Latest TSH result: Morning all, I’ve just had... - Thyroid UK

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Latest TSH result

Mrscat12 profile image
9 Replies

Morning all,

I’ve just had my latest test results back after being on 75mg one day and 50mg alternatively. My previous dose was 50mg daily. It looks as though it’s only changed by 0.1 after 6 weeks. I’m obviously under medicated as I still feel pretty rubbish with no energy, extreme tiredness, hair loss etc. I’ve an appointment tomorrow so I’m wondering should I ask to try 75mg every day or alternate with 100mg then 75mg. According to my test result they think I’m satisfactory 🙄

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9 Replies
Mrscat12 profile image
Mrscat12

This is my previous result and it’s 7 weeks after starting my increase ( sorry can’t add up )

.
Jaydee1507 profile image
Jaydee1507Administrator in reply toMrscat12

Other than needing a 25mcg dose increase as your TSH is too high. Love tattybogle response.

Your folate is deficient. Make appointment with GP to get prescribed 5mg folic acid.

B12 could be higher. Buy a good B complex which helps keep allthe B's in balance. This one is good. amazon.co.uk/Yipmai-Liposom...

D3 could be a bit higher to around 100. Use this calc to work out how much to take according to result/weight. Buy D3 with K2 to help it go to the bones. grassrootshealth.net/projec...

Ferritin is good. 👍

tattybogle profile image
tattybogle

Amazingly helpful Lab comment though..

( NHS !) lab... comment says "adequate replacement is 0.2 -2 ...and over 2 is considered under-replacement ... "

Quick ... everybody move to West Yorkshire :)

Not to this GP though .. GP comment say's 'Satisfactory '

GP presumably can't read then ?

edit :

use this list of recommendations for GP's to keep TSH between 0.4/0.5 and 2/ 2.5 in patient on levo healthunlocked.com/thyroidu... my-list-of-references-recommending-gp-s-keep-tsh-lower

( and that very helpful lab comment )..... to ask GP "for trial increase for a few months to see if it improves symptoms" , preferably 100/75mcg alternate i think given TSH is still over 2 and you still feel pants.

GP dose NOT know what TSH will be on increased dose until they try it... as long as it is still above 0.4 , those recommendations can be used to request further increase if needed...

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

if TSH goes below 0.4 on increased dose then come back for further advice .. if everything else ( vit's etc etc ) has been optimised first , then this can be used .

healthunlocked.com/thyroidu.... useful-evidence-that-tsh-between-0.04-0.4-has-no-increased-risk-to-patients-on-levothyroxine-as-long-as-ft4-and-ft3-are-in-range-.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

You may find this explanation helpful in discussion with GP: healthunlocked.com/thyroidu... xplanation-of-what-*high-tsh-is-telling-us-when-our-ft4-level-is-normal-on-levothyroxine-the-shoe-size-analogy.-*-over-2.5-3-ish

Mrscat12 profile image
Mrscat12 in reply totattybogle

I know right! What’s worse is that I’m booked in with that GP tomorrow. I should have also added that since about December I’ve had a continual sore throat so I’m going to ask her to feel my neck. I’m also under MSK for chronic shoulder & hand pain which is ongoing from 2018. Have had surgery on both shoulders. I’m hoping that an increase will help towards this 🤞🏻

SlowDragon profile image
SlowDragonAdministrator in reply toMrscat12

Frozen shoulder extremely common with thyroid disease,

verywellhealth.com/thyroid-...

jerseyrehab.com/is-thyroid-...

as is carpal tunnel in wrist

everydayhealth.com/hypothyr...

Sore throat could be acid reflux caused by LOW stomach acid, again extremely common when hypothyroid/on inadequate dose levothyroxine

Thousands of posts on here about low stomach acid 

healthunlocked.com/search/p...

But never assume you have low stomach acid 

healthygut.com/4-common-bet...

Web links re low stomach acid and reflux and hypothyroidism 

nutritionjersey.com/high-or...

stopthethyroidmadness.com/s...

thyroidpharmacist.com/artic...

 How to test your stomach acid levels 

healthygut.com/articles/3-t...

meraki-nutrition.co.uk/indi...

huffingtonpost.co.uk/laura-...

lispine.com/blog/10-telling...

SlowDragon profile image
SlowDragonAdministrator

Approx how old are you

Approx how much do you weigh in kilo

Definitely request increase to 75mcg daily

Have you had coeliac blood test done

Or are you already on gluten free diet

Mrscat12 profile image
Mrscat12 in reply toSlowDragon

Hi I’m nearly 54 & weigh approx 56kg. Have put on 5lb though since Christmas and not shifting. I’ve not had a coeliac blood test ( not been offered ) and must admit I’m not on a gluten free diet yet. My GP’s aren’t that good tbh which can be quite frustrating. Appreciate all your replies.

SlowDragon profile image
SlowDragonAdministrator in reply toMrscat12

so guidelines on dose by weight suggests you might eventually need Approx 89mcg per day …….so not far to go

Presumably you are now on B12 and vitamin B complex

Suggest you request coeliac blood test via GP (as per NICE guidelines)

Mrscat12 profile image
Mrscat12 in reply toSlowDragon

Hi yes I bought the B12 from the hemp outlet as you suggested in January but stopped a week before my last blood test. I take B12 and Vit D daily too. I also requested not to be prescribed TEVA hence the 50 & 25mg tablets dosage.

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