I’ve just finished a full 6 weeks on 75mcg levo (after reducing dose from 87.5mcg as felt this was too much for me) on the higher dose I was very tired, had an upset tummy, hand tremors and heart racing.
Is joint pain, muscle weakness and twitching, involuntary movements all side effects of levo/hypothyroid? Is it normal for them to come and go?
I struggled with some of this before levo but the tremors, involuntary movements and twitches are new and I’ve noticed my muscles/joints tire more quickly on levo and ache more.
My limbs just feel really unsteady but it comes and goes but makes work really challenging among other things.
I’m waiting on blood results and having a bunch of other investigations too atm.
Just feeling fed up I guess cos the only thing that levo has helped is less dry skin and pooping regularly…🤷♀️
is it even possible that 75mcg may be too much for me? For ref I’m 5ft5 and 53kg
last results were whilst I was on 75mcg for barely 4 weeks (test was sprung on me but I luckily followed the protocol on here as I suspected they’d do thyroid!)
Tsh 2.63 (0.27-4.2)
ft4 19.9 (11-21.2)
And on 50mcg after 5 weeks
Tsh 3.8 (0.27-4.2)
FT3 4.7 (3.1-6.8)
Ft4 17.6 (12-22)
It seems like I convert fine so just feeling in a big giant mess with all this and kinda don’t want to keep taking levo…
I think I seem to do okay with mixing brands so far and seem to do okay with teva brand too.
I haven’t had vitamins tested recently until this morning so just waiting on results for those.
I will definitely add magnesium into the mix though and see if this helps my twitches but again this is something that started after taking levo and gets more pronounced with higher doses.
I am currently supplementing vit b complex, vit d spray, folate and iron.
Yes i have had low GFR since starting levo, bizarrely it was totally fine before I started levo in feb this year but was very up and down back in 2020 too.
I suppose I’m just worried because I don’t seem able to tolerate more than 75mcg of levo and I’m wondering if even that is a bit too high for me considering my symptoms…
Hard for me to reply, as I don't convert to t3, but I have neuralgic symptoms, numbness , tingling, cold. Twitching, fatigue, nausia, joints hurt and swell(not as much since gluten and dairy free), heart all over the place, Felt 10 times better when I stopped taking levo, but tsh went to 16. (Not 1.6 no)
Just trying to scrabble enough money to get bloody done and go back to endo.
Definitely sounds as though our symptoms are similar, which is so odd cos I seem to convert okay.
My Tsh has never been higher than 7 so I’m just starting to wonder if maybe my body has some how righted itself!?
I totally understand, I’ve booked a consult with private endo to try and get an idea of what’s going on. It’s so crazy we have to pay to get proper thyroid care isn’t it!? Maddening!!
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