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1lolabear profile image
22 Replies

Hi all .

Would someone please help me with my results. I’m have been on Ndt siince last year , I’m

Currently on 3 and a half a day and feeling so much better than I was when on Levo . I am concerned that my t4and t3 are classed as highl . Advice would be greatly appreciated

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1lolabear profile image
1lolabear
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22 Replies
pennyannie profile image
pennyannie

Hello 1lolabear :

Well yes - your results appear to show you very over medicated :

How long did you wait from last dose to blood draw, how long have you been on this dose and do you split your NDT.

1lolabear profile image
1lolabear in reply topennyannie

hi I left it about 16hrs before doing the test , and yes I do split the dose throughout the day .

pennyannie profile image
pennyannie in reply to1lolabear

Do you split this dose and how long have you been on this dose ?

Do you ever run your blood pressure, pulse and body temperature am and pm to check for signs of over medication / stimulation ?

pennyannie profile image
pennyannie in reply topennyannie

Ok so is this split 50/50 or more often please ?

Do you have readings for ferritin, folate, B12 and vitamin D ?

1lolabear profile image
1lolabear in reply topennyannie

Ho penny . All my obvs have been fine . I’ve been on this dose for approximately 7 weeks I self inject b12 every 2 months , I take vitamin d anyway . I haven’t got my ferritin readings .

pennyannie profile image
pennyannie in reply to1lolabear

Well - I 'm out of my depth as I'm not sure what to write - apart from the obvious - and suggest you reduce down your current dosing regime and wait a good 24 hours from last dose to blood draw next time around.

If you are well and happy with no signs of over medication so be it - could there be an absorption issue ?

1lolabear profile image
1lolabear in reply topennyannie

thanks for your advice. I wouldn’t know where to start with an absorption issue . ?

pennyannie profile image
pennyannie in reply to1lolabear

It was just a thought - do you have any other health issues or taking any other medications ?

1lolabear profile image
1lolabear in reply topennyannie

I’m

In Sertraline at the moment, but that’s it .

Should I reduce slowly ?

pennyannie profile image
pennyannie in reply to1lolabear

Yes - I'd suggest reducing and maybe think about loosing the 3rd dose altogether -

as what with having to take NDT on an empty stomach and wait an hour before eating or drinking anything splitting 3 times a day does somewhat reduce one options as to when to eat and drink.

Are these results ' just for you ' as I'm sure your doctor will advise stopping NDT altogether !!

1lolabear profile image
1lolabear in reply topennyannie

I split 3 times a day

greygoose profile image
greygoose

Well, those results look like a Hashi's 'hyper' swing, to me. Do you know if you have Hashi's? Have you had your antibodies tested? That would be one of those more in-depth tests that your GP insisted don't exist! How wrong he was!

1lolabear profile image
1lolabear in reply togreygoose

hi , yes I do have Hashi .

greygoose profile image
greygoose in reply to1lolabear

Well, that's it, then. No mystery. And nothing to do with your dose - you are not over-medicated. Do you know how Hashi's 'works'?

1lolabear profile image
1lolabear in reply togreygoose

no , not really. ? Will. Still have to reduce my dosage until I get familiar with Hashi ?

greygoose profile image
greygoose in reply to1lolabear

Hashi's is an autoimmune disease, where the immune system systematically destroys the thyroid by constant attacks, mistaking it for the enemy. And during the attack, the dying cells leak their stock of thyroid hormone into the blood so that levels of FT4 and/or FT3 suddenly rise for no apparent reason. This is when doctors talk about 'abusing thyroid hormone' and want to slash the dose. But, these 'hyper' levels are only temporary, so levels will eventually reduce by themselves. And then you will be hypo again, and need your full dose of levo/T3. So, if you start to feel hyper, the best things to do is to reduce, or stop, the levo yourself, without involving the doctor, until you feel hypo again.

1lolabear profile image
1lolabear in reply togreygoose

Thank you very much . I’m currently self medicating on ndt , I haven’t taken Levo since last year

greygoose profile image
greygoose in reply to1lolabear

OK, I should have said thyroid hormone replacement rather than levo. :)

Cornwaller profile image
Cornwaller

Given that you are taking a higher dose than most and your t4 and t3 levels are over range it seems likely that you are over medicated. However, you are feeling well - which is the objective. So perhaps it would be wise to slowly reduce the dose and see if you can remain well on a lower dose. The objective being to remain well on a lower dose. A modest dose reduction every two weeks might be reasonable?

sa67 profile image
sa67

Do you take any supplements containing Biotin? The one time I forgot to stop my B complex before testing, my results came out very similar to this (T4 30, T3 8.7, TSH completely suppressed) -- I stopped the Bs, tested again a week later and they were down within range.

1lolabear profile image
1lolabear in reply tosa67

actually I do take B supplements. I will stop it before my next test . Did you also reduce your ndt when your bloods were elevated?

sa67 profile image
sa67 in reply to1lolabear

I realised within a day of the results that I had tested while on biotin and had heard that can falsely inflate the results, so I didn't reduce, I just ordered a test and repeated it, a week later (5 or so days after stopping the b complex). My t4 was then down to 21.5 and t3 down to 6.4 (TSH still <0.01). I can only speak from my experience, but I think if my numbers were truly as high as the results you've posted, I'd be feeling very unwell indeed. If you have the opportunity to retest after a few days/week break from the biotin, I would do that before adjusting, given that you feel well.

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