how can I improve these levels please? Thyroglobulin and peroxidase antibodies

[Lilylui]

I am sorting the TSH which went to 45.7 now ) with T3 but concerned about the bottom 2 and how to sort, also extreme tiredness worse than before when TSH was 108 !

[Jaydee1507 Administrator]

Your symptoms are probably only now catching up with your blood results. Healing is not in a straight line.

Its difficult and sometimes inpossible to do much about antibodies. They are what they are and obviously much damage has already been done to your thyroid so it can't cope on its own now anyway.

You could try a gluten free diet, also low dose Naltrexone some claim helps but at the end of the day you're now hypo and no amount of trying to treat antibodies is going to help that.

You might want to find a new Endo also if your current one has made you ill.

[Lilylui in reply to Jaydee1507]

Wish I could but sadly we get who we are given

Always been hypo since 1990’s but was controlled with levo now can’t take that at all

[PinkSkittles in reply to Lilylui]

Are you in England? You can request to be referred to any specialist you want.

[Lilylui in reply to PinkSkittles]

no am in Wales, and they can refer to the hospital on the border where I am already.

[SlowDragon Administrator]

TG antibodies will reduce as TSH level drops

TPO antibodies frequently reduce slowly on gluten free/dairy free diet

Ft4 inevitably extremely low if only taking T3

[greygoose]

You don't need to sort them. They are the least of your problems. They are the result of your disease, not the cause of it, and they're not doing you any harm. Forget them.

[Charlie-Farley]

Hi Lilylui

Have a look at this info - I don’t think you have to get what you are given 😉 however doctors will not draw your attention to this.

healthunlocked.com/thyroidu...

[Lilylui in reply to Charlie-Farley]

thank you, sadly where I live in mid wales we don’t have much choice one hospital is over an hour away and the other almost 2 hours away 🤦‍♀️

[arTistapple in reply to Lilylui]

Lilylui. We can go outside our own area. Like that L’Oréal advertisement “You/I am worth it.”

Get the list from ThyroidUK of endocrinologists who have been helpful to others. Many will do internet consultations.

[RedApple Administrator in reply to arTistapple]

arTistapple, Lilylui lives in Mid Wales. NHS Wales isn't the same as NHS England.

 Lilylui You can download the TUK endo list by filling in this from. Worth a look just in case there is someone on it that might be able to work with you. thyroiduk.org/contact-us/ge...

[arTistapple in reply to RedApple]

Not sure exactly what you mean here. I go to the Freeman Hospital in Newcastle upon Tyne. Although I live in Newcastle there are a huge number of patients sent here from Scotland. Similar with other ‘Centres of Excellence’. Whilst, as far as I am aware, there is no centre of excellence for hypothyroidism, Welsh patients as well as Scottish patients do have treatment outside their region when it’s deemed appropriate.

[Lilylui in reply to arTistapple]

Yes I am treated outside my region in England but my endo is a diabetic more than thyroid specialist. He will only look at Tsh.

[RedApple Administrator in reply to arTistapple]

'Not sure exactly what you mean'

I just mean we can't necessarily assume that the same NHS rules apply across all four nations. Lots of people don't realise that there are different NHS bodies in the UK. For example, people on this forum frequently talk about prescription charges/exemptions, without realising that is only relevant for England, as the others don't have any NHS prescription charges at all.

' there are a huge number of patients sent here from Scotland. Similar with other ‘Centres of Excellence’. '

Yes, I 'm aware that patients are often sent across borders, for lots of reasons. But does that mean they have the right to decide to go across borders of their own choice? For private, it won't make any difference. But for NHS consults, it may do?

[RedApple Administrator in reply to arTistapple]

arTistapple This is what was hovering in the back of my mind when I replied earler:

Patient choice

Whilst a patient may request to be seen in a certain hospital, patients registered with a GP in Wales do not have a statutory right to choose at which hospital they receive treatment. However patients on the border who are registered with a GP in England are entitled to exercise Patient Choice.

Private consultations

If you’ve had a private consultation for tests and diagnosis, you can still have treatment on the NHS. You will join the NHS waiting list as a new referral. Paying for a private appointment will not gain you an advantage over others referred direct to the NHS.

Scroll down near the bottom of this page to find the info I've quoted 111.wales.nhs.uk/encyclopae...

[Lilylui in reply to RedApple]

thank’ you there is a Dr ? in Oxford apparently very good and. Top specialist but sadly cannot afford the consultation as on line it’s still £250 or was last yr