Graves is a terrible experience, I understand you all the way as I have been through the same you and Kristine experienced. The heart problems were the worst for me and once I was prescribed Carbi it immediately started to help.
It took me 5 weeks to achieve full good blood results. Carbi works fine, it stops the conversion of iodine from turning into thyroid hormones. However, it is a bomb and it can be difficult for some people to deal with the side effects.
In the end, my personal experience with Carbi turned out to be awful because I had serious allergic reaction at 10 weeks of treatment and I was hospitalized and could have died of it had I not an experienced and fantastic Endo guiding me. ( Sometime after my hospital episode I met someone whose sister died of the same reactions I experience from Carbi treatment because she was treated by emergency room doctors, inexperienced doctors, she died due to complications of allergic reactions to Carbi).
Had Graves for years and was in total ignorance of the effects of the disease even if I had all the symptoms of Graves, except the eye.I had excuses for everything as I had lived with some of the effects for decades. At 45 years I was as thin as a person with terminal AIDS (I can't even look at pics from that year today) and I swallowed all the bad feelings with help from my full schedule graduate student life.
In February 2008, after almost dieing from a a 10 day Thyroid Storm I ended up in a emergency room, no one knew what I had. Hallucinations, extreme high fever which would not go down anymore, heart about to explode and intense body pain were the worst. Couldn't walk to toilet without feeling my heart would explode.
Fortunately I was taken to an experienced Endo, professor at the university hospital, and he guided me. All the exams showed Graves and after the storm I notice the huge goiter on my neck, it exploded during the storm days. It was so big that I even had difficulty swallowing. I was prescribed Carbi, felt good immediately but later on came the reactions. The worst days of my life. Heavy urticaria I have even seen and the most scary paralysis of arms and legs. Couldn't move, nor walk and that was scary.
During the crisis, one shouldn't take anything. Have to wait in a hospital bed, in observation. The unexpected interactions with other drugs are killer. Have to stop Carbi and wait until all the bad effects go away. Some light steroids might help the pain. Not much else.
After the allergy, I applied for a deadline to deliver my thesis at the university and got one. Took some steroids and waited some time to recover and start on Radio-iodine. The hormones go crazy next day after stopping Carbi. It was heavy Graves all over again.
Once in crisis, no walk, no effort, no exercise allowed. Surrender to the sofa. if you have small kids, call for help. You should not do anything. No stairs. I remember being left alone waiting for the lift to go up and down one flight of stairs. All my colleagues would laugh. Thin and lazy they thought.
Take Carbi but keep eyes open for reactions. Specially itching, muscle/joint pains and sore throat.
Stop immediately if those come to happen and persist for more tha Two hours. Don't take any other drug.
If you don't like your Endo, find another one.
Don't do a thing. Don't lift a finger. Let the chaos grow around you. You don't need a tidy home if cleaning might put your life in risk. No efforts.
Call for help. If you can afford, pay a maid or a helper, make husband and kids work.
Grave is deadly serious.
Carbi is to be taken for years. I was prescribed for four years, I could not take it for three months. You might start considering Radio iodine. Life with hypothyroidism is not perfect, but it is better than Graves.