T3 started 50 a day : I have started adding T... - Thyroid UK

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T3 started 50 a day

Sarahpoppe232 profile image
17 Replies

I have started adding T3 - small dose 50 mcg a day at 11 am but now my fatigue has gone through the roof - been sleeping all day but can’t shift it

I am also on 125 levo

Is this from the T3 as if so will stop tomorrow - I only started yesterday

I also had a dentist procedure yesterday so is it the T3 or the dentist injection

I am floored - can’t move

Need to sleep all the time !

sarah

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17 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Did you mean 5mcgs or did you really mean 50mcgs. 50mcgs is a large dose.

usually recommended to start at 5mcgs for a few weeks. Assess how you are then depending on previous results add another 5mcgs.

Sarahpoppe232 profile image
Sarahpoppe232 in reply toJaydee1507

ok thanks

Jaydee1507 profile image
Jaydee1507Administrator in reply toSarahpoppe232

So get a pill cutter or craft knife and cut your tablets into quarters. Start with just 1 quarter of a 25mcg pill.

SlowDragon profile image
SlowDragonAdministrator

presumably (hopefully) you meant 5mcg T3

Looking at previous post from 14 days ago

healthunlocked.com/thyroidu...

you were on 150mcg levothyroxine for years

Stopped taking it completely (for how long )

Then restarted at 100mcg every day 4 weeks ago

You’re likely under medicated having reduced dose by 50mcg

HOWEVER don’t change dose levothyroxine

Stop T3 and get thyroid levels retested in 2-3 weeks time

That will be 6-8 weeks on 100mcg levothyroxine

Test early morning, only drink water between waking and test …and last dose levothyroxine 24 hours before test

ESSENTIAL to test vitamin D, folate, ferritin and B12 levels too

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Tips on how to do DIY finger prick test 

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee 

Sarahpoppe232 profile image
Sarahpoppe232

yes I meant 5mcg so shall I stop T3 and wait for blood tests for T4 medication or cut t3 into quarters and keep going?

SlowDragon profile image
SlowDragonAdministrator in reply toSarahpoppe232

I would stop T3 now

You only need to wait another 2 weeks to test after 6 weeks on 100mcg levothyroxine

test early morning, ideally just before 9am and last dose levothyroxine 24 hours before test

Also test vitamin D, folate, B12 and ferritin

What vitamin supplements are you currently taking

Likely to need to increase levothyroxine to 125mcg after test results

But see what actual results are FIRST

Sarahpoppe232 profile image
Sarahpoppe232 in reply toSlowDragon

brilliant ok good idea

Massive headache on this stuff so yes good plan

SlowDragon profile image
SlowDragonAdministrator in reply toSarahpoppe232

You have to have all your ducks 🦆 🦆🦆in a row before even considering adding T3

All four vitamins tested and optimal

Levothyroxine dose fine tuned and settled

Previous posts several members asked ….do you have autoimmune thyroid disease (hashimoto’s)

Ever had both TPO and TG thyroid antibodies tested

If not include at next test

About 90% of primary hypothyroidism is autoimmune Assuming you do ….

It’s always worth trying strictly gluten free diet

But get coeliac blood test done BEFORE cutting gluten out

And few months later try dairy free too

Sarahpoppe232 profile image
Sarahpoppe232 in reply toSlowDragon

ok will stop for now as feeling terrible on this at the moment.

I was tested for hashimotos years ago and nothing showed up but may try again .

Not sure about TPO and thyroid antibodies - I have just had thyroid bloods at Genova and hormones at Marion Gluck so I probably do but not sure what they are called - can you let me know ?

I have had celiac test and it was negative

Trying to cut out dairy from today and will see

SlowDragon profile image
SlowDragonAdministrator in reply toSarahpoppe232

TPO and TG antibodies

Thyroid Peroxidase antibodies

Thyroglobulin antibodies

It’s going to take several months to slowly recover from stopping levothyroxine

You need to be patient

Come back with new post once you get thyroid and vitamin results after 6 weeks on 100mcg levothyroxine

Sarahpoppe232 profile image
Sarahpoppe232 in reply toSlowDragon

Does this show hashimotos please ?

This was on 150 levo now on 125 and will get blood tests soon

SlowDragon profile image
SlowDragonAdministrator in reply toSarahpoppe232

you said in previous posts you are now on 100mcg ?

How long have you been on 125mcg levothyroxine

Which brand

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

NHS only tests TG antibodies if TPO antibodies are high

Significant minority of Hashimoto’s patients only have high TG antibodies and unless test privately won’t know

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Also 20% of Hashimoto's patients never have raised antibodies ..so if both antibodies are negative get ultrasound scan of thyroid

healthunlocked.com/thyroidu...

 

Paul Robson on atrophied thyroid - especially if no TPO antibodies 

 paulrobinsonthyroid.com/cou...

Assuming it is autoimmune…..Gluten intolerance is often a hidden issue

Request coeliac blood test BEFORE considering trial on strictly gluten free diet

Sarahpoppe232 profile image
Sarahpoppe232 in reply toSlowDragon

sorry been on 125 for last few weeks - just not sure If i have hashimotos - I wetnt up to 125 just after goi g to 100 so been nearly 4 weeks - sorry really trying to get this right

SlowDragon profile image
SlowDragonAdministrator in reply toSarahpoppe232

so retest 6-8 weeks after being on constant unchanging dose and brand levothyroxine

Test early morning and last dose levothyroxine 24 hours before test

You need to test vitamin D, folate, ferritin and B12 then as well

Sarahpoppe232 profile image
Sarahpoppe232 in reply toSlowDragon

thanks do the blood tests show antibody tests that you said about ?

SlowDragon profile image
SlowDragonAdministrator in reply toSarahpoppe232

Reattach first image in a reply on this thread

Make sure your name and DOB not showing

yes….Both antibodies appear to be negative……but obviously might have been positive in the past

Have you ever had ultrasound scan of thyroid?

thyr01d profile image
thyr01d in reply toSlowDragon

Thanks for the Paul Robinson atrophy link, that's really interesting and something I hadn't come across before.

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