confused.com

[Pussycatlou]

so my 13 year old daughters cardiac tests came back ok. She is having periods of sinus tachycardia but not nothing sinister . They are stumped but said no need to repeat bloods!! Am I missing something! Daily symptoms of nausea, Dizzyness, palpitations, thinning hair, anxiety, weight loss. TSH went from 0.6 to 0.3 and t4 13.6 to 19 in a few weeks and endo is fine with that and no need to repeat! Am I missing something here!!

[humanbean]

Tachycardia can be caused by iron deficiency, B12 deficiency, or anaemia.

Has your daughter had a full iron panel done? People can have reasonable ferritin and very low serum iron, or vice versa. And what a doctor considers reasonable can be very low.

Low B12 and/or folate can cause anaemia too.

irondisorders.org/wp-conten...

cks.nice.org.uk/topics/anae...

cks.nice.org.uk/topics/anae...

Note that people can be deficient in iron, ferritin, B12 or folate and still not be anaemic. This isn't a reason to ignore any deficiencies - they should be treated with or without anaemia.

[helsyf in reply to humanbean]

I second this...just done this journey, all the same symptoms as being hypothyroid despite getting medication to correct levels...actual anaemia didn't show in bloods, but when checked, Ferritin had bottomed out, total iron binding had soured and transferin saturation super low. The doctor hasn't even acknowledged this even though all these tests actually came back outside the normal range. We only managed to get the test done by saying we had read it was suggested for people with thyroid issues. We have managed to find some iron which is easy to take and does not cause stomach issues thanks to the help on this site and my daughters low iron symptoms continue to improve...going for our first proper walk outside today with the hope she will not get breathless. Fingers crossed. I do understand though, that is is not a good idea to supplement with iron unless you know you need it. These were the tests recommended on this site

●Ferritin — Measures a protein that stores iron.  

Serum iron

●Total iron binding capacity (TIBC or transferrin) 

●Transferrin saturation (TSAT) — 

they gave us clarity and the information we needed to know to supplement. (along with other supplements we knew she needed)

[PurpleNails Administrator]

I have no answer.  If investigations haven’t shown what is causing the symptoms.  Doctors should be testing further. 

TSH was low, you have family history of hyper, so I’d argue they’re a strong case for close monitoring of thyroid levels. 

I’m I right that FT3, & thyroid antibodies haven’t been tested either?  What about folate, ferritin, B12 & vitamin D

[Pussycatlou in reply to PurpleNails]

I have took a note of all the advice you have given me. I shall ask at her next consultant appoint. How on Earth do we know if better the same or worse if we don’t check and since she still has symptoms I think it makes sense to check again 🤷‍♀️ frustrated. She has also had to go to a&e this week with severe headache, one sided numbness, visual disturbance so now we have migraine in the mix too x

[SlowDragon Administrator]

What are her most recent vitamin D, folate, B12 and ferritin results

If not been tested request these are , plus full iron panel test for anaemia

Blue horizon will test children

You would need to pay extra for private blood draw

For full Thyroid evaluation she needs TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once for Hashimoto’s

Hashimoto’s (autoimmune hypothyroid) frequently starts with transient hyperthyroid results and symptoms

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease …….or with Graves’ disease (autoimmune hyperthyroid)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am

This gives highest TSH and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning. 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

BH offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee