Thyroxine dose: Hi Just wonder if I am on a... - Thyroid UK

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Thyroxine dose

telmanchicks profile image
6 Replies

Hi

Just wonder if I am on a correct dose of Thyroxine as I am taking 100mcg thyroxine tablet and 10mg of T3 each morning. But my recent blood result show T4 is 15.3 pmol/L and TSH LEVEL IS 0.22 mu/L. My GP said the level are high and should reduce the dose to 75mcg of thyroxine.

I am not sure.

Appreciate any suggestions,

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telmanchicks
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6 Replies
Forestgarden profile image
Forestgarden

Was your free t3 measured too? Your free t4 isn't too high, well within range, assuming top of range is approx 22. More importantly, how do you feel?

telmanchicks profile image
telmanchicks in reply to Forestgarden

Thanks for your reply. T3 not tested. But feel loosing weight and eating more. My tests tend to fluctuate. It hard to be on one dose for long.

rosie61 profile image
rosie61 in reply to Forestgarden

When I had my recent blood test I was FT4 16.2 this was flagged as abnormal as was my tsh 0.01. Tsh has been this for several years but my FT4 was up 2 from last years test

They have slowly been reducing the top limit for FT4, it used to be 22 it is now down to 16.

I was worried that my doctor was going to reduce my medication. She said it was slightly high but as long as I feel okay on my current dose of 125mcg, to have another test in 6 months and see where it is then...........phew!

I did tell her this is the best I have felt in years.

SlowDragon profile image
SlowDragonAdministrator

Never change dose based just on TSH, especially when taking T3 too

Obviously you need TSH, Ft4 and Ft3 tested together

Extremely common when on levothyroxine plus T3, when adequately treated to have very low or suppressed TSH

Do you have autoimmune thyroid disease aka Hashimoto’s

When were vitamin levels last tested

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

What vitamin supplements are you taking

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

telmanchicks profile image
telmanchicks in reply to SlowDragon

Appreciate your reply. Will try to get the rest test done. As t3 was not tested.

TiggerMe profile image
TiggerMe

If you feel good on this dose refuse to reduce as you will have a real battle to get it increased... never agree to a reduction thinking they know what is best for you.

Your fT4 is relatively low in range 33% based on 12-22 range, your TSH is lowered by taking T3, have you got a fT3 result?

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