Statins with an under active thyroid. - Thyroid UK

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Statins with an under active thyroid.

MauveMouse profile image
72 Replies

Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an under active thyroid. Strangely, they haven't considered that my BP and inflammation are also elevated. Also, I keep crashing physically, have muscle weakness and joint pain. In the last few months I've have had infections with fever twice and felt generally unwell. I pant walking up stairs and briskly. Today I had an emergency appointment for rash which my doctor thinks is cellulitis. After he found out I've been suffering from gout flare-ups since the age of 11, he's ordered a screening for an autoimmune immune condition. I have a feeling I have Hashimoto's thyroiditis. I have a cousin who has lupus, another who has hypothyroidism and one with rheumatoid arthritis, diagnosed in her early teens. Pretty sure my grandad and my mum had autoimmune diseases too. They just weren't diagnosed.

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72 Replies
humanbean profile image
humanbean

If you want to refuse statins nobody can force you to take them. No doctor can blackmail you into taking statins either e.g. they can't say - if you don't take statins we won't treat any other condition you have.

If you have hypothyroidism then your cholesterol levels in blood tests will rise as a result. Cholesterol is produced by the liver. It doesn't rise in hypothyroidism because your liver is producing more. Instead the hypothyroid patient can't clear cholesterol from the body as quickly as a person who is healthy. As a result the patient's cholesterol levels rise.

Doctors will tell you that high cholesterol increases your risk of dying from heart attacks and strokes.

What they don't mention is that statins will increase your risk of dying from dementia and cancer, also increase the risk of developing cataracts and type 2 diabetes, also rhabdomyolysis, a kidney disease which is caused by the destruction of muscles.

If you are of an age to get pregnant, statins do awful things to babies developing in the womb.

Take a look at the graphs in this link :

drmalcolmkendrick.org/2012/...

And also take a look at these links :

spacedoc.com/articles/50-fa...

diabetes.co.uk/forum/thread...

diabetes.co.uk/forum/thread...

MauveMouse profile image
MauveMouse in reply tohumanbean

Thank you for the information 🙂.

humanbean profile image
humanbean in reply toMauveMouse

I've just realised that you live in India. I wrote my reply on the basis of UK rules, so you would need to check the rules in India about statins to see if they are different. I doubt you could be forced to take statins or be blackmailed in India, but I really can't say for certain.

MauveMouse profile image
MauveMouse in reply tohumanbean

I am in the UK. I'm being treated by an NHS GP. I felt awful in India too and my TSH was 4. It's gone up to 5.6 since I moved here. The brain fog accompanying the fatigue is really something else. I would not have been blackmailed in India, unless the doctor was especially arrogant about his expertise.

EchoWS profile image
EchoWS in reply toMauveMouse

Your TSH is high. I hope you push for treatment for hypothyroidism and that being treated will help alleviate other symptoms.

DizzyD profile image
DizzyD in reply tohumanbean

humanbean, I'm strongly opposed to taking statins, would never take them in the past when GP prescribed them for elevated cholesterol. Had a stent fitted 16 May last year and statins prescribed 40mcg as part of post stent treatment. Good grief, one GP actually said if i were her mother she would want me on 3 times that dose if not more. I still refused to take the statins but found out from people on another forum that statins also help improve the arteries so been taking them for about 6 weeks now. I have no idea how statins help improve the arteries!!! After reading your reply to MauveMouse I suddenly realized I have been caught up in statin myth and the penny dropped....there is no medical evidence that statin improves the ateries but it does claim to lower cholesterol which is alleged to accumulate in the arteries. So really speaking i have been taking statins to reduce my cholesterol levels all along, for six weeks now and I feel awful since taking them.

yep my cholesterol was slightly high, prior to taking statins 6 weeks ago, because I am hypothyroid and likely to be this way for quite some time, until i get my thyroid levels sorted.

Its time for me to bin the statins.

Humanbean, can statins adversely affect thyroid medication in anyway?

