Damned if don't damned if you do. That's an ove... - Thyroid UK

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Damned if don't damned if you do. That's an overactive thyroid. Simple.

oderaro profile image
5 Replies

Most of the consultants simply push for removal. Once you do, you are on ,"Artificial" thyroxine for the rest of you existence. If you do not, you are on thyroxine suppressants for life! There is no cure!Both solutions require you live on "harmful" substances.

So, what do you do?

Both solutions keep you sedated, in many cases, the solutions are worse than the initial problem....

In my instance, I am hypo , on cabimazole. Most of the effective relief methods I have tried provide variable relief. DIET. That's the only relief that has worked for me over the years.. I was a moderately successful it professional before getting sick. Today with occasional "brain fog ", and all the other bits members of this forum know so well, I am a very successful survivor. I am no longer ME! I don't look like me, and my body doesn't feel like mine. In spite of that, I am so so grateful. I have discovered who my real friends and family truly are. I have reprioritized life. My needs and wants are now equal. I no longer stress myself on material "stuff". Waking up, a pain free day , and actual sleep! Those are my life goals. Actually being alive feels so good. My mum told me as a child, son, the 1st thing you do when you wake up , count your blessings... She is absolutely correct. I have been on the forum for quite some time. Read many stories here!

Some good, some not so good.

Don't think removing your thyroid gland is the end! There is no end.

Do your best to make sure everyday you do your best to be happy. I have lost friends who had less problems. I am still here counting my blessings...

The constant vegetables, can get boring sometimes.. but I can perform wondering s with just vegetables. I have combinations that taste great. I have learnt to enjoy water. I get all the vitamins and supplements from the vegetables . Just eat bucket loads of it...

You can and should have a good life in spite of of hypothyroidism, a.k.a graves disease... I know. Life isn't so bad... We say, the one who thinks his father's farm is the biggest hasn't seen his neighbours farm.

It's all about your state of mind.

I don't go looking for " happiness".

It's Friday today. I just finished booking my blood test. Had my dosage increased last time. Weight was going down again. Now managed to bring it back up. Not quite at the "Goal". A few more kgs. 5 actually..

Today is a success already. I am awake. I am typing this up. No brain fog, almost finished my third book for the month. If you are not the reading type , change. READ. The more technical, the better. The brain is a "muscle". The only way to stick it in the gym is a good technical book + 1 novel a month. This works for me... Cook your own meals! If you can..

You can have a jolly good life in spite of this illness. But be realistic. Try explaining brain fog to most people! Walk. I walk to all destinations that are less than3 miles. 1 walk minimum 20 minutes day. Cashews for selenium. You need a mortgage for them these days! No fancy health "solutions" just creatively well cooked cocktails of healthy vegetables in proper ,"man sized portions". Depression is your worst enemy. Reading beats it all the time! Avoid toxic people. Surround yourself with positive people or be by yourself.

I am 60 next year... This started in my 45th year. I think I know what works for me. The aches are still there, the breathlessness and being menopausal comes and goes. The weight battle is a constant companion. Up 10 down 10 . It's all still with me. But I am wining..

Now . The latest is AI. Got a good book on it.....

I wish every one a wonderful weekend. Chin up.

Oderaro Remi.

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oderaro
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Hedgeree profile image
Hedgeree

Hi oderaro,

I'm fairly new to all things thyroid so I'm possibly a bit confused.

If you're on carbimasol (my spelling?) are you not hyperthyroid? Or is that not always the case?

Also I'm worried you mention 'both solutions keep you sedated' Can you explain that more fully?

Thanks.

Cavapoochonowner profile image
Cavapoochonowner

Hello Oderaro,For me your post was very similar to how I feel.I have Graves but had my thyroid removed last June.Is my life perfect?No.But it is alot better.The main thing I took from your post was to be realistic.I know I will never feel like I did pre 2018 when I started with Graves but that doesn't mean I can't have a good new life.I am trying to be optimally medicated,checking vitamins,trying to eat well(but I love sweet things and life is too short).My gran used to say "count your blessings, count them one by one".Luckily I am a positive person,I think that is fortunate and keeps me going.I know some people feel very ill and I am fortunate that I don't.I think a positive mindset really helps and wish you continued success.

greygoose profile image
greygoose

If you have Graves' and you're taking carbi, you are hypERthyroid, not hypOthyroid.

Most of the consultants simply push for removal. Once you do, you are on ,"Artificial" thyroxine for the rest of you existence. If you do not, you are on thyroxine suppressants for life! There is no cure!Both solutions require you live on "harmful" substances.

There's no such thing as 'Artificial' thyroixine. I think the word you're looking for is 'synthetic', but that not the same thing as 'artificial'. And Levothyroxine is exactly the same substance as the T4 made by your thyroid, molecule for molecule. It is not 'harmful', it is thyroid hormone replacement and necessary for life.

Both solutions keep you sedated, in many cases, the solutions are worse than the initial problem....

How does levo keep you sedated? It's not a drug, it's a hormone, T4. Hormones don't sedate you.

The constant vegetables, can get boring sometimes.. but I can perform wondering s with just vegetables. I have combinations that taste great. I have learnt to enjoy water. I get all the vitamins and supplements from the vegetables .

So, you've gone veggie? Why? Eating vegetables is part of being an omnivore, which we are, but eating meat is too. There's no advantage to cutting out all meat, eggs, etc. Where do you get your protein? And you cannot get 'all the vitamins' from vegetables. Vegetables contain no B12, and B12 is essentail for life. It's also hard to get enough iron from veggies alone.

But, it this a new thread or are you replying to someone on the subject of hyperthyroidism? Because if it is, it's not certain they will see it and know it's for them. :)

oderaro profile image
oderaro in reply to greygoose

Hi thanks for the updates.. The objective of my post wasn't to educate on the condition itself... I am not meat free, as you correctly pointed out there are many other minerals the body needs that a vegie diet will not suffice. I may have failed to deliver the right note, but my point was directed more to the state of mind this or any condition induces... Regards

greygoose profile image
greygoose in reply to oderaro

OK, but we do need to get our basic facts right. :)

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