Newly diagnosed with under active thyroid - Thyroid UK

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Newly diagnosed with under active thyroid

hhart32 profile image
10 Replies

Hi all, Newbie here.

Ive recently been diagnosed with under active thyroid after a couple of months of chronic fatigue! I suffer with a few other health issues including nerve damage (mainly spine & leg/feet) sciatica and arthritis. I wasn't sure if my meds were making me more tired than usual but thought it wouldn't be likely as they had not changed for at least 2 years. My gp requested bloods and they came back as abnormal, vit D is severely low, iron is low and thyroid is under active. I've started on vitD supplement 800u x twice a day and levothyroxine 50mg. I'm only on day 3 of these.

I'm trying to research as much as possible about the condition so I know what to expect. If anyone would like to share with me anything that you were told/found out, I would very much appreciate it.

Looking forward to chatting with you :)

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hhart32
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10 Replies
SlowDragon profile image
SlowDragonAdministrator

Welcome

Do you have the actual blood test results including the ranges?

Do you know if you had thyroid antibodies tested too - TPO and/or TG

Have you also had vitamin B12 and folate tested? These are often low when hypothyroid. Plus low B12 can be reason for nerve damage

Vitamin D if severely low needs loading dose, which is MUCH higher than 800iu daily.

Do you know the actual result?

See SeasideSusie detailed vitamin supplements advice to similar situation

healthunlocked.com/thyroidu...

It's extremely common for GP to only prescribe 800iu which is far too little.

Good you have started on 50mcgs Levothyroxine

Always take Levo on empty stomach and then nothing apart from water for at least an hour after. Many take on waking, but it may be more convenient and possibly more effective taken at bedtime

verywell.com/should-i-take-...

Many people find Levothyroxine brands are not interchangeable. Once you find a brand that suits you, best to make sure to only get that one at each prescription.

You should have repeat blood test in 6 weeks to check levels. Likely dose may need to be increased by 25mcg steps, always repeating blood tests each time

All thyroid tests should be done as early as possible in morning and fasting and if taking Levo don't take it in the 24 hours prior to test, delay and take straight after.

hhart32 profile image
hhart32 in reply toSlowDragon

Hi thanks for your reply. I haven't actually got the copy of my results and it's not on my file online, would it be an idea to request this? Maybe someone will be able to understand it all :) I haven't got a clue but this is a new learning curve!

I take the levothyroxine 1st thing in the morning but now you said about bedtime, that would suit me better as it's one less thing to think about (not eating/drinking)

I know the gp said my folate serum is low and I was to increase the amount of veg I eat. I follow slimming world and I'm always eating veg, lots of greenery also. My plate is half full of it all so can't really understand that one

Thanks again :)

SlowDragon profile image
SlowDragonAdministrator in reply tohhart32

With thyroid problems our gut can be affected so it doesn't matter how "well" you eat, you can't absorb the nutrients

Ask for copies of your tests, you are entitled

If not been tested ask for vitamin D, B12, folate and ferritin to be tested

B12 and folate need testing at same time

thyroiduk.org.uk/tuk/about_...

You need to learn as much as possible

Essential to find out if you have high antibodies. This is autoimmune thyroid disease also called Hashimoto's

About 90% of hypothyroidism in UK is due to Hashimoto's.

Hashimoto's very often affects the gut, leading to low stomach acid, malabsorption causing low vitamin levels and leaky gut.

hhart32 profile image
hhart32 in reply toSlowDragon

Thanku slow dragon. Will be speaking to the gp today.

joanna123456 profile image
joanna123456

ive only started my research but it looks like vitD dose can be too low.

did you have antibodies and vitamins tested? i ruined my health by postponing it and now my tsh looks great but i feel worst ever.

hhart32 profile image
hhart32 in reply tojoanna123456

Hi thanks for your reply

I'm really not sure 100% what was requested 're my bloods bit I'm going to ask for a print out of my results. Oh no I'm sorry to hear that, was you aware of anything going on or how did you find out? Tsh is that the thyroid level? Sorry to sound thick :)

joanna123456 profile image
joanna123456 in reply tohhart32

i was ignorant and believed that when doctor said my conditions would improve they really would. i should have done antibodies privately once diagnosed or at least when nothing improved after 2 or 6 months. if i knew 2 yrs ago it was hashimotos id probably start gluten free diet and vitamins supplementation in time.

tsh is just the stimulating hormone and it changes a way too often. to make sure you are aware what youre dealing with you need tsh, ft4, ft4 and vitamins tests.

i hope you can get a copy of your results soon. you may post them here to discuss as many people here have great knowledge while many doctors only care if results are in range or not.

hhart32 profile image
hhart32 in reply tojoanna123456

That's the problem though, we put so much trust into these professionals to guide us on the right path. Thanks for the reply, I'm speaking to my gp today 're results.

hhart32 profile image
hhart32

Hi guys. Managed to get a copy of my blood results. Here they are;

Folate serum-abnormal 5.1 range between >5.38ug

250H vitamin D 32.4 range between 50-75

Serum TSH level 5.8 range between 0.35-5.50mu/lS

Serum free t4 level 9 range between 10.00-19.80pmol/l

Serum sodium 138 range between133.00-146.00

Serum potassium 4 mmol/L range between 3.50-5 30

Serum calcium 2.19 range between 2.08-2.65

Serum albumin 41 range between 35.00-50.00

Serum adjusted calcium conc 2.24 range between 2.20-2.60

Liver function test was fine

Full blood count normal

hhart32 profile image
hhart32

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