Liothyronine - Nausea an feeling sick - Thyroid UK

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Liothyronine - Nausea an feeling sick

Dalias profile image
13 Replies

Hello,

I wonder if any of you have suffered what I am at present.

I have been taking liothyronine 5mcg once a day for 4 months or so along side with levothyroxine 50mg a day (before I was taking levothyroxine only 70mg a day).

I have gradually felt a bit hyper and then got nausea, felt unwell in myself with some headaches...but now it is getting worse and feel unable to work at present.

Please let me know.

Thank you.

V

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Dalias
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13 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Do you have your most recent blood results to share with us?

Have you recently had bloods for ferritin, folate, B12 & D3? Low levels of these can mean we don't tolerate thyroid hormone well, especially T3. We need OPTIMAL levels to feel well.

Do you have Hashimoto's? If so it might help to trial a gluten and possibly also dairy free diet.

Dalias profile image
Dalias in reply to Jaydee1507

Thank you for your reply.

I was diagnosed with Hypothyroidism. Nothing else was mentioned by GP and now I see a private consultant that gave me T3 but I find it hard to communicate with him. No other tests apart from those below were requested.

Thank you

My blood test last week below.

.
Jaydee1507 profile image
Jaydee1507Administrator in reply to Dalias

Your TSH is far too high. As SD says ask for a 25mcg dose increase of Levo. On T3/T4 combo treatment to feel well most peoples TSH is suppressed.

Do you not have an email address for the Endo's secretary?

Dalias profile image
Dalias in reply to Jaydee1507

Hello and thank you too.

Yes I have the secretary's email. I will speak with the consultant sometimes this afternoon/evening and I will explain. Hopefully he will help.

Thank you very much for your help.

SlowDragon profile image
SlowDragonAdministrator

what are your most recent thyroid and vitamin results

Bloods should be retested 6-8 weeks after any dose change or brand change in levothyroxine or T3

You’re on very low dose levothyroxine/T3 …..likely in need of dose increase

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high thyroid antibodies 

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Do you have autoimmune thyroid disease

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

When were vitamins last tested

What vitamin supplements are you currently taking

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

Ideally you should split T3 day into 2 or 3 doses before test and take last dose T3 Approx 8-12 hours before test

But if only on 5mcg and cutting 20mcg tablet into 1/4’s that’s not really feasible

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

Dalias profile image
Dalias in reply to SlowDragon

Hello,

My latest blood test is attached. It was done last week.

I see a private specialist and hope to speak to him tonight as I still feel quite unwell and not been able to work. He has not mentioned other tests to be taken.

I find your advice complicated to interpret .

Thank you

x
SlowDragon profile image
SlowDragonAdministrator in reply to Dalias

Your results show you are very under medicated

Request 25mcg dose increase in levothyroxine and retest in 6-8 weeks

On levothyroxine plus T3 you would expect TSH around or below one when adequately treated

Approx how much do you weigh in kilo

Very unlikely you ever needed dose levothyroxine reduced when T3 was added

Meanwhile you need to get vitamins tested

Vitamin D, folate, ferritin and B12

What vitamin supplements are you currently taking

Dalias profile image
Dalias in reply to SlowDragon

Thank you for your reply. I weigh 53kg.

I do not take supplement as I am not sure what the best one are and the market is confusing. The consultant never guided me on this.

I was looking at taking menaupace as I am 57 and thought it could help? or can you recommend others?

I hope to speak to the consultant this evening and tell him also about my vitamin being tested.

Thank you very much.

SlowDragon profile image
SlowDragonAdministrator in reply to Dalias

Your TSH is high considering your weight and dose levothyroxine/T3

Do you always take levothyroxine on empty stomach and then nothing apart from water for at least an hour after

No other medication or supplements within 2 hours

Some like HRT, PPI, iron, magnesium not within 4 hours of levothyroxine

You need vitamin D, folate, B12 and full iron panel test for anaemia including ferritin

Do you have autoimmune thyroid disease (hashimoto’s) usually diagnosed by high thyroid antibodies?

request GP/endo test sex hormones for menopause too

Dalias profile image
Dalias in reply to SlowDragon

Yes I take my meds both levothyroxine and liothironine on empty stomach with water and wait 1 hour and often more because I cannot eat as and when at work.

I also take limecycline (antibiotic) at the same time for alopecia but the dermatologist told me it was fine to do so. I have taken it for nearly a year now and hopefully will stop soon.

I take no other supplements.

I just been under general anestetic for the removal of 2 wisdom teeth. I never react well to aesthetic and after 2 days when I still felt full of nausea, headache , no appetite and generally not myself I thought it was the aesthetic but I do not think it is. I had felt the same a few weeks back but less intense and it had subdued.

I am not sure if i have autoimmune thyroid disease (hashimoto’s). I will ask the consultant.... I think it might be.

Thank you

SlowDragon profile image
SlowDragonAdministrator in reply to Dalias

You absolutely can NOT take any other medications at same time as levothyroxine and T3

That is likely the source of the problem

Move antibiotic to bedtime

Anaesthetic can significantly reduce B12 levels

On levothyroxine and especially on levothyroxine and T3 we MUST test vitamin D, folate, B12 and ferritin at least annually

Many, many thyroid patients need to supplement continuously to maintain OPTIMAL vitamin levels

Come back with new post once you get vitamins and thyroid antibodies tested

Dalias profile image
Dalias in reply to SlowDragon

Thank you. I had asked both my Endo and Dermatologist to confirm that it was ok to take the limecycline with my 2 thyroid medication in the morning and they said yes. I am so confused with it all. I will ask again and move it to the evening anyway from now.

In your view will I still need to increase my levothyroxine or the problem will subside after a while of taking limecycline in the evening.?

I will tell all this to the consultant and mention the vitamins and thyroid antibodies test and advice on vitamins supplements.

I will contact you again when I have done some tests.

Thank you very much

SlowDragon profile image
SlowDragonAdministrator in reply to Dalias

Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after

academic.oup.com/edrv/artic...

NHS only tests and treats vitamin deficiencies

If vitamins not deficient, you will need to self supplement to maintain optimal levels

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