Marz profile image
Marz in reply toDizzyD

Cholesterol can gather in the arteries. Think of it as a sticking plaster covering an area of inflammation until it heals. Lots of other bits in the sticking plaster area too Homocysteine being one. So like so many conditions it can all start with inflammation - often in the gut....

DizzyD profile image
DizzyD in reply toMarz

yep my inflammation marker was quite high at one time. Could not work out why? Daughter advised me to take probiotics and inflammation marker dropped to a much more acceptable level. I was really blown away.

As for the arteries.....my diet is very good...virtually non of the bad fats...so will forgo statins. What will be will be.

humanbean profile image
humanbean in reply toDizzyD

can statins adversely affect thyroid medication in anyway?

If you read this link :

nhs.uk/conditions/statins/c...

it says :

If you have an underactive thyroid (hypothyroidism), treatment may be delayed until this problem is treated. This is because having an underactive thyroid can lead to an increased cholesterol level, and treating hypothyroidism may cause your cholesterol level to decrease, without the need for statins. Statins are also more likely to cause muscle damage in people with an underactive thyroid.

So having an underactive thyroid can cause problems when taking statins, rather than statins directly affecting Levo or T3 or NDT.

DizzyD profile image
DizzyD in reply tohumanbean

Thanks Humanbean....you have actually provided me with a valid reason to refuse statins in the future. "Sorry doctor i dont want any statins, my cholesterol level will be resolved, when my thyroid hormone levels are sorted out"

Thats called treating the cause rather than focusing on secondary symptoms. NHS do not focus on causal factors do they?

Statins in the bin...yippee!

Dryski profile image
Dryski in reply toDizzyD

I have a new male gp that used that mother line on me to and I thought it was a toch sweet the first time but still refused. He has tried that bs again since but not so sweet anymore. Must be a med school line. Thanks for the smile.

Lulu2607 profile image
Lulu2607 in reply tohumanbean

humanbean . Whilst I can see you have strong opinions on statins, as indeed a lot of us do, I think it important to state that these comments are from your perspective, even though you provide evidence . A lot of hypo patients have high cholesterol from a genetic fault and it may be that the patient, MauveMouse needs to consider all info and come to their own decision. There may be other comorbidities involved too. My cholesterol was double figures and then it was found my TSH was over 160. I was very ill and not yet diagnosed. . But it took both levo and a statin to get the cholesterol down. I hate statins and I'm trying to do without them but it has to be the patient's decision of course. It's hard to go against the Dr's advice and be confident you're doing the right thing where your health is concerned.

humanbean profile image
humanbean in reply toLulu2607

I absolutely agree that my posts are based on my opinions and perspective, my research and my experiences, and I have no professional qualifications to back up what I say. I try to back up as many things as I can with links to articles and research papers that people can read or ignore as they wish.

I say in my profile text, in capital letters, that I'm not a doctor, nor do I have any medical training. I often mention it in my posts too. Nobody has to do anything I say. Nobody has to do anything that any member of the forum says, although transgressing the forum rules is probably not the best idea. People are at liberty to ignore posts, mine as well as others, if they want to.

There are plenty of people who come to the forum who absolutely believe, 100%, that they must do what their doctors tells them, and they have no choice. Sometimes that is a good idea, and sometimes it isn't. But many of the people who come here are the ones that the medical profession has failed in terms of their thyroid treatment, so they (the patients) might be open to reading other points of view, and I think the forum gives people back some autonomy and independence of thought in terms of dealing with their health and making their own decisions.

I am convinced that getting, say, five suggestions and recommendations made by patients about a problem are worth reading, and it adds to what a doctor says, it doesn't always detract from what they say.

There have been occasions when people on the forum have been misdiagnosed, and we can sometimes spot that, and help with evidence to get their treatment corrected. Another (rare) issue is doctors thinking that a high TSH means someone is over-medicated with thyroid hormones, when in fact it is the reverse. And of course, doctors always seem to want to reduce doses of Levothyroxine, or deny the patient T3, or remove T3 prescriptions if it has been prescribed by someone else.

