Monitor My Health update

[Regenallotment]

I was sending off a Monitor My Health Thyroid panel blood test this week and was a bit spooked by the messages here about their tests not working so emailed them.

Nice reply 😊

Many thanks for your email. I can confirm all our equipment is functioning properly. We had a period of around 36 hours last week when an isolated error led to a small number of incorrect results being issued.

We reanalysed everything from that period and issued free kits as well as refunds to the small number of people affected by the issue.

It would be most appreciated if you could share this with the Thyroid UK forum. 

Best wishes

Tim 

MMH Team

[helvella]

Thanks - I was just looking to post the same information!

[Regenallotment Ambassador in reply to helvella]

When normal service resumes next week you will be able to beat me to it very easily 🤣

Today was another rainy day in the Easter Hols, keeping me off the veg plot and I’ve been online pestering all sorts of people, between yoga and crosswords, an enforced rest day. If is what retirement will be like, I’ll have to volunteer for something otherwise I’ll annoy myself! 🌱

[RedApple]

Thanks Regenallotment

[Imaaan]

Thanks love and I hope your test results show an improvement in your health journey

[Regenallotment Ambassador in reply to Imaaan]

Rightbackatcha lovely one 💕

[SeasideSusie Remembering]

Thanks Regenallotment , as I thought just a temporary blip which they have sorted veryquickly. I hope this allays the fears of those members who vowed to never use them again!

[Regenallotment Ambassador in reply to SeasideSusie]

yes I thought of you when I read 36 hours, we are all quick to jump ship aren’t we 🐀🐀🐀😊

[Hidden in reply to Regenallotment]

I’ve jumped! I asked to return my unused kit as was anxious about the false results, they said I’d have to pay £10… thought that was a bit crap given it’s their faulty results that make me nervous.

[Hidden]

I asked them if they’d refund my unused kit as I’m nervous about the results not being valid, they told me that I have to pay £10 to refund it even though I want to refund it because of their false results. Felt that was very cheap of them tbh 😕

[Regenallotment Ambassador in reply to Hidden]

I had a similar experience with Ferritin failing for Medichecks, they automatically refunded £9 but charged me £20 something for a single ferritin test. I have to admit I got a bit feisty about that one. Not that it got me anywhere.

I’ve moaned to MMH in the past about the poor quality of reporting, lack of ranges, just graphs, they are working on it apparently and I noticed today they have an FAQ now on how to get results to show your GP and where to see ranges. Nice to see they are listening and care what our forum think of them.

[Hidden in reply to Regenallotment]

you’re right, the moaning doesn’t get anywhere. When I qualify as a naturopath this year I just won’t recommend them I guess 😣 but for the panel it’s just the best one around, feel annoyed and stuck. Alternatively, I will probably forget all about my grudge next week and just use the test 😂

[Regenallotment Ambassador in reply to Hidden]

ooo naturopath qualification sounds wonderful!

[Alanna012 in reply to Hidden]

Congrats! Are you qualifying in the UK? What does one have to do? ...the courses I've seen would require me killing myself to earn the vast amounts of cash quoted.

I think it's just brilliant that someone who really knows what it's like to have hypothyroidism and be ignored by mainstream medicine is qualifying to treat and help other people.

[Hidden in reply to Alanna012]

thanks 🙂 yeah, UK!

[Alanna012 in reply to Hidden]

👏🏿👏🏿🎉💃🌟🙌🏿 Brilliant!

[Hidden in reply to Alanna012]

🙂 if I am really honest though, and this may horrify you to hear it… we are not taught about T3 in thyroid labs. They teach us to look for T4 and TSH, and consider T3 that’s in range to be fine 😣

[Alanna012 in reply to Hidden]

Noooooooooooo🤦🏿‍♀️

But oh well. At least as a discipline it allows for enquiry and focuses more on the individual physiology. In practice anyway. And besides, you'll still be much more effective as a practitioner due to your direct experience!

