TSH of 3 ,75 thyroxine : I’d like some advice , I... - Thyroid UK

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TSH of 3 ,75 thyroxine

Val-55 profile image
7 Replies

I’d like some advice , I know I will get the correct help from here I have followed this site and posted on and off for several years . Under active thyroid is in a lot of my family .

My sister is 55 and has had thyroid issues since she was 23 and has taken thyroxine since then usually about 100 ,she is slightly built .She has been diagnosed with osteoporosis,,,she has always been vegetarian and has never eaten a lot of dairy . Her Dr will not give her any more than 75 throxine now ,she is so tired and grey looking …surely this cannot be a good thing to do whatever the situation with her bones .

She is trying to eat more dairy now but doesn’t want to take osteo treatment due to side effects !

What would be best option

Thankyou

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Val-55 profile image
Val-55
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7 Replies
SlowDragon profile image
SlowDragonAdministrator

First step is to get FULL Thyroid and vitamin testing

If TSH is over 2 she’s highly likely under medicated

Presumably she has autoimmune thyroid disease

As vegetarian it’s especially important to test vitamin levels and all thyroid patients need to maintain OPTIMAL vitamin levels

Do you know what vitamin supplements she takes

Get her to join the forum herself

For full Thyroid evaluation she needs TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Val-55 profile image
Val-55 in reply toSlowDragon

Thankyou very much for your prompt reply . Yes I will speak to her and suggest she joins !

She has had blue horizon tests ,, has not had any raised antibodies for a long time !

She is careful to take max vits I know . Thankyou

s

SlowDragon profile image
SlowDragonAdministrator in reply toVal-55

If she originally had high thyroid antibodies, even if now in range, her hypothyroidism is still autoimmune

motherelle profile image
motherelle

what are her thyroid bloods showing including her vitamin levels ? Also antibody levels .

There are veggi foods that contain calcium ,Almonds for one . What about her vitamin D level? Very important for bone health .Being a veggie or vegan means you really do have to take care of your diet . More freshly prepared meals not prepacks . Finding out which foods contain the vitamins she may lack .It does take effort but you soon get into the groove .

Having her levels optimal not just in range will help with absorption. She has to take control of her own health now ! If she is being under prescribed then she needs to speak with an Endocrinologist.

Below 2 and closer to 1 for TSH .

Val-55 profile image
Val-55 in reply tomotherelle

Thankyou for your reply ,,, yes my sister has always been very health conscious ,, cooks healthy organic food and good vit knowledge .

Prob caused by menopause !!! Yes she must speak to an endo if she can Dr no willing to give her more than 75 thyroxine ,,,😳

Mothebear profile image
Mothebear

hi Val

Best advice here is get your sister to sign up, however I have recently been diagnosed as having osteoporosis and was given the standard prescription- on reading the side effects I decided a stooped back was better than no jaw!!

However I was also given a calcium prescription which turned out to be Rennies… yep the indigestion Rennies! Do check all your other vitamin levels and be sure to take them in a manner that facilitates and doesn’t inhibit their absorption.

Best wishes

Val-55 profile image
Val-55

Rennie ??oh no ? My sister has been using a vibration plate to stand on for the last 2 years and hopefully it seems not to have got any worse . I’ve got osteopenia and thyroid disease too so trying to up the vit D and dairy ,,,,the pleasures of getting older ,,,,, it’s prob all caused by the menopause ,😳

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