Another common problem is doctors thinking that a TSH of 2 - 10 is absolutely fine and no increase of Levo is required. In the case of healthy people with a healthy thyroid the most common value of TSH is about 1.2, and the chances of a thyroid patient having a TSH of 3+ and feeling well are extremely low.

Marz profile image
Marz in reply tohumanbean

Having joined this forum in 2011 I have ALWAYS found your knowledge, links and experieces of the highest qauality. Also so helpful - especially your knowledge surrounding iron. Thank you so much 🌻

humanbean profile image
humanbean in reply toMarz

Thank you, and you're welcome. :)

bluepettals7 profile image
bluepettals7 in reply tohumanbean

oh wow what a reply, can i make an appt with you H.bean?

i have been put on 80mg statins as i had a heart attack, i have not ever been treated right for thyroid and that has always been my argument, of high LDL due to underactive but i didn tconsider the fact that we cant clear the stuff... so now i have a stent, my sister also has low thyoid but they won t treat her and she has cataracts and i have the start of t hem, it just goes to show from mauvemouse post an dyour reply just how little THEY know about this complex condition, giving this stuff causes another problem.

Al1954 profile image
Al1954 in reply tohumanbean

Totally agree with you i have Ra lung fibrosis had cancer pohstneuropatic pain after shingles osteporosis 300 colestero since i am 22 hypotiroidism since 10 years ago now i am 70 refused ages ago to statins only took 2 days 20 years ago nearly fainted with the pain in my legas.I have tried everything else chia omega 3 i eat as healthy as possible and i am from 7 years now on 4 mg of prednisone.i am yet still on my feet lets see till when ? but my colesterol now is in 350 scary i would say but i dont resist statins.

greygoose profile image
greygoose

Statins also increase your risk of a heart attack because - believe it or not - cholesterol actually protects you from heart problems. So, lowering it artificially is really not a good idea. You need to address the root problem: i.e. low FT3.

DizzyD profile image
DizzyD in reply togreygoose

Hi greygoose herein lies the problem: i.e. low FT3. Increasing levo and/or small dose of NDT i take is going to be a long drawn out process which is going to take a long time to get to a reasonable FT3 level, so in the meantime cholesterol levels could go up but i'm not concerned about that now because the statins are going in the bin promto.

I am in a position whereby i have to increase thyroid meds at very low doses, beyond the norm of what people on this forum would normally suggest. For example, last levo increase of 25mcg every alternate days is a small raise considering FT4 was 15.9 (12-22) FT3 4.1 (3.1 - 6.8).

Will not bore you with the details because very few people on this forum have the knowledge to offer help or advice re: situation i am in.

Totally agree with you re: artificially lowering cholesterol is not a good idea.

greygoose profile image
greygoose in reply toDizzyD

Increasing levo and/or small dose of NDT i take is going to be a long drawn out process which is going to take a long time to get to a reasonable FT3 level, so in the meantime cholesterol levels could go up

Doesn't matter if it does. It's not doing you any harm. It's a symptom, not a disease. Take your time, you'll get there in the end. :)

bluepettals7 profile image
bluepettals7 in reply togreygoose

i think i will hav eto get some ndt again, where do i get it from these days?

greygoose profile image
greygoose in reply tobluepettals7

Sorry, I have no idea. I haven't taken any for years! Best write a new post asking just that. :)

WaystarRoyco profile image
WaystarRoyco in reply toDizzyD

Will not bore you with the details because very few people on this forum have the knowledge to offer help or advice re: situation i am in.

I’m not sure that’s true. I’ve gotten better advice here than from any doctor I’ve been to on thyroid matters.

For what it’s worth, I also have high cholesterol, alongside hypothyroidism. I don’t take statins. On the last blood test I did for my endocrinologist, however, and having taken advice here about raising FT3 levels, my cholesterol was markedly down. The endo even remarked on it!

