Hi all,
Following my previous post regarding my struggle to be diagnosed and treated as hypothyroid, I have paid for testing as my GP has been advised by endocrinologist to wait until June before retesting me. My results are posted over 3 posts. My T4 has actually improved. Any advice will be appreciated.
Previous post
healthunlocked.com/thyroidu...
What were folate, B12 and ferritin results
With TSH over 5, high thyroid antibodies and symptoms you should be started on levothyroxine
Hi,
Do you think I should take vitamin supplements? I’m surprised by my low normal Vit D as I already take 1000iu daily.
Optimal vitamin D is 80-125nmol so you’re not far off
But when hypothyroid we frequently need higher dose vitamin D than typical
GP will often only prescribe to bring vitamin D levels to 50nmol.
Some areas will prescribe to bring levels to 75nmol or even 80nmol
leedsformulary.nhs.uk/docs/...
GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)
mm.wirral.nhs.uk/document_u...
But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better
pubmed.ncbi.nlm.nih.gov/218...
vitamindsociety.org/pdf/Vit...
Once you Improve level, very likely you will need on going maintenance dose to keep it there.
Test twice yearly when supplementing
Can test via NHS private testing service
Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.
There’s a version made that also contains vitamin K2 Mk7.
One spray = 1000iu
amazon.co.uk/BetterYou-Dlux...
It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average
Vitamin D and thyroid disease
grassrootshealth.net/blog/t...
Vitamin D may prevent Autoimmune disease
newscientist.com/article/23...
Web links about taking important cofactors - magnesium and Vit K2-MK7
Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine
betterbones.com/bone-nutrit...
medicalnewstoday.com/articl...
livescience.com/61866-magne...
sciencedaily.com/releases/2...
Interesting article by Dr Malcolm Kendrick on magnesium
drmalcolmkendrick.org/categ...
Vitamin K2 mk7
B12 is absolutely terrible
Active B12 below 70 is considered suspect yours is right at bottom of range
GP won’t understand an Active B12 test (it’s not available on NHS)
Request GP test B12, folate and ferritin NOW
And coeliac blood test too
You are clearly hypothyroid. You need to take more vitamin D than 1000iu, more like 4000iu. Your B12 is also too low. Push for your GP to prescribe some levo for you. I cant see the ferritin.
Sorry it missed my ferritin. See below
SlowDragon Hectorsmum2
FERRITIN
43.3 (30 - 264)
Ferritin is too low
are you vegetarian or vegan
Request GP do FULL iron panel test for anaemia including ferritin
Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.
It’s possible to have low ferritin but high iron
Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test
Medichecks iron panel test
medichecks.com/products/iro...
Look at increasing iron rich foods in diet
Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption
List of iron rich foods
Links about iron and ferritin
irondisorders.org/too-littl...
davidg170.sg-host.com/wp-co...
Great in-depth article on low ferritin
oatext.com/iron-deficiency-...
drhedberg.com/ferritin-hypo...
This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.
Email or post these results to GP
Request coeliac blood test as per NICE guidelines
nice.org.uk/guidance/ng20/c...
1.1 Recognition of coeliac disease
1.1.1 Offer serological testing for coeliac disease to:
people with any of the following:
persistent unexplained abdominal or gastrointestinal symptoms
faltering growth
prolonged fatigue
unexpected weight loss
severe or persistent mouth ulcers
unexplained iron, vitamin B12 or folate deficiency
type 1 diabetes, at diagnosis
autoimmune thyroid disease, at diagnosis
irritable bowel syndrome (in adults)
first‑degree relatives of people with coeliac disease.
It’s like banging your head against a wall Hidden I’ve been told it’s my age, depression, nothing to worry about. They were advised to give me another test in June as it looks like I may become hypothyroid 😡
You are hypothyroid
Being hypothyroid results in low stomach acid and poor nutrient absorption
Low vitamin are direct result
High thyroid antibodies confirms cause is autoimmune thyroid disease
Short synacthen test results 
Access To Test Results
Dad's blood test results
Test results - help please
Help please with test results
