Officially sourced LDN

[MrsT79]

I have Hashimotos (10 years in) and it has been suggested I try LDN to deal with my cortisol issues. I started using CT3M in June 22 with some initial success but after returning to exercise I experienced a big energy crash 4 months in and am struggling to recover. I am interested in trying LDN to get my antibodies down and improve my cortisol. I would be very grateful for guidance on how to officially source LDN in the UK for a 6 month trial. TIA

[LucyYoga]

Hi- Im on LDN and am prescribed it by private dr on TUK approved list. I will PM you her name.

[Hedgeree]

Hi MrsT79,

Sorry I can't offer any help with sourcing LDN but I'll keep an eye on your post as I'm interested in LDN myself.

I don't have hashimoto's but do have Patch Granuloma annulare (skin rash) which from any reading I've done is often associated with thyroid problems. I've had the rash for over three years now.

My GP hasn't been much use. I'm sure I read somewhere that LDN has helped another on the forum with this skin condition but can't seem to find that post.

Hope you get some helpful responses.

[LucyYoga in reply to Hedgeree]

Hi- Yes LDN has helped with patch of eczema/rash/itchy raised bumps on my elbow. It went when I started LDN

[Hedgeree in reply to LucyYoga]

Thanks LucyYoga,

That's good to know. My rash is like I've got lots of brown bruises. Thankfully doesn't seem to itch but it is all over my body and spreading slowly 😐

[LucyYoga in reply to Hedgeree]

Poor you ... there are so many strange symptoms that come along with this thyroid issue. Hope it gets resolved x

[Hidden]

I’d you go to the Dickson’s pharmacy website they can organise a consult with a prescribing pharmacist. The pharmacist can then prescribe it for you.

[MrsT79 in reply to Hidden]

Thank you. Do you know if there’s anything I should or shouldn’t say?

I have been dosing with T3 in various protocols for around 18 months, I’ve been struggling with thyroid symptoms including fatigue, exercise intolerance, slowed metabolism etc for almost 10 years now.

My cortisol has been consistently low for the last few years since I started testing. I haven’t even considered LDN until I had a 5th consultation with a thyroid health coach this morning and he suggested we try this now as we have covered all areas of T3 trials.

Many thanks

[Hidden in reply to MrsT79]

in my experience with them they don’t mind how you’re treating your hashi’s, just want proof of your diagnosis and explain to you the responsibilities of taking it. I don’t believe it will help your cortisol tho x

[Sparklingsunshine in reply to Hidden]

I use Roseway Labs for my LDN, do you mind my asking how much Dickson's charge for their liquid?

[Hidden in reply to Sparklingsunshine]

I think it’s about £25 a month?

[Sparklingsunshine in reply to Hidden]

ok thanks very much, I only started in December so have just got to 2ml, am titrating up slowly at snail's pace as per prescribers instructions. Can I just ask do you get 90ml/1mg Naltrexone. Please forgive the questions but I considered Dicksons because I researched them through the LDN trust but settled for Roseway who have been excellent, due to good reviews. I do think they are a bit pricey however.

I worry that as I increase my dose to get to eventual 4.5ml daily (I take it for Fibro, not hypothyroidism) its going to become expensive. So wondered if another supplier might be cheaper. Thanks 🙂

[Hidden in reply to Sparklingsunshine]

so I’ll be honest, and I’m not recommending, when I lightly dipped my toe in the LDN pool I ended up ordering my own Naltrexone to make it low dose, it worked out about 11p per dose and I found it much more potent without fillers etc. so that’s what I am doing… altho I have to say I didn’t stick with it back then for a number of reasons, but not because it wasn’t working.

[Sparklingsunshine in reply to Hidden]

Would you mind sending me a PM with details please. I've thought of doing it via diy method. Must work out much cheaper.

[LucyYoga in reply to Sparklingsunshine]

Hi I get my prescription that private dr prescribes through Dicksons - I’m on 4.5 ml per day and I pay approx £25 pcm for liquid or £35 if I want it in capsule form

[RedApple Administrator]

Bit of info on Dr Myhill's site here drmyhill.co.uk/wiki/Low_dos...

Possibly best source of info for UK is here ldnresearchtrust.org/

[Hedgeree in reply to RedApple]

Hi RedApple,

The LDNresearch trust is also on Healthunlocked but it doesn't appear to be particularly 'active'.

[RedApple Administrator in reply to Hedgeree]

Oh yes, I'd forgotten that. It looks as if that forum exists simply for posting information, rather than actually supporting patients.

There's a very long list of FAQs on their website ldnresearchtrust.org/questi...

[Bertwills]

I have taken LDN for nearly a year now. From Dicksons chemist. Their system works but it can be chaotic. I’ve nearly run out sometimes although I think things have improved recently.

My main point though is that at the beginning I took the drops that most take. They affected my stomach dreadfully so I was glad to change to the sublingual drops. These I tolerate very well. They were hugely helpful for awhile, improving my symptoms but after I had a virus for a few days they seem less effective. I think it’s something that is known to happen for some. Advice is to stop for sometime and then start again.

Hope you find it helpful. You need to have regular blood tests as taking LDN often means you need to reduce you thyroid hormone dose.

Good luck with it.

[Bertwills]

Dickson Chemist LDN clinic is now on a separate website. It’s Clinic158.