DizzyD profile image
DizzyD in reply toWaystarRoyco

Totally with you all the way WaystarRoyce.Back in 2020 GP prescibed statins for high cholrstorol and i was also in pre diabetic phase. I did not take the statins. Unknowm to GP i started combo dose of levo and NDT.

Several weeks later had MOT blood test at surgery. Got a phone from GP about blood results. He was amazed and said, "I dont know what you have done but cholestorol levels and pre diabetes are now normal" I informed him, that didnt take the statins but i did sort my thyroid levels out. He looked at my thyroid blood results and said, "Oh yes your levels are nearly at top of the range" Lol glad he did'nt ask me about thyroid meds i was taking.

MauveMouse profile image
MauveMouse in reply toDizzyD

How did you get a prescription for the combo dose? I'm prediabetic as well.

DizzyD profile image
DizzyD in reply toMauveMouse

I didn't get a actual script for combo dose from a doctor. I just added some NDT to my usual levothyroxine prescription. I added the NDT to help raise my FT3 which was a success.

MauveMouse profile image
MauveMouse in reply toDizzyD

Which brand do you use and is this available in the pharmacy?

DizzyD profile image
DizzyD in reply toMauveMouse

You get levothyroxine prescribed by a GP which you take to a pharmacy. A GP of endocrinologist can prescribe T3 but this is rare. Many people on this forum source T3 themselves from abroad. Are you already prescribed any thyroid medication?

MauveMouse profile image
MauveMouse in reply toDizzyD

I haven't been prescribed any thyroid medication yet.

DizzyD profile image
DizzyD in reply toMauveMouse

Have you had a full thyroid function test (TFT) done here in the UK? You can get a private TFT but you have to pay for this test. You need this test to see what your thyroid levels are before you take any thyroid medication.

MauveMouse profile image
MauveMouse in reply toDizzyD

I haven't yet. Will the doctor accept this test?

DizzyD profile image
DizzyD in reply toMauveMouse

A GP here in the UK will not accept a private TFT, they like to do NHS thyroid test which is not a full thyroid function test. But if you got a private TFT (cost about £80) you can post the results on this forum and very knowledgeable people will suggest what you best next step for you to take. PEOPLE HERE ARE MUCH MORE KNOWLEDGE THAN GP AND ENDOS WHEN IT COMES TO THYROID ISSUES.

DizzyD profile image
DizzyD in reply toWaystarRoyco

Yes it is true...i am in a situation whereby a medication i was prescribed to treat afib, which i stopped taking august gone, has competely messed up my thyroid levels. The drug is Amiodarone, very toxic due to high iodine content. Half life of drug lasts a very long time so even though i stopped taking it 7mths ago it is still playing havoc with my thyroid levels. The drug, via conversion pushes thyroid levels over range or down. Same can happen due to long half life of tge drug which is still in my system. Thats why i have increase very smal levo dose over long period of time. Not many people on this forum apart from myself and waveylines who also took this drug know how to deal with this situation. Its all trial and error at times.

Like yourself i treasure this forum which has educated me about many things beyond the thyroid over the years.

In fact when i first posted here about amiodarone/thyroid a lovely admistrator advised me to seek specialist endo advice for reason already mentioned above.

Hence my comment which you picked up on. It was not meant to offend anyone...its just fact of situation i am in.

Lavender-Blue profile image
Lavender-Blue

Having read The Cholesterol Myth by Dr Steven Sinatra, he says that we have LDL pattern A and pattern B; it is pattern B that is cause for concern as this is the LDL that is oxidised. When we have cholesterol tests, we are not tested for pattern A or pattern B. According to Dr Steven Sinatra, we can influence pattern A by the foods that we eat; like nuts, olive oil, meat, fish butter ect..I really recommend the book.

