Confused.com: Well.... I posted results from... - Thyroid UK

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Nonameavailable profile image
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Well.... I posted results from medichecks in april. NHS tests also in may and june. Not as thourogh ... but ...

April TSH 0.337

May ... 0.29

June.. 0.10

Free TH

April ...20.9

May.. 18

June....22

Had discussed my medi results with GP who laughed.

Question. Could these changes be due to HRT. What I read says HRT can cause you to need an increase in thyroxine .

GP says to reduce.. (which I have to as I am really feeling unwell.) and go back in 3 months !!!!!! I know slight changes cause me significant distress.

Should I just stop HRT , see if it settle? Or go see private endo? My brain fog is pretty dense just now and only thing to motivate me to get up, out and engaging is my bladder!!!!!

I have been very over in the past .. about 34 yrs, but I feel all the terrible symptoms.

Thanks in advance

Karen

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SlowDragon profile image
SlowDragonAdministrator

Previous post showed low FT3

Despite supplementing, still had low vitamin D

Have you increased vitamin D supplements

Couldn't see ferritin or folate results

High TPO antibodies confirms cause of hypothyroidism is due to autoimmune thyroid disease also called Hashimoto's

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

healthcentral.com/article/t...

Nonameavailable profile image
Nonameavailable in reply toSlowDragon

Thank you for that, I did take your previous advice.Been doing the gluten free and supp with vit D. NHS not doing t3. Do you think it's worth another private test for that? Looking at my gp results only other "highlight not mentioned by gp was potassium at 5.1 ..(3.5-5) being their normal.

SlowDragon profile image
SlowDragonAdministrator in reply toNonameavailable

If paying for private tests, you need to include vitamins if not been tested recently

Essential to test TSH, FT3 and FT4 at sand time. Never just get FT3 tested

You could just retest vitamin D rather than all four

vitamindtest.org.uk

If considering private endocrinologist ALWAYS get FULL Thyroid and vitamin testing first

SlowDragon profile image
SlowDragonAdministrator in reply toNonameavailable

Are you also supplementing magnesium? Can help with muscle cramp

TMJ is common hypothyroid symptom. A mouth guard made for you by dentist can help

Email Dionne at Thyroid Uk for list of recommended thyroid specialists

DIO2 gene test might bed worth looking at too

Has helped many of us get T3 prescribed

thyroiduk.org.uk/tuk/testin...

Nonameavailable profile image
Nonameavailable in reply toSlowDragon

What is the gene test? Will google now.. lol

RedApple profile image
RedAppleAdministrator in reply toNonameavailable

No need to google, just look here thyroiduk.org/tuk/testing/D...

Nonameavailable profile image
Nonameavailable in reply toRedApple

That's where google took me .. lol

radd profile image
radd

Nonameavailable

Yes , HRT can necessitate the need to raise your Levo dose.

This is because the oestrogen in HRT can cause the liver to produce high levels of TBG (thyroid binding globulin) which bind too much thyroid hormone, so decreasing the amount that is free (available for use).

If you are deficient in oestrogen/progesterone then you should replace with your HRT. Like thyroid hormones, it is important for a consistent supply.

Nonameavailable profile image
Nonameavailable in reply toradd

So why do I need to reduce mine?

radd profile image
radd in reply toNonameavailable

Nonameavailable

GP is likely dosing by the TSH level, although FT4 look quite high, but difficult to say without ranges.

Nonameavailable profile image
Nonameavailable in reply toradd

Thank you ... lol ... my head is buzzing 🐝🐝🐝like a hive just now. I get quite frustrated when over replaced. Think it may be private endo for T3 discussion. Autoimmune markers very high. So I thought Hashis would have meant I would end up a bit under. 🙄

radd profile image
radd in reply toNonameavailable

Nonameavailable

Hashi can mean under or over.

Nonameavailable profile image
Nonameavailable in reply toradd

Can it flip between over and under?

Nonameavailable profile image
Nonameavailable

Yup use magnesium and dentist got me fitted with mouth guard 👍🏼 thank you. Will check out nearest specialist .

Foxy23 profile image
Foxy23 in reply toNonameavailable

I only managed to take hrt for 3 days. I woke up totally wet through the hot flushes were unbearable. Changed to another brand did exactly the same. My mattress was soaked again. Now there are hot flushes and then this on a totally different scale. Took me ages to get right again with my medication. By right i mean just to function normally. Someone suggested patches as they are supposed to be better. Waiting for these to be written up by gyne. Seeing him for other related her issues.

Nonameavailable profile image
Nonameavailable in reply toFoxy23

I am on oestradot 25 patches and a progesterone tab 100mg at night. I'm 60 and only recent trial. No real side effects other than sleepy , vague , and low pelvic pain ? ? Fibroids awakening 😱

Ruthi profile image
Ruthi

Do remember that the ranges they give for tests refer to the general population. You might just be one of the 5% that would have naturally fallen out of the range. So it's important to go by the symptoms.

And if you are on NDT then TSH will fall, eventually to zero, which is where mine is. FT3 is really the only meaningful test.

Nonameavailable profile image
Nonameavailable in reply toRuthi

Just on levo.

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