HyperThyroidism???: Hi guys, I am new on here. I... - Thyroid UK

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HyperThyroidism???

UyYy profile image
UyYy
8 Replies

Hi guys,

I am new on here. I wanted to ask if it’s normal to feel like I have a fever inside but the temp shows normal most of the time.

When the room is warm I tend to get 37.4 - 37.7 cel on forehead thermometer.

Tsh is normal

T3 is 4.23

T4 is 25.6

I did react to carbiMazole for sometime but the it comes and goes.

what am I missing guys?

i am really suffering with these feelings.

the worst is the inner feverish feeling.. could this be something else or?

the doc says I have an overactive thyroid due to the results.

I have been on carbimazole for 1 month now changed from 20mg a day to 10mg due to the side effects.

I’ll really appreciate anyone’s input.

the feverish symptom has been going on for 3 months now and even before I started carbimazole 😞

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UyYy
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8 Replies
UyYy profile image
UyYy

I forgot to add that sometimes when I eat the feverish symptoms seem to subside but then they come back again..

Could it be an issue with my hypothalamus?

Thanks for your answers once again

humanbean profile image
humanbean

Tsh is normal

T3 is 4.23

T4 is 25.6

You need to find out the actual result for TSH and the reference ranges for all three results.

The reference ranges can vary enormously depending on which lab did the testing. So, one lab might say that top of range for Free T4 is 14, another lab might say top of range is 22.

What were you diagnosed with before you started any treatment for your thyroid hormone levels? And what were you prescribed?

And do you have those original results that triggered treatment?

"Normal" is a useless word in the context of blood testing. The example I always give to show what I mean is the ferritin (iron stores) test.

Suppose you have three patients, A, B and C and all three are given a ferritin test. The reference range for the test in each case is 30 - 210.

A's result is 30 (bottom of range)

B's result is 120 (mid-range)

C's result is 210 (top of range)

All three results are within range so would be described as "normal" by many doctors, even though the top of range is 7 times higher than the bottom of the range.

But B would probably feel best. C would probably feel fairly good too. And A would feel worst.

This is why we always stress that people should know the reference ranges for the tests they have because "normal" is meaningless.

UyYy profile image
UyYy in reply to humanbean

Hi there,

Thank you for your response!

I wasn’t diagnosed with anything per say. I just had these very unusual symptoms and checked my thyroid levels and the doc saw that it was hyper.

Sadly, she didn’t recommend any further investigation. She just put me on 20mg Carbimazole per day.

I clearly understand what you mean by the term, “normal”. It can be confusing.

I need to go get my initial results and probably share them again.

Thanks once again :-)

humanbean profile image
humanbean in reply to UyYy

I wasn’t diagnosed with anything per say. I just had these very unusual symptoms and checked my thyroid levels and the doc saw that it was hyper.

Sometimes doctors think someone is hyperthyroid if their TSH is below range. But there is a lot more to getting an accurate diagnosis of hyperthyroidism than that.

It is possible for someone to have periods of what appears to be mild hypERthyroidism when what they actually have is Hashimoto's Thyroiditis, and given time they actually end up becoming hypOthyroid.

The problem for patients is that in some countries and with some doctors their first reaction to any hint of hyperthyroidism is to recommend the patient have their thyroid destroyed with radioactive iodine (RAI). Do not agree to this until you fully understand all your options and have had a second, third, fourth opinion from us.

Sometimes people who are hypOthyroid might end up being over-medicated with thyroid hormones and their TSH ends up being very low. Doctors do odd things like tell their patient they have become hyperthyroid and must stop their thyroid treatment immediately, when all the patient really needs is a slight reduction in their Levothyroxine.

Conversely, in people with hypERthyroidism over-treatment with carbimazole or PTU can reduce their Free T4 and Free T3 enormously and make their TSH go really high. In this case the patient hasn't become hypothyroid they are just over-treated and need a reduction in their dose of carbimazole or PTU.

Whatever your doctors' reactions to your thyroid test results, don't agree to do anything permanent (like RAI or thyroidectomy) quickly. You should be treated for hyperthyroidism properly, and if it suits them some people stay on the treatment for years. The longer patients are on drug treatment for hyperthyroidism the more likely they will - eventually - go into remission.

PurpleNails profile image
PurpleNailsAdministrator

Welcome to forum.

What is the cause of your hyper? Doctors should investigate the cause as often it can be transient and if your thyroid levels naturally drop being on carbimazole will cause levels to drop much quicker.  

Difficultly dealing with heat is a commonly reported symptom with hyper.   It should ease when your levels are better for you.  

Has your doctor referred you to a specialist?

 You need thyroid antibodies tested 

TPOab (Thyroid Peroxidase antibodies)

 TGab (Thyroglobulin antibodies)   Both signify thyroid autoimmune affecting thyroid - can be either under active or over active.

  If hyper Graves suspected this can be confirmed by TSI - Thyroid-Stimulating Immunoglobulin (signifies hyper Graves)

 TRab - TSH receptor antibodies (TRAb) (signifies Graves) 

UyYy profile image
UyYy in reply to PurpleNails

Hi there,

Thank you lots for your input.

Sadly, my doctor didn’t investigate further as to what could be the root cause of the overactive thyroid.

She hasn’t referred me to a specialist yet.

I definitely need to go back and request for a Thyroid antibodies test. I have never had one done before.

Thanks a lot for your recommendations once again and I’ll keep you posted:-)

PurpleNails profile image
PurpleNailsAdministrator in reply to UyYy

If in UK you should automatically be referred to hospital endocrinology specialist.  

GPs can request TPO antibodies & labs sometimes adds TG, but a specialist has to arrange TSI or TRab.  

Thyroid function required regular repeat testing & carbimazole adjusted to carefully keep levels balanced. This usually requires a specialist.   6 weekly until stable is standard.  

Put your country in profile as many members may suggest private testing companies which won’t be relevant is not in UK.  

pennyannie profile image
pennyannie

Hello UyYy and welcome to the forum :

In normal circumstances a blood test must be run first -

which has happened - but we need the ranges please -

and from that same blood test it is further analysed to find out which antibodies are in your blood and causing these symptoms you are experiencing -

and then, and only then, you are prescribed a medication or not depending on which antibodies were found over range and positive in this further analysis undertaken by the hospital laboratory.

Do you have online access to your medical records, maybe this further analysis of your thyroid antibodies is sitting in your medical records ?

Do you take any other medications ?

The unique antibodies and the medical evidence that Carbimazole is to be prescribed are generally written as a TR ab - a ' thyroid receptor blocking antibody or a TSI - a thyroid stimulating antibody.

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