Under active thyroid ,and hypoclycemia - Thyroid UK

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Under active thyroid ,and hypoclycemia

Astro16 profile image
16 Replies

Hello, i have been with Health Unlocked for a while on and off since i was diagnosed with an under active thyroid!

Firstly i have tried everything i can to lose the two stone i put on when my thyroid went under-active, and nothing works, !! im getting even more frustrated because now ive been diagnosed with 'Hyperglycemia, but am not Diabetic, ! but the only thing i can do to help it, as my hands and fingers go white , and its very uncomfortable is to eat some carbohydrates, to help me warm up quicker and get my hands going pink, and we all know that carbs put on weight !! Both these health conditions now Im 60 are very frustrating, so i have finally gat another blood test booked, i had my last blood test 6 month ago where the gp diagnosed me with Hyperglycemia, as i asked the gp to test for cortisol, too, as i know this is connected to the thyroid, but now my sugar levels are going all over the place,and im really confused, and i dont know why this is happeneing and art from eating packets of glucose sweets , i dont seem to understand how to keep my blood sugar levels normal or if my levothyroxine needs upping ? why is this hapening , inm really upset, confused and frustrated ?

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Astro16
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16 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Looking back on your previous posts you were asked to come back with your latest blood results to include key vitamin levels for ferritin folate B12 & d3. Were you able to do that? many people find that getting these to OPTIMAL helps make the thyroid hormone work.

You may need to pay for private blood tests to see your FT3. Thyroid UK offer a discount code for several private companies.

thyroiduk.org/help-and-supp...

Astro16 profile image
Astro16 in reply toJaydee1507

Unfortuntely i wasnt able to get my blood results as my gp said they had found out that i was also hyperglycemic, he also found out i had very low vit d and gave me a massive boost of vit d , i just dont know why this is hapening to me all of the sudden , i have an apointment eventually on 27th and i may ask him , but he only gives 5 minutes per thing, so a double app is 10 min and one isnt allowed any more than that ! i want to know how to stop my blood sugars going down all the time , and my vit d going down too , i dont now why this is and im hoping its not my thyroidas im on 125 levo at the moment ! sorry i wasnt able to send a copy of my blood test since last time which was august 2022. App im not diabetic, but i am hyperglycemic !!? can any one enlightne me as to what is hapening please

x Astro 16

Jaydee1507 profile image
Jaydee1507Administrator in reply toAstro16

We could help you a lot better if you got the results. You don't need to ask the GP. Ask GP receptionist. You are legally entitled to printed copies of your blood results. You do not need an appointent to do this.

Astro16 profile image
Astro16 in reply toJaydee1507

Thankyou i will ask when i get the results on the 27th .. thankyou xx

SlowDragon profile image
SlowDragonAdministrator

First step is to get FULL thyroid and vitamin testing done

Ideally via GP……but frequently necessary to test privately if GP won’t

ALWAYS test thyroid levels early morning and last dose levothyroxine 24 hours before test

TSH, Ft4 and Ft3

Plus both TPO and TG antibodies tested at least once

Vitamin D, folate, ferritin and B12 too

Details as per previous post 7 months ago

healthunlocked.com/thyroidu...

Astro16 profile image
Astro16 in reply toSlowDragon

Dear Sow Dragon

Thankyou for replying , i think my gp will give me another full blood test after he found out that i was very low on vit D and hyperglycemic !! im not diabetic, but i dont know why all of a sudden my blood sugar is going down all over the place and im also getting cold fingers, which my gp says could be raynauds !!! I spoke to him on the phone eventually and hes giving me another blood test on 27th and ive eventually got an appointment after that to see him ,, im just at a loss as to why this is hapening all of a sudden !!

kind regards

Astro 16

Astro16 profile image
Astro16 in reply toSlowDragon

ps its a fasting blood test i think ...

SlowDragon profile image
SlowDragonAdministrator in reply toAstro16

Test needs to be 9am latest and last dose levothyroxine 24 hours before test

Which brand levothyroxine are you currently taking

Do you always get same brand levothyroxine at each prescription

How much levothyroxine are you taking

Approx how much do you weigh in kilo

You need TSH, Ft4 and Ft3 tested together

Plus folate, B12 and ferritin

How low was vitamin D

How long ago was test.

How much vitamin D are you taking

You need vitamin D retested

NHS unlikely to test Ft3 or retest vitamin D

But see what you can get

Are you supplementing any other vitamins other than vitamin D

Astro16 profile image
Astro16 in reply toSlowDragon

Hello Slow Dragon

I have an appointment for 09.20 am on 27th blood test, and 09.30 gp ! i wont have eaten since about 18.30 the night before anyhow . I am on 125 levothyryroxine, its not always the same brand but mostly its the same, its occasionaly they gve me a different one. My vit D levels are dropping too and i dont know what is happening to me , as to why my blpd sugar levels are dropping and vit d too although ive taken my meds every night , inow find i have to take them earlier too ?

Thankyou

will scan and put up results when i get them

kind regards

Astro 16

SlowDragon profile image
SlowDragonAdministrator in reply toAstro16

Very common for conversion of Ft4 to Ft3 to get worse as we get older

Low vitamin levels also much more likely

For good conversion we need OPTIMAL vitamin levels ….that frequently means self supplementing vitamin D, vitamin B complex and magnesium daily

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

Astro16 profile image
Astro16 in reply toSlowDragon

Thankyou Slow Dragon

I wil make sure i do that ! its just such a shock when all of a sudden things happen to your body that youre not expecting it, like the cold hands and tiredness, and achiness , and sugar levels all over the place ?????? its very confusing , especially when you havent a clue how to make yourself feel better, dont want to end up in Hospital ,due to the state of the nhs, and that one has other obligations , and suddelnly youre feeling not very well !!!!

Thankyou , i really apreciate your help , one of the brands is ma holder tevo -25mg, and the 100 is accord !! i will get myself some more vit d and B and magnesium !

Thankyou Astro 16

SlowDragon profile image
SlowDragonAdministrator in reply toAstro16

Teva badly affects MANY MANY people

is this a recent change in brand?

Accord don’t make 25mcg tablets

Suggest you get new prescription for 25mcg …..either Mercury or Wockhardt

Or get 50mcg Accord and cut in half to get 25mcg dose

Many people find Levothyroxine brands are not interchangeable.

Most easily available (and often most easily tolerated) are Mercury Pharma or Accord

Mercury Pharma make 25mcg, 50mcg and 100mcg tablets 

Mercury Pharma also boxed as Eltroxin. Both often listed by company name on pharmacy database - Advanz 

Accord only make 50mcg and 100mcg tablets 

Accord is also boxed as Almus via Boots, and Northstar 50mcg and 100mcg via Lloyds ....but