[Hidden in reply to Alanna012]

I hope so… although I must get better myself first 🤞 but yes, in theory, if/when I qualify I will specialise in thyroid/adrenals only and truly understand how people are feeling… and ideally know what will help! 🙏🏻🙏🏻🤞🤞

[Sleepman]

Just had results through from test posted yesterday morning. Very happy with service and results feel sensible. They are a UKAS accredited lab. The fact they found the issue a dealt with it quickly gives me confidence.

You should never take 1 data point as gospel.

Four bruised fingers! Learned(afterwards) excersise and getting heart pumping might help getting enough blood. Hot water and gravity do not seem to be enough.

[Regenallotment Ambassador in reply to Sleepman]

How true, a good argument for mixing it up, although maybe comparison is flawed if test equipment/ranges differ?

ah yes, in our house we drink 3 glasses of water, do jumping jacks, and squats during to keep it flowing (as well and standing and warm water). Daughters record is 7 fingers, son can fill a pot from sitting in 4 drips, I’m a 2 finger bruiser 🤣

[Baggiesfan]

Just to add my twopence worth, I found their communication good. Got my new results back yesterday and just the FT3 was different, a measly 3.1 (3.1-6.8) was 2.4! They also said they will refund the cost of the test too as a goodwill gesture.

[Regenallotment Ambassador in reply to Baggiesfan]

Good stuff, thanks for sharing the feedback, glad they did the right thing. What is your plan with your FT3? I’m wishing you a raise 🌱

[Baggiesfan in reply to Regenallotment]

I want a raise too. I'm under the care, if you call it that, of endocrinologist at QE to get T3 on NHS. Did my own bloods as well as theirs as I feel lousy. FT3 with them after asking for results since mid March is 3.7 (3.16-6.8) so not much better. Apparently she said this is ok and I'm to stay on the same dose for another 3 months. I'm still waiting a call back as I disagree. I honestly don't think I can keep on fighting, I just want to feel better x

[Regenallotment Ambassador in reply to Baggiesfan]

keep up the fight, symptomatic is not ok … grrrrr hope you get a trial increase 🌱

[Baggiesfan in reply to Regenallotment]

What a surprise, had short email back from her nurse saying as my results are in range the Professor says to stay on same dose. Couldn't even ring me to discuss it. Just replied asking her to discuss with the consultant for an increase. Trouble is, they don't like you challenging them so I suppose they'll take another week or so to respond and I'll be labelled the awkward patient. I might post my results separately and see what you knowledgeable folk think and just increase.

[Regenallotment Ambassador in reply to Baggiesfan]

Blimey that sounds very frustrating 😠

Yes do that then you will have peace of mind that you aren’t a malingering hypochondriac but in fact a symptomatic hypothyroid as per diagnosis and then you can wave % through range at the specialist at QE and demand better.

🌱🦋🌱

[Baggiesfan in reply to Regenallotment]

Thank you, yes I feel like a hypochondriac but I know deep down I can be better. I doubt she'll care but I can try if I ever get to speak to her. I didn't see her till my 3rd appointment.

[Baggiesfan in reply to Regenallotment]

Well believe it or not, I got a prompt reply that the nurse had spoken to the professor and she has agreed to let me "try" and raise levo from 50 to 75mcg a day which was what I was about to do but wanted to put it out on here for advice. Result at last, fingers crossed it helps. Thank you for your support x

[Regenallotment Ambassador in reply to Baggiesfan]

🥳🥳🥳🥳🥳 good for you!

[Baggiesfan in reply to Regenallotment]

Thank you 🤗

[Mollyfan]

Just dor info….. I have just got my MMH results back and they are exactly the same as the NHS ones done at the same time. And, yes….. the NHS did T4 and T3 for me for the very first time in 30 years!!!

Hallelujah 🎉🎉🎉🎉

[Regenallotment Ambassador in reply to Mollyfan]

that is encouraging! Depending on where you are in the UK it could be the same lab 🌱

[Mollyfan in reply to Regenallotment]

I live in SW London and MMH is Exeter so I think it is encouraging.

[Regenallotment Ambassador in reply to Mollyfan]

indeed! That is great 🌱