Blood Sample Hasn't Arrived - annoyed

[FancyPants54]

I'm feeling sorry for myself. I sent off my latest blood sample to Monitor my Health on Monday. It was tracked 24hr service. Last tracking update was Tuesday afternoon. Nothing since and MMH haven't received it.

I'm advised they can still use the sample if they get it within 10 days of the draw date. But this means that until Wednesday they won't even talk to me about what I can do next. And that means I can't alter anything and I will need to stop my B Complex again!

I find patience is non-existent when I feel ill. And the Royal Mail want to reduce the service further! Can you imagine?!

[Yeswithasmile]

oh I am sorry! How frustrating. When you feel awful and you’re eager to see how things are by the blood test it’s horrible when you are let down or have to wait longer. I really do feel for you.

I try and hold on to the thinking that it was for a reason. What that is who knows but I try and think that maybe somethings trying to tell me to hold things for a bit longer as I know things still change for me between 8-12 weeks but I can often be too eager. Telling myself this isn’t much of a help but does tend to take my tittering on the brink of a meltdown anger out of it!!

I hope you can distract yourself this weekend and that it arrives there soon and your result is quick too.

Feeling your pain. x.

[FancyPants54 in reply to Yeswithasmile]

Next week will be 11 weeks. The longest I've ever held it, and I've been going steadily downhill for weeks now. I just need to know which way to jump. I had to reduce my NDT so I'm waiting to see if adding some T4 to it is the way to go or adding some T3. It's normal to add T3, but I don't feel good if my FT4 is too low.

At least MMH has emailed this afternoon to say they have sent me a new kit today so that I am ready and can test on Wednesday if my sample hasn't turned up by then.

[FallingInReverse in reply to FancyPants54]

Unreal.

[Yeswithasmile in reply to FancyPants54]

I’m like you. I need some t4.

I’ve said it before but all we seem to do is endure! Why can’t it just be a little bit straightforward?! You’ve obviously been doing it a while and I’m sorry. It’s just weeks/months/years of feeling like utter crap 🤷‍♀️ whilst trying to stay focused and have the self belief you can get there. For me, I alter my dose and there’s a short window sometimes just a day where I think ‘eureka!!’ And then it all goes to pot again. If only I could harness that feeling.

At least they have sent you another so it might arrive Monday. You could test Tuesday and send it back, by Wednesday night you might be a bit more informed about what’s going on. I will keep everything crossed that the little bag gets pushed through your door on Monday 🤞🏻🤞🏻🤞🏻

[FancyPants54 in reply to Yeswithasmile]

I have to hold on until Wednesday because if they get my original before Wednesday they will use it. By Wednesday I will know it's a dud and can send in a new one.

Just like you I often feel well on a change. Reducing my NDT from 2+3/4 grains 11 weeks ago to 2&1/2 grains gave me a full week of feeling really good and then another week of OK, but it's been a steady slide since.

I've been at this for years. At least 8 of them. I've never felt well from the day I started Levo. I wish I hadn't started. But I don't suppose that would have helped either. It's a life ruining condition that no one else can see or understand. My so-called friends have been quite heartless over the years. I'm on my own with my lovely husband and that's the way it will stay. No more will I put myself out to help them at the expense of my energy.

[Yeswithasmile in reply to FancyPants54]

Yep. I’m with you. People do not understand and I’m sorry you feel on your own. At least you have your husband though. Someone to support you.

Knowing me id probably still do the other one as soon as it arrives. Having to have patience and endure a change in dose, leaves no patience for anything else! I’ve even considered driving the sample to the hospital as I hate relying on the post or couriers. It’s a long old way though so it would be extreme!

[FancyPants54 in reply to Yeswithasmile]

I fall asleep at the wheel now for those short uncontrollable nano seconds if I go anywhere more than 1/2hr. I used to love driving. Something else this horrible illness has stolen from me.

[Bertiepuss in reply to FancyPants54]

Oh, I thought it was just me that does this...I only last about 10-15 minutes before the micro sleeps begin at the wheel. I also used to love driving, now it scares me and the feeling is horrible, it's like I'm completely drugged. At night, with the bright oncoming headlights, I find the absolute worst. I have to rely on others taking me almost everywhere that isn't super local. Just offering empathy with the struggles. Hope you get sorted 🙏

[FancyPants54 in reply to Bertiepuss]

Yes, super drugged is the way it feels as I fight to keep my eyelids up but my eyes are loosing focus. It's horrible. I'm better at night because I'm perkier in the evening. It's afternoon that's worst for me.

[Yeswithasmile in reply to FancyPants54]

That’s terrible 😞. I mean I get those auto pilot moments but actually I don’t drive very far these days. I have to agree though this illness at times can take away so much. But my arms still work well enough to hug and I am sending you one 🤗.

[FallingInReverse]

Hugs to you! If it’s not one thing it’s another.

Wishing you a speedy mail miracle today!

[FancyPants54 in reply to FallingInReverse]

Thanks. It's just upsetting. So unnecessary too.

[Polly91]

sorry to hear this FP

I too have no patience & want to just get on with making a change so I can start feeling better. Hang in there.

Just a thought since you said you feel perkier in the evening. Have you considered adrenal support? It could be that your adrenals have been compensating for your low thyroid function. It happens a lot. When it happens people often feel more energised in the evening. Unfortunately it’s not good energy as its adrenal derived (adrenaline & cortisol) so comes at some cost.

Just a thought. Hope MMH get results to you quickly. Post office 😩don’t get me started!

Take care

[FancyPants54 in reply to Polly91]

The replacement kit arrived this morning, which is good.

Oh I have the patience of a saint. I've been struggling with this for around 8 years now. But What I have found hard this week is the fact that I can't do what I expected I would be able to do because of incompetence that is out of my hands and that's really knocked me. I feel quite depressed.

I would not be surprised if adrenals were involved, but my morning cortisol blood test is good. I can't currently do a spit test because I am not generating enough saliva. The last test I tried last year came back void. And things haven't improved in that area.

[Mugs19 in reply to FancyPants54]

Sounds like Sjögren ‘s. But you probably already know that.

[FancyPants54 in reply to Mugs19]

Why do you say that? I know nothing about that condition.

[Mugs19 in reply to FancyPants54]

It has symptoms strongly resembling hypothyroidism. It crops up quite often on this site so probably someone who knows about it more than me will contact you. I was diagnosed with it by a rheumatologist because my thyroid tests were within range. A lack of saliva is one of the main symptoms as is dry eyes , skin and hair. Tiredness is another.Venus Williams is a sufferer and her career took a downward turn after she started showing symptoms. Sufferrrs are encouraged to eat a special diet which I think is meatless. The symptoms are referred to as Sikka symptoms.

[FancyPants54 in reply to Mugs19]

I just looked it up. I don't have a dry mouth, just can't fill a spit tube. My saliva works fine for food and speech. No dry eyes. On the symptoms list I have join/muscle pain, dry skin and tiredness. Symptoms of just about anything you can think of, so I don't think it's that at all.