terrible. They have found that when they get their ft3 (and sometimes their ft4 too) to the top of the range they feel alot better.
Then you could say either:
Based on my research Ive increased my t3 (just pretend) (if thats what this forum ends up suggesting) and Im starting to feel better-(explain how). Please could you change my prescription to reflect that?
(At the end of the day you get to decide what goes into your body not a Dr).
Or:
Based on my research I'd like to increase my t3 medication (if thats what you decide you need to do) to get my ft3 up to (state the range you want to get it up to) to see if x,y,z symptoms of low thyroid hormones get better. Please can you prescribe X dose.
That's great, I will battle just sometimes my confidence gets shaken with it & go from 🦁 to 🐭 & doubt myself, the people & advice on here helps me find my strengh again.
Yep, just press Reply under whoever you are aiming at
I found when adding T3 my fT4 dropped below 50% and I felt tragic until I upped it, even with a decent level of fT3.
You wouldn't need to double your dose just add in an extra 12.5mcg to start and see how that goes, didn't he drop you from 150mcg to 100mcg when adding T3 which is way too much and then you added back in 12.5mcg so I'd suggest going back to 125mcg daily
Your fT3 isn't terrible and a little more T4 might drag it up a little higher whilst you wait to do battle with Endo
Everyway... exhausted but wired so poor sleep, rattling with cold, dry eyes, aching, nausea, poor digestion... just crawled back to bed most of the time or into a hot bath until the increase kicked in 3-4 weeks later ☹️
About to go and soak in the bath (minimum of 1 hour)... happy to chat though it might be good to start a new post then others can join in... I've picked up so many useful tips just from the seemingly casual discussions we've had on here 🤗
Sorry if Im not answering in sequence or missing answering someone, I get in a muddle with this ....& loose the plot 😵💫 Iv been on 112,5mg T4 ever since i added 12.5mg at Christmas.
In readiment for T3 mid November, I reduced T4 by 25mg Then after a week added 5mg T3 then did same till I was on 100mg T4 & 10mg T3 So that took bout 6weeks.
Can I just clarify, you think I should up T4 so that I'll be on 125mg? am I on the right dose of T3?
Answer anyway you please, it's fine as long as you use the Reply button then the person gets notified, it is a clunky system but you'll get the hang of it 🙃
This is what I though, you reduced your T4 twice by 25mcg when you needn't have done the second drop of 25mcg before adding the second dose of 5mcg T3 early December as it dropped your fT4 too low
I understand the need for the first drop as your fT4 was at 21.6 when on 150mcg T4 but quite often once you add even a little T3 it has a habit of lowering fT4 as well, sometimes just for a short while and sometimes for good and you need to add a little back in
Hope that is clear, I've suddenly got lots of replies to do... shout me if not 🤗
Endo replied Thyroid function normal continue on 10mg Liothyronine.
Stupid thing to say. If your thyroid function was 'normal' you wouldn't need any thyroid hormone replacement at all! But, I suppose he meant 'thyroid status', meaning results all in range, without understanding that even that isn't 'normal' even for someone without a thyroid problem (euthyroid) because the Frees are too low. And hypos need them higher than euthyroid, anyway. So, just goes to show how much he knows about thyroid!
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