overactive thryriod

[dynamic1]

I’m on 20m of carbinzole after recent blood tests was on 5m for quite a bit of time then consultant upped the medication recently I had a visit to optician turns out one of my eyes has what is known as a spider web any advice if this could be anything to do with overactive thyroid thanks for any advice

[PurpleNails Administrator]

Have you been on 5mg for 7 years, since (since last post?)

Seems a long time to be stable & then need 4x the dose.  

What was the decision to increased based on ? Low TSH or over range FT4 & FT3.

TSH is not a reliable measure, so you need to ensure the constant ant is going by FT4 & FT3.

Do you have any copies of results with lab range.  

What is the cause of your hyper?

 PSpiderweb or cobwebs in vision are usually caused by a harmless process called posterior vitreous detachment (PVD), where the gel inside your eyes changes.  If sudden or severe it can be associated with retinal detachment but this is not associated with thyroid or thyroid eye disease. 

[dynamic1 in reply to PurpleNails]

no over the years it has been increased to 10 m which I was on till about a year then had bloods done then consultant advised to go on to 20 m I’m not sure what the ranges mean as I don’t see any results just a phone consultation to say if meds are to be increased or decreased due for blood tests again in April then telephone triage with consultant in June

[PurpleNails Administrator in reply to dynamic1]

Are the blood tests arranged by hospital or GP?

Contact the reception of practice or hospital department & request a printed copy of results. 

Results are rarely explained,  you have to request them. 

You are legally entitled to see them once Doctor has viewed them.  Therefore you might expect staff wish to check first.

They should not question why but if they do you simply say you want them “for your records”Some practices offer online access to medical record, but this takes time to set up and doesn’t not include hospital held record & tests. 

[dynamic1 in reply to PurpleNails]

no requested by hospital consultant but definitely ask for a copy of results thanks for your advice

[pennyannie]

Hello Dynamic :

I have Graves Disease and went through RAI thyroid ablation back in 2005 - though well on the Carbimazole I was told it was too dangerous to stay on long term and given a toxic substance to drink instead !!

Yes I deeply regret not questioning and simply following the mainstream medical advice.

We do now have some research papers which you may like for reference :-

pubmed.ncbi.nlm.nih.gov/338...

ncbi.nlm.nih.gov/pubmed/306...

The most well rounded of all the websites I found is that of the Elaine Moore Graves Disease Foundation - perhaps you already have this one under your belt - elaine-moore.com

[dynamic1 in reply to pennyannie]

thank you for your reply several years ago RAI was discussed but it was something I couldn’t consider as to ongoing health issues at the time will discuss next results when I speak with consultant meanwhile will look at the enclosed docs thank you