Hi everyone. A new member and I have been reading related posts which has helped me understand the quite a few things already. Due to Covid-19, I only had 2 telephone appointments with my endo in past 6 months so I can't seem to get any clear picture of my situation. Let me explain my situation in detail.
I have had hyper symptoms from last 7,8 years but never got myself tested before(I only moved to the UK 2 years back and used to live in Pakistan all my life). I once requested a doctor back in Pakistan to write the blood tests for me to get tested but he basically laughed at my face and said that men don't really get this disease and I should stop reading internet. I am 30 years old and my height is 180cm and I have never weighted above 70 kg in my entire adult life till 4 months back so I always knew I was underweight but thought I am diabetic due to a really strong history of that in my family.
In September 2019, I noticed that I was missing a patch of hair just around my jaw-line and had a sore throat so visited my GP for that. She asked me to get bloods done and suggested that I could have hyper as I described all the major symptoms. Needless to say I was diagnosed with graves disease and she referred me to hospital for endo team. She also noticed that my heart was racing all the time(close to 120 while sitting on a chair) and I was sweating a lot in middle of November as well. I was told that I couldn't see endo till March 2020 as there was no appointments but she spoke to the team and got me started on carbimazole 20 mg but didn't started me on propranolol. She asked me to take the carbimazole for 2 months and then get the bloods done. I got my bloods done in February 2020 and then at start of March again but I switched my GP in February and wasn't told to continue taking carbimazole so I stopped taking that.
My February results were Free T4: 15.4 and TSH less than 0.01
March results. Free T4. 29.3, Free T3: 27.6 and TSH less than 0.01
Then Covid happened and I couldn't get any appointments with anyone and my weight even went close to 65kg in those days. I did receive a call from my endo at end of March, she discussed everything in detail and told me that I have graves disease and I need to immediately restart on Carbimazole 20 mg and propranolol which I did and I have been taking carbimazole 20 mg since start of April till now but stopped propranolol after a month as my heart beat settled around 60 while resting.
I had bloods at end of June and result was free T4 : 13.2, free T3: 5.9 and TSH is less than 0.01. I haven't had a chance to speak with my endo since the April but she told me to continue taking 20mg of carbimazole. I got bloods done earlier this week but haven't received the results yet so not sure how things are right now.
I am a bit worried about the weight gain as I weighted 80 kg last week so that's around 14 kg gained in past 5 months on my normal diet but I do feel alright other than that. No tremors, no racing heart, no nervous energy of any kind but I still can't discus anything with my endo as they can't be reached so it's all about comforting myself that things are going in right direction for my health (bar the weight gain) but wished I could know if my dose will be adjusted or when can I expect to stop taking carbimazole. Reading posts here has given me an idea on the seriousness of this disease and I can comfort myself that quite a few brave people here have gone through same hell and came up on the other side with a better life.
Apologises for the complete essay and so much details but hopefully someone can take a look at the blood results and help me understand them a bit better.