Also, onthe Statin Nation video (available on You Tube, Dr Longsjoen (an american cardiologist, treats his patients with CO Q10. This enzyme is on the Melovanate pathway; all of the enzymes on this pathway are blocked by statins! Are Statin takers being slowly killed off via the back door, as without CO Q10 which is essential for our heart survival is hindered!

It is essential that if taking Statins that CO Q10 in the for of Ubiquinol is taken as a suppliment.

DizzyD profile image
DizzyD in reply toLavender-Blue

Yes i take a good quality CO Q10 Ubiquinol 2 daily for heart not because i took statins for 6 weeks. There is lots of info out there (books) about Choleserol myth which i have read and totally believed what authors wrote. Think i took it because i was fearful about stent. Bit late on the day...stent was fitted May last year. My diet is very similiar to Sinatra one you mentined so i should be ok. Will defo watch Dr Longsjeon on you tube. Yep i do suspect lots of people are being killed off via the back door, with lots of big pharma meds not only statins. One cardiologist wrote that i was suspicious of medications. Clever boy he got that right.Thank you lavender blue

Lavender-Blue profile image
Lavender-Blue in reply toDizzyD

Aseem Mulhotra an NHS Cardiologist is good to look st too.

Peter Longsjoen us speaking on 'Station Nation You Tube', if you Google that the 1 hour documentary will appear.

I haven't got a heart issue, I thought I had, but echocardiogram shows no calcification and arteries working fine.

I researched for my Dad really. I buy him Ubiquinol, but after all this research, I take Ubiquinol myself. X

DizzyD profile image
DizzyD in reply toLavender-Blue

Thanks Lavender Blue, lovely to hear you do all this research for your dad. When it comes to Aseem Malotra, i vitually stalk him....not just because of his take on statins etc....but because of what happened to his father dieing suddenly of a HA!!! Glad i did not take medicine that caused his dads sudden demise.Hope you dad is on the mend lovely.

I got my ex husdand off statins and other med he been on for a long time...he does not have any heart probs, but got him on CO Q10, nattokinase and other supps. His yearly mot with GP was 100%. But he has got clear signs of dementia.

He is one of those people who just takes whatever GP prescibes.

Lavender-Blue profile image
Lavender-Blue in reply toDizzyD

Thank you for your reply and kind words. My Dad is one who usually takes what is given, I am challenging him big time!

rjb112 profile image
rjb112 in reply toLavender-Blue

"According to Dr Steven Sinatra, we can influence pattern A by the foods that we eat; like nuts, olive oil, meat, fish butter"

Lavender-Blue:

Is he recommending that we should eat more meat and butter, or less meat and butter?

Thanks.

Lavender-Blue profile image
Lavender-Blue in reply torjb112

Eating clean meat, fish, butter, olive oil, anything natural and clean. X

rjb112 profile image
rjb112 in reply toLavender-Blue

Thank you for your reply, Lavender-Blue. Much appreciated.

Lavender-Blue profile image
Lavender-Blue in reply torjb112

You are welcome! 😊

Staffsgirl profile image
Staffsgirl in reply toLavender-Blue

The Sinatra and Bowden book is well worth reading as well as several by Malcolm Kendrick, a British GP, in particular The Great Cholesterol Con.

Lavender-Blue profile image
Lavender-Blue in reply toStaffsgirl

Yes, I have this book too, very informative . There is also a good resource by dr. uffe ravnskov. Please see his website for info. X

bluepettals7 profile image
bluepettals7 in reply toLavender-Blue

that does remind years ago i saw a private doc and a si couldno longer affford him at wen tto nhs i wa sput on statins and privat edoc said you must take coq10 to protect your heart, a si have just had a stent put in as i had a heart attack i came out of hospital with about 8 tablets and 80mg of statins, i am now worried as i cannot let the stent get clogged up but dont want statins either so i have looked up dr alan mandel and now taking olive oil Yuk ON A SPOON AND CHIA SEEDS as i nee dto get off statins

Lavender-Blue profile image
Lavender-Blue in reply tobluepettals7

I take olive oil from the spoon too, ensure it is a good one with high polyphenols.

