Is it normal?

[Jefner]

I know I am probably repeating myself but my anxiety is so bad and frightening now I need some comfort and reassurance please. I am so isolated and very alone with all this

Is it normal to have palpitations about an hour after taking any dose of T3? I have noticed it a few times but just put it down to my severe anxiety, but have noticed a pattern lately.

Could the current severity of my anxiety be due to being WITHOUT my T3 for around 2.5 days thanks to my pharmacy leaving me without? Have been back on it for a week now.

Could I be having a Hashi flare and even though my T3 is generally low in the range, could I have gone over?

Can missing those few days have a real negative impact on how I am feeling? What I am feeling is frightening. I almost feel both hypo and hyper and am literally shaking with the anxiety

Decided to split dose even further a few days ago and now taking my 10mcg in 3 doses from 2

[radd]

Jefner,

Sorry to hear you are feeling so bad.

Ideally T3 meds should make us feel better but there are many members who have suffered difficulties, especially when first introducing meds. Stopping and starting meds will have most likely contributed to your symptoms, and yes if you feel hot and jittery this could be a reaction to T3 or a Hashi attack.

In your shoes I would have done exactly the same in splitting the T3 dose further. When I first introduced T3 I had to dose 3 x a day. I hope you feel better soon.

[Jefner in reply to radd]

I am not getting jittery or hot, it's full blown panicky/fear and flight mode .

" there are many members who have suffered difficulties,"....that poses a question for me then in that maybe I should leave it alone and just up my T4 back to where it was before I started T3 a few years ago, because all the time I have been on it, it's made no difference to me whatsoever and I KNOW everyone has been telling me for a long time now to up it a little more, but when I did that a few years back it took my levels over range and I felt no better, so dropped back to 10 and that's where I have been whilst trying to work on other things.

I managed ok on my 150mcg Levo until my body crashed with menopause and finding out I had Hashi's back ion 2016 (which I must have had much longer than before testing).

Knowing my own body, I still think it just doesn't suit me and maybe my private Endo was right in not introducing it after all. He did state that it would be difficult because of my existing anxiety issues

I don't seem to get many replies anymore, most are sick of hearing the same old story from me. I am just in need like everyone else and trying to fix things one at a time and getting nowhere

[birkie in reply to Jefner]

Hi jefner❤️

I'm so sorry your not feeling very well, I can only tell you both T3 and T4 as never worked for me because of gastric issues, but Although T3 did bring my range up in to a good level, T4 never did due to malabsorbtion, it made me feel terrible, I was not over medicated and I felt hyper on it, I also split it into 3 smaller doses but still I felt hyper, I have no thyroid so I certainly was not producing any thyroid hormones.

I saw a specialist in Liverpool for my hyperparathyroidism and she did thyroid bloods she perhaps thought I was hypersensitive to both T4, T3 medication, I've been without any thyroid medication now for 20 days and all gastric symptoms and others have gone (I wouldn't recommend you do that at all, I'm desperate to find a thyroid drug that doesn't effect my gastric issues)

It's not nice feeling so unwell and even worse when we're not being taken seriously by gps ect.

I hope you manage to sort something out soon ❤️

[Jefner in reply to radd]

I have been back on my T3 for a week and a half now but instead of taking 2 split doses, I started back on 3 because I am so sensitive but things arn't levelling out yet with my anxiety. It's usually bad on waking, part of the day and then dissipates in the evenings where I generally feel well. I am currently dosing at 8am, 3.30pm and 7.30pm. Before it was around 1.30pm and 5pm. Wanted to keep first dose away from my severe waking anxiety and my cortisol.

I am wondering whether that last dose at 7.30pm is still impacting my anxiety as T3 is a stimulant. T3 levels are said to peak around 3 to 4 hours after ingesting and I am still feeling the eeby jeebies,palps late at night. Plus since changing the timings, I feel a little sleepy in the day, my legs feel weak and stiff, I am fatigued (probably due to lack of exercise and also anxiety) and other hypo symptoms which also mimic anxiety symptoms. I think I need to go back to my 2 doses and see what happens?

On Monday I will have been back on my T3 for two weeks so I am going to test but wondering whether changing my timings will impact my results? In theory it shouldn't as I am still having the same dose every day but the night before my test I will need to take my 2nd dose around 12hrs before testing? I never used to do that, it was always a full 24hrs for both Levo and T3 until I read otherwise on here a few months ago.

Because of the recent stress dealing with the pharmacies, it's so difficult to tell whether the additional anxiety I am feeling is down to that or missing those 3 days of no T3, or maybe it's all combined. I just really don't know what to do at this point, it seems everything I try doesn't work. I feel like I want to come off T3 completely and go back to the 150mg Levo that I was on for many years and seemed fine on but then again that was before menopause hit and finding out I had Hashi's (which from seeing no thyroid left on an ultrasound back in 2016) I know I have had the disease a lot longer

[Blissful]

Could I be having a Hashi flare and even though my T3 is generally low in the range, could I have gone over?

As far as I know, a Hashi-flare would produce more T4 versus T3. I've just been reading your very comprehensive bio, somewhere within you make mention of you having very little thyroid remaining so I suppose, theoretically you may have undergone a flare (kind of last gasp) and I suppose again theoretically that may have been brought about due to not having T3 for 2.5days.

I have to go out now and will try to get back to you further later on - you don't seem to be a good converter (despite having good vitamin readings etc) so on that basis I would expect any excess T4 from a flare to be converted to RT3 (inactive T3)

I am sorry your anxiety if off the scale - please try some simple practical solutions e.g. take a few moments to do proper breathing, drink calming herbal teas, take some magnesium, take a short walk in nature (if you can).