Low b12 : I’ve been diagnosed with low b12 and... - Thyroid UK

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Low b12

Roma2975 profile image
5 Replies

I’ve been diagnosed with low b12 and about to get injections. What I’m wondering does this interfere with thyroid blood tests ? Im sure I read that you have to stop taking supplements too before you get tested? Is this correct, if so how long?

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Roma2975
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SlowDragon profile image
SlowDragonAdministrator

No it’s fine

Improving low B12 will assist thyroid

It’s only vitamin B complex or any supplements that contain biotin that you need to stop 5-7 days before any blood tests

Biotin can falsely affect test results

SlowDragon profile image
SlowDragonAdministrator

Previous post showing all four vitamins were far too low or deficient 5 months ago

B12 272(200-883)

Serum folate 3.6(2.1-20)

Ferritin 36(15-200)

Vit d 56nmol/l

How many B12 injections are you getting and will you be getting them every 2-3 months going forward

if not getting ongoing B12 injections you will need to self supplement B12 daily

Folate also far too low. Looking to maintain at 15-20

As you have B12 injections it’s recommended also to supplement a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Start separate daily vitamin B complex about a week after first B12 injection

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and add a separate vitamin B Complex after a week

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

If Vegetarian or vegan likely to need ongoing separate B12 few times a week

If not getting injections

Highly effective B12 drops

natureprovides.com/products...

Or

B12 sublingual lozenges

uk.iherb.com/pr/jarrow-form...

cytoplan.co.uk/shop-by-prod...

B12 range in U.K. is too wide

Interesting that in this research B12 below 400 is considered inadequate

healthunlocked.com/thyroidu...

Low folate

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

healthline.com/nutrition/fo...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Other options

healthunlocked.com/thyroidu....

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAdministrator

Vit d 56nmol/l

How much vitamin D are you taking daily

If not retested yet ….suggest you test now

Aiming for vitamin D at 80-125nmol

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7.

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

Ferritin 36

This was virtually deficient

Did you get full iron panel test for anaemia via GP

Ferritin needs to be at least over 70 minimum for good conversion of Ft4 (levothyroxine) to Ft3 (active hormone )

Very low vitamin levels suggests levothyroxine dose too low/poor gut absorption

Likely low Ft3 as a result

Strongly recommend getting FULL thyroid and vitamin testing 6-8 weeks after adding daily vitamin B complex

Retest folate, B12 and ferritin at least annually

all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

shaws profile image
shawsAdministrator

The following is from the link below:-

The association between pernicious anemia and autoimmune thyroiditis was frequent in our study. It was observed in a series of 78 patients with pernicious anemia. Markson et al. have noted positive anti-thyroid antibodies in 33% of the cases [5] and Doniach et al.19 Dec 2017.

and

Is pernicious anemia linked to hypothyroidism?

Pernicious anemia occurs 20 times more frequently in patients with hypothyroidism than generally. Macrocytosis is found in up to 55% patients with hypothyroidism and may result from the insufficiency of the thyroid hormones themselves without nutritive deficit.

Roma2975 profile image
Roma2975

thanks you . I’m getting further testing to rule out PA.

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