Change in way of prescribing medications!!! - Thyroid UK

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Change in way of prescribing medications!!!

shaws profile image
shawsAdministrator
12 Replies

I had a phone call from a (quite recent member of the surgery) GP to enquire why I was prescribed T3 as someone is reluctant to provide and WANTS to know why it has been prescribed!

Some medicals don't want to prescribe T3 at all and are persuavive to insist that( probably T4) should have another replacement.

Eventually my GP said he would put forward for T3.

Be alert and I doubt whoever the enemy is may well be unaware that there are now cheaper T3s.

We're not sure yet if they will suit everyone.

What another strain when someone has found that an additon of T4/T3 or T3 has restored their health.

Do we have to become suffragettes!

Cross fingers !!!!!!! or else we'll have to have a sit-down in front of the Main Organisation

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shaws
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12 Replies
tattybogle profile image
tattybogle

i've a good mind to go round and tell em to 'sod off' on your behalf shaws.., pressure like this is the last thing any of us need .

........ and anyway you are the most 'abstemious' user of T3 i know of . You are the polar opposite of someone 'chucking it down their neck like smarties' .....you only take 25mcg a day for heavens sake and no levo ..

Haven't these people got anything better to do with their time ?..... i though they were having a staffing crisis .. surely there must be plenty of patients sitting on the phone who actually want to talk to them about something.

shaws profile image
shawsAdministrator in reply totattybogle

Thanks to all who has responded.

Don't worry as I've now been given a new prescription for T3, and it has gone from 10mcg daily to 30mcg daily. So I take 3 10mcg tablets when I awake and wait an hour before I eat.

I feel well and have no symptoms (thankfully). I shall wait a couple of weeks to see how I respond and hope I remain o.k.

That's a high dose for me so will keep an eye on how my body feels on dose.

The 2 doctors are new to the surgery and they assumed I had been taking levo so that's why my results would have puzzled them and very different so they 'phoned for me to go to surgery to consult and the problem was resolved. as they assumed that I was taking T4 so blood results would definitely be 'strange' as I take T3.

I still feel well and hopefully it continues.

Thank you all for your 'back-up - if required. :)

tattybogle RedApple DippyDame Regenallotment

tattybogle profile image
tattybogle in reply toshaws

Were you getting 1 x 25mcg tablet before shaws ?..

you'd think it will now be costing them more to give you 3 x 10mcg tablets.

See how it goes for a few weeks .

RedApple profile image
RedAppleAdministrator

Oh how immensley frustrating and upsetting for you Shaws. Hope it gets sorted soon and no-one else has the audacity to question it again!

shaws profile image
shawsAdministrator in reply toRedApple

I am fortunate as I haven't developed symptoms.

DippyDame profile image
DippyDame

The level of ignorance amongst people who are supposed to be educated to treat us, even at a basic level, is astounding.

Don't they know why T3 is prescribed!

They seem to think that unless they are seen to be changing things they are not doing their job properly....utter balderdash.

It needs rear ends to be kicked....not just fingers crossed.

I learned so much from you when I embarked on my T3-only journey 6 years ago ...you know far more than those upstarts and they too need to listen and learn from you.

Keep at them  shaws ....it's madness that it has come to this.

It causes a red mist to descend...

Take care

DD

Regenallotment profile image
RegenallotmentAmbassador

ugh what new fresh hell is this shaws … well have to stage a metabolically challenged sit in with comfy cushions and nap times. Blooming awful. 🌱

shaws profile image
shawsAdministrator

If our TSH is 100 and no-one knows anything (that was me originally) I found that many doctors were unknowledgeable even to have gone under anaesthetic to remove an imagined 'web'. Usually the doctor talks to the patient coming out of anaesthetic but mine didn't appear at all - the fact was no 'web' and you certainly don't get your money back. No-one came to see me after op so I had to wait another week..

This relatively new doctor is sympathetic and I think they have to follow any new guidelines. It might even be that one of those that we know is now cheaper. We will have to see what is offered as substitutes I assume.

Also we have more choices of T3 and that may make it easier for us to restore our health and have no symptoms - to feel 'normal' again.

Also I must state that to have had an appointment with both Dr Gordon Skinner and Dr Barry Peatfield - was a privilage - just identical to what would be in our imaginitive doctors.

Hopefully some newly trained doctors can read/copy about both these doctors.

I am relaxed as I am well and symptoms resolved and I have 'back-up if required'.

Aurealis profile image
Aurealis in reply toshaws

So pleased you’re feeling relaxed and well shaws, it’s all a bit Wild West these days. At least you got a phone call, ours uses texts from a do not reply number 🙄 so unprofessional.

As you say, the rationale should be in your medical notes - was the individual who phoned not authorised to access or didn’t have the knowledge or training to access them. I used to think that all of this was messy and difficult but would improve over time. Now it seems things are worse but hope of improvement over time is gone :(

shaws profile image
shawsAdministrator

I must state that the 'new doctor' is sympathetic and kind. When I phoned about a completely different problem he prescribed instantly and things were healed quickly.

serenfach profile image
serenfach

Why do I have a prescrption for T3? Because a doctor who knows more than you prescribed it, thats why!

shaws profile image
shawsAdministrator

Hi serenfach on re-reading your response of 1 year ago and giving me a good laugh as a person in the surgery now wants me to adjust my dose yet again. I will refuse and telll him that my Endocrinologist will decide.

I believe that quite a number of GPs don't have the knowledge to help the patient and have no clue to enable them "on how to relieve a patient's symptoms if they're hypo"

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