Just got off the phone from a very unsatisfactory phone appointment -following blood tests - with yet a different GP at the practice who's never even met me. Sounded very young. Brightly announced that as my TSH was suppressed (It's 0.18 and has been at a similar level for about 5 years, with T3 & T4 about mid range), she was going to lower my levo from 75mcg to 50. 50!!!
I've been on 75 for many years now with no symptoms apart from inabiliity to lose weight. Soon after I was diagnosed I was once put back from 75 to 50, with resulting return of symptoms, and then once - about 10 years ago - alternating with 50 and 75, which also had a negative effect. It's all in my notes (which I've only fairly recently accessed myself online - very illuminating!). Don't suppose she bothered to read them though. Or even ask how I was feeling.
I said in no uncertain terms that I was not prepared to reduce - quoting evidence gleaned from this site - and she acually backed down quite easily. I added that 75 to 50 is quite a large drop percentage wise anyway, to which she said 25mcg is the smallest dose. Well, the NHS website says levothyroxine tablets go from 12.5 - and the difference can be done in other ways anyway, like alternating days as I formerly did.
If I hadn't been armed with information from this forum, which could well have been the case, the dose would have been lowered - just like that. It makes me so angry.