Results

[Kowbie]

Hello everyone hope your all doing ok I had asked my dr if he would do thyroid antibodies test and he did them so I’m going to put them on and wait for your opinion, thankyou for all the help so far I’ve been given

[greygoose]

Your antibodies are negative. But, that doesn't mean you don't have Hashi's, I'm afraid - it's a case of not being able to prove a negative!

There are two Hashi's antibodies - TPO and Tg - the NHS will only test TPO, but if the TgAB are high, that also would mean you have Hashi's, even if the TPOab are negative.

Also, antibodies fluctuate all the time, so could be negative on one test, then positive on the next, meaning you had Hashi's. You would need to test at least three times to see what they're going to do.

But, then again, 20% of Hashi's people never have over-range antibodies. They are diagnosed by ultrasound of the thyroid gland when the dammage done by the immune system attacks is bad enough to be visible.

[Kowbie in reply to greygoose]

Thankyou for your reply , but I don’t know if dr will do them again , but thanks

[greygoose in reply to Kowbie]

Probably not. But, if your levels start changing inexplicably, it would be a good idea to insist he does, because Hashi's could be the cause.

[Kowbie in reply to greygoose]

How long inbetween do I leave it before I get another one done please thankyou

[greygoose in reply to Kowbie]

If you've changed your dose, you need to leave six to eight weeks. If not, get them done as soon as you can.

[SlowDragon Administrator]

Ft4 is 76% through range

But Ft3 only 13% through range

Helpful calculator for working out percentage through range

chorobytarczycy.eu/kalkulator

Was this test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

If yes, results show terrible conversion of Ft4 (levothyroxine) into active hormone (Ft3)

Looking at previous posts from 2 weeks ago your vitamins are optimal

Do you have any obvious gut issues

Have you had coeliac blood test done

Have you trialed strictly gluten free diet

Likely to need addition of T3 prescribed alongside levothyroxine

Email Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3 or NDT

...NHS and Private

[e-mail]

When adequately treated, TSH will often be well below one.

Most important results are ALWAYS Ft3 followed by Ft4. When adequately treated Ft4 is usually in top third of range and Ft3 at least 50-60% through range (regardless of how low TSH is)

Extremely important to have optimal vitamin levels too as this helps reduce symptoms and improve how levothyroxine works

Recommend getting BOTH TPO and TG thyroid antibodies tested privately

If both are negative…look at getting ultrasound scan of thyroid

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Paul Robson on atrophied thyroid - especially if no TPO antibodies

paulrobinsonthyroid.com/cou...

[Kowbie in reply to SlowDragon]

My appointment was for 9 o’clock, but they were late seeing me 9 / 20 nothing to eat or drink only water I was a bit short of 24 hours, I have something wrong with stomach as have to go to hospital in a couple of weeks to have another endoscopy done , thankyou for your help

[SlowDragon Administrator in reply to Kowbie]

What gut symptoms?

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but a further 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal

Before considering trial on gluten free diet get coeliac blood test done FIRST just to rule it out

lloydspharmacy.com/products...

If you test positive for coeliac, will need to remain on gluten rich diet until endoscopy (officially 6 weeks wait)

If result is negative can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift.

If no obvious improvement, reintroduce gluten see if symptoms get worse.

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

ncbi.nlm.nih.gov/pubmed/300...

The obtained results suggest that the gluten-free diet may bring clinical benefits to women with autoimmune thyroid disease

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

hypothyroidmom.com/how-to-l...

Eliminate Gluten. Even if you don’t have Hashimoto’s. Even if you have “no adverse reactions”. Eliminate gluten. There are no universal rules except this one.

[Kowbie in reply to SlowDragon]

Thankyou, I’ve done a shop and have bought all things gluten free to give it a go will it help with low t3 will it push that up any , thanks again

[SlowDragon Administrator in reply to Kowbie]

What’s reason for endoscopy?

You probably/might need to remain on gluten rich diet until had endoscopy

[Kowbie in reply to SlowDragon]

Well I had pains in my stomach and wasn’t eating like I used to when I had the first one they took several biopsies and now there saying they want to do another, I had been on lansaprozole at least 10 years and I thought they weren’t doing anything so I stopped taking them but they gave me some and said to take them ,I didn’t really know what to do I thought if they hadn’t done anything for the 10 years I couldn’t see what they would do now , but now they want to do another endoscopy so I don’t know what they’ll find now ,

[SlowDragon Administrator in reply to Kowbie]

Most hypothyroid patients have LOW stomach acid

PPI like Lansoprazole are for high stomach acid

Your vitamin levels are good, do you have to supplement to maintain at these levels

What vitamin supplements are you currently taking

[Kowbie in reply to SlowDragon]

Folate acid, magnesium, selenium, vit d, I think that’s it I suppose I could ask the dr if I am I have hashimoto,s

[Kowbie in reply to SlowDragon]

Forgot to say you didn’t say anything about t3

[SlowDragon Administrator in reply to Kowbie]

Likely to need T3 prescribed, but get endoscopy done first

Email Thyroid UK for list of recommend thyroid specialist endocrinologists who will prescribe T3

...NHS and Private

[e-mail]

[Kowbie in reply to SlowDragon]

Thankyou for all your help appreciate it

[Kowbie in reply to SlowDragon]

I don’t know the difference but I might have told you wrong it says on the forms that have just come gastroscopy at the endoscopy unit ,I don’t know if there is a difference

[SlowDragon Administrator in reply to Kowbie]

gastroscopy…..That just means camera going into throat/stomach (rather than the other end!)

Keep eating high levels of gluten until gastroscopy

[Kowbie in reply to SlowDragon]

Ok thanks glad I hadn’t given wrong info ,but will do as you suggest thanks

[Kowbie in reply to SlowDragon]

I haven’t had a coeliac blood test , I don’t think my dr would do one , as I asked if he would do a blood test for IGF1, and he wouldn’t, it was Tara and Linda from Norfolk thyroid that suggested I asked to get that tested

[BrynGlas in reply to Kowbie]

Hi, as far as I am aware, there is no reason why your GP should refuse to test for coeliac. I have a few auto immune disease in my close family, type 1 diabetes, a lot of that and a 1st cousin who was diagnosed coeliac years ago.

I had the test for coeliac but it came back negative. But I eat gluten free anyway and I think I am doing better that way. You might be surprised at how much better you feel if you give it a try.

[SlowDragon Administrator in reply to BrynGlas]

BrynGlas

I think you meant you DON’T eat gluten now 😀

[Kowbie in reply to SlowDragon]

No that’s right, but was going to change and give it a go but will do as you said thanks

[BrynGlas in reply to SlowDragon]

ROFLMAO you know me so well!!!!

[Kowbie in reply to BrynGlas]

Thanks for your reply i have done a shop now and was going to give it a go , as for asking the dr I’m a bit worried at asking him to do a blood test as I asked him last week if he would do one and he said he wouldn’t it was for IGF1 so I don’t know what to do whether to write a letter to him, saying I’m. Only trying to make myself feel better as at the moment I’m just sleeping it away ,and may as well be dead thankyou appreciate you answering me

[SlowDragon Administrator in reply to Kowbie]

Keep eating gluten everyday until endoscopy

[Kowbie in reply to SlowDragon]

Will do thanks