Pharma Nord do a Natural food supplement called Statinquinon, it contains a natural statin called Wild Red Yeast ,it also contains Ubiquinone (which does have to convert in the body to Ubiquinol. As we get older, this process slows down, hence taking the active Ubiquinol ( its a but like T3/T3.

I have also discovered of late that oyster mushrooms contains natural statins.

This is an interesting watch too, note where they talk of the Melovanate Pathway and diagram shown.

youtu.be/iZctVYxiW2w?featur...

😊

bluepettals7 profile image
bluepettals7 in reply toLavender-Blue

oh yes i used to buy from pharma nord thankyou and my private doc years ago told me about red yeast thanks i will get some

Lavender-Blue profile image
Lavender-Blue in reply tobluepettals7

There is some good info on their website.

janeroar profile image
janeroar

hi there I’m wondering about your gout as a child- in children it is extremely rare. Gout is an inflammatory disease and in children might be caused by kidney disease. Could it have perhaps been juvenile Rheumatoid arthritis? That is an autoimmune condition and it sometimes flares up in childhood and subsides in adulthood (which is what happened to me)

Otherwise raised uric level can be caused by celiac disease. Have you tried to strictly eliminate gluten ?

If you want to find out what is going on you might be better placed to get a full blood panel done if you can afford to pay and check for celiac disease if you think this might be a problem. About 10% of Hashimotos patients are also celiac. Best to check for celiac whilst you’re still eating gluten. Doing your own blood tests will give you a clearer picture

MauveMouse profile image
MauveMouse in reply tojaneroar

My GP has asked to test for celiac disease as well. You may be right about the juvenile arthritis. I have slowly begun to cut out all grains and sugar. One of my cousins passed away recently from kidney disease and his niece was diagnosed with juvenile arthritis. It usually starts with not having enough T3, which ultimately influences other hormones. It's quite clear to me that blindly following parameters for the ideal amount of TSH, etc is not the right way to go. Somebody's normal may be abnormal for me. I'm curious if anyone has sought help from a functional medicine doctor.

janeroar profile image
janeroar in reply toMauveMouse

I honestly think that your best placed getting information here for the time being, I’ve had some really bonkers, functional medicine people who are at best useless and sometimes dangerous for example, prescribing me iodine

DizzyD profile image
DizzyD in reply toMauveMouse

I have tried many times to find a functional medicine doctor here in UK simmilar to those in US. Sadly, i could not find one. Did find a really good herdalist though but i have not committed fully to taking remedies i bought from him. Reason being, i am terrified of going into afib. My afib attacks are really severe, symptomatic, and long lasting which usually warrents admission to hospital. After i have procedure to treat afib, i will use his remedies with confidence. Be good to know if you manage to find one a functional medicine doctor.

Thirtyone profile image
Thirtyone

Read the information on NICE website and article on BMJ about statins and shingles. I was persuaded by a GP to take statins and actually felt ok on them but 4 weeks after starting them had a bad episode of shingles. When I saw the GP with shingles they had to look up the connection and were amazed that they hadn’t known that before despite it being fully documented. It seems that cholesterol protects the nerve endings which are destroyed by statins.

humanbean profile image
humanbean in reply toThirtyone

I wasn't aware there was a connection between statins and shingles (medical name for shingles = herpes zoster) , so thanks for mentioning it.

I did a search, and there are quite a lot of links available on the subject.

healthline.com/health/stati...

Since being on statins significantly increases the risk of developing shingles, that is bad news for other than the obvious reasons :

Developing shingles increases the risk of developing cardiovascular disease.

ahajournals.org/doi/10.1161...

...

I must admit I'm really keen to get a shingles vaccination but I'm not old enough yet to get it automatically from the NHS. I know two people who had really severe shingles. One nearly went blind, and the other was in persistent pain for nearly two years.

nhs.uk/conditions/vaccinati...

helvella profile image
helvellaAdministrator in reply tohumanbean

Me? :-)

GP told me that mine was the worst blistering from shingles she had ever seen. (Obviously I can't know if that is true or her being sympathetic and trying to make me feel 'special'. :-) ) And I still have postherpetic neuralgia over two years later.

