I have pernicious anemia and sjogrens. I have multiple nodules on my thyroid including a huge one that is very visible. Swollen feels odd and certain foods are very hard to swallow. I’m extremely tired and have very dry skin.
Are these normal?
TSH level 1.01 mU/L
FSH Level 2.1
Free T4 12.9
many thoughts? Thank you
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TSH & FT4 isn’t sufficient information, but doctors think it’s sufficient to screen for most thyroid issues.
By most ranges your FT4 is low. You might make faster progress to arrange a full private test. Including TSH FT4 & FT3. thyroid antibodies & key nutrients (folate, ferritin, B12 & vitamin D). You order a kit online & it’s posted to you to take sample can be taken via finger prick (extra fee for venous draw at home or clinic).
Different companies offer different options & level of testing. Medicheck advance option good & include biomarkers mentioned & CRP an inflammation marker.
If you have swelling in thyroid area & issues with swallowing issues - persist with GP & ask for ENT referral & or thyroid ultrasound scan.
Years ago after 2 doctors said my neck look fine. I was at an appointment with nurse & I asked her to look at my neck when I drink water, I had taken a bottle with me. When you tip you head back & gulp any swellings can sometimes become more evident.
I was immediately sent for bloods and referred for an ultrasound scan. The scan revealed a benign but large 5cm colloid nodule.
More recently I had a further lump develop which turned out to be a inflamed submandibular gland, (above thyroid area) but the doctor’s referral for scan was refused as neck lumps are now accessed by ENT.
So it will depend on hospital policy which route you have to go. I’ve had many neck ultrasounds & a naso-endoscopy (camera via nose to look at oesophagus).
(My nodule hyper functions, most nodules do not function, some function normally)
thank you that’s helpful. I will look into private test as GP keeps fobbing me off and I feel awful.
B12 is good injections monthly last level was 350
Vit d 22 using spray for 2 months now.
I’ve had a scan last year this is what it said
CLINICAL HISTORY
midline thyroid nodule please FNA as required. has been present for 4-5 months.
There is a moderately enlarged, multinodular thyroid gland with no retrosternal extension. There are multiple nodules with benign isoechoic, spongiform/cystic morphology and minimal peripheral vascularity (U2), the largest of which in the right lobe measures 5cm x 2.4 cm and corresponds to the clinically palpable abnormality.The submandibular and parotid salivary glands are unremarkable. No abnormal cervical adenopathy.
it does but GP isn’t interested. It’s like banging my head against a brick wall. The other GPS don’t have a good reputation either so I don’t think moving would help.
My Vitamin D level was that low at one time. After much trial and error and research, I found the perfect thing that eventually raised it to optimal ( in the US Functional docs say optimal is about 70)
First of all Vitamin D is a hormone and the sun makes it on our skin. But with supplementation, Vitamin D3 is best. Since it is fat soluble it's best taken with a fatty meal in the mornings. 5000 IU is the least I take per day.
Also, it's best to take Vitamin K2 with it to insure that calcium is sent to the bones and not the arteries. 100 mcg. My brand is Sports research because it has the K2 and Coconut oil already in it.
Next, because D3 can deplete magnesium it's a good idea to take magnesium at night ( Glycinate, Malate, and Taurate are good sources)
And then lastly a quality cod liver oil at night as well ( Vitamin A) as it helps everything to work together. I know it's a lot but it works better than anything I've tried! I made the meme for my clients and so far it's worked well for all of us! Plus I feel so much better and can tell the difference😊👍
A meme outlining the best Vitamin D protocol to bring levels to a optimal range
I am extremely surprised they have not referred you as 5cm is quite large. I suspect something has been missed here. You need to get a copy of the correspondence that was sent back and forth from the hospital to your GP and you are entitled to that and copies of all your results. Ask the receptionist, not doctor.
Also you commented you have Sjogrens, were you referred to Rheumatology and are you on active treatment (HCQ, etc). Asking as the scan didn't reveal any issues with parotid glands. SS can cause some of the symptoms you describe, although, not the nodule/goitre which sounds thyroid related but certainly the dry skin and extreme fatigue. That it is why it is difficult to determine whether it is thyroid or SS and often causes the delay in getting a diagnosis.
Thyroid, SS and P.A. are all autoimmune conditions and once you develop one condition you are more likely to develop another A.I. condition.
Hope since you posted this you have managed to get a little bit further with your GP surgery. Good luck.
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