(I've got photos to 'prove' it but am NOT going to post them.)

humanbean profile image
humanbean in reply tohelvella

I'm sorry to hear you've been suffering with shingles for such a long time. Is there any way of treating the pain effectively?

helvella profile image
helvellaAdministrator in reply tohumanbean

:-)

I use capsaicin cream - which I have to buy myself from Germany. Not super-expensive.

helvella - Capsaicin Cream

helvella.blogspot.com/p/hel...

To be absolutely clear, I do not take, and never have taken, statins or any other cholesterol reduction medicine. Hasn't been tested in quite a while, but my cholesterol was, if anything, low, last test.

Persevere99 profile image
Persevere99

Hi mauvemouse

Lifestyle is the number one reason for poor and good health.

So, the first thing to do, if your cholesterol is indeed high, is to try -

- vegan diet which has zero cholesterol

- no trans and saturated fats

- a lot of exercise

- BMI under 21

Etc.

If that doesn’t work, then ask Dr for a non myopathic cholesterol lowering solution such as Repatha.

Keep away from statins, they damage muscles and you say you already have muscle problems.

All the best

Persevere

MauveMouse profile image
MauveMouse in reply toPersevere99

There is a genetic factor to consider in my case, since multiple family members have related issues. I had a fairly good diet when I had my first flare-up. I was emotionally stressed at the time because of family issues. I was told my uric acid was within range and therefore what I was experiencing made no sense. It's only now that I've pieced all the pieces together to figure out the origin of myriad issues. I've been on a meat free diet. It didn't help me at all. Made me feel worse.

DizzyD profile image
DizzyD in reply toPersevere99

Its a misconseption to base diet alone as a cause of high cholestorol, this is not always the case. There are medical reasons as to why a person has high cholestorol namely hypothyroidism. I dont have a thyroid...hence i am hypothyroid. With hypothyroidism bodily system slows down, hence the liver is unable to remove cholestrol as quickly as it normally would so cholestorol rises. Hence, treat the hypothyroidism and cholestorol levels will drop.

Reparta sounds like a better option to statins but im going to focus on sorting thyroid issue out.

Thanks lovely

Staffsgirl profile image
Staffsgirl in reply toDizzyD

Same happened to me…once established on T3 my high cholesterol levels came down, as well as HbA1c (diabetes).

Emaych61 profile image
Emaych61

I may be wrong here, but it was my understanding that it is the total cholesterol count that is important, not just the LDL, but I might be mistaken in that. My LDL slipped in to the amber zone last year (not for the first time either) but because the total cholesterol was OK (and because everything else looked fine) the GP was quite happy.

Interesting about the gout. I never got it as a child but I did get it about six years ago (much to the astonishment of everyone who knew me, including the lady who had been my GP for over twenty years and so knew me well!). I hardly ever drank alcohol (I had to be very careful with alcohol at the time, still do really due to digestive issues - my stomach can’t cope with the tannin content of red wine and white wine was too acidic), my meat consumption was very definitely within the guidance range and my BMI was below 20 (still is - just). I also kept myself reasonably fit. No one could offer any explanation. The best we could come up with was that I’d had three foods in the space of twenty four hours which, it turned out after doing a bit of research, were considered quite high in purines. But I hadn’t had much of any of them (I have to be careful about portion sizes, again due to digestive issues) and no one else who ate the same meals went down with the same problem. It’s still considered a bit of a mystery as to why I got it.

Wickety profile image
Wickety

Hi, I took statins because the Dr said I needed them - I also had under active thyroid results which Dr dismissed. After several years and awful muscular problems I stopped statins and self treated thyroid issues much to the disapproval of the Dr. My cholesterol is now 3.5 without statins for 6 years. Maybe you could draw your own conclusions. Hope it works out well for you.

MauveMouse profile image
MauveMouse in reply toWickety

I'm glad you are better now. I know I'll get there, slowly, but surely. ❤️

DizzyD profile image
DizzyD in reply toWickety

Shame on all doctors who just throw statins at patients, instead of doing a aTFT first. But having said that my docs know i have no thyroid an still throw statins at me because i had a stent fitted. I am not taking them. I like yourself treat my own thyroid issue.

Singwell profile image
Singwell

The NICE guidelines here in the UK say the same - while thyroid is underactive statins are contraindicated.

Polly91 profile image
Polly91

Thanks for the great posts.

My 80 year old mum is on statins & has muscle issues & is also on Levothyroxine.

She had a heart attack 10 years ago when she was 70. Had stent put in & been on statins for a long time. Aged 78 diagnosed with hypothyroidism & currently on 50mcg Levothyroxine. T3 levels are good.

I’m a bit concerned but nervous about challenging the doctors.

Persevere99 profile image
Persevere99

Hi polly91

“My 80 year old mum is on statins & has muscle issues”

Surely, that’s telling you it’s the statins causing the muscle problems?

Ask her to stop them for a few weeks and see if the muscle aches improve?

Persevere

TeaFree profile image
TeaFree

Hello MauveMouse and welcome to the forum.

If I were you I would take a finger prick thyroid test from one of the private outfits like Medichecks for about £80 (look for discount days and codes). Check other sister sites for standard pre-test advice on ceasing meds and biotin supplements prior to a pre-9am test.

You will get your results in days and they will provide both a take on autoimmune conditions affecting your thyroid and all of the vitamins that you will need to normalise (B12, folate, Vit D, Ferritin) before making any progress on treating a latent thyroid condition (always remembering too that the adrenals are 'upstream' of any thyroid issue).

Time was, elevated cholesterol alone would be taken as prima facie medical evidence of hypothyroidism for the reasons mentioned elsewhere here.

Now, because GPs rely too much on TSH and T4 blood tests being 'in range', it is often the spur for a whac-a-mole statin scrip. Because no one can 'get' any GP for making that recommendation. And they do like to send you off with some pills.

One can't entirely blame the medical profession. By their lights the public health case for statins looks compelling, because they are cheap and if the entire population with high cholesterol took them it is figured more people would live longer lives than not. Job done!

The thing to twig is that when a GP looks at you what they see is just Mr/Mrs Average with your general age/sex/pathology profile in the context of their guidelines and the national cost/death clearing solution that NICE calculus mandates. So, not you at all really. It is the very negation of custom medicine.

Consequently, it is prudent to assume that the only thing anyone with a suspected thyroid condition needs to know is that Domestos standard advice is possibly not optimal for you.

And that's before we even get to the topic of mixing and matching drugs. Or using blood testing to figure the state of cells and mitochondria, which when you think about it is like judging the quality of the 'dumplings' from the 'gravy'.

And I speak as someone with a DIO2 snp, which I have had to deduce for myself over many years before getting private evidence of it, which affects T4 conversion to all important T3 (and harmful reverse T3) in cells.

MauveMouse profile image
MauveMouse in reply toTeaFree

Thank you 🙂

GHHR profile image
GHHR

hi

Autoimmune diseases are under diagnosed. I’ve had hypothyroidism for about 20 years and developed rheumatoid arthritis suddenly in 2021 (age 59). After Covid jabs?? Autoimmune diseases are linked definitely. I have lost weight, eat more healthily but still have high cholesterol too - but haven’t tolerated statins at all well. Currently trying Ezetimibe instead.

shazzafloyd profile image
shazzafloyd

I have fibrimalarga last year after blood tests they said I had underactive thyroid and went on levethyrocine pills. They also said I need to take stating. Which I did. After taking then 3 days I had dread ful muscle aches much worse that my fibro caused I stopped taking the stating and haven't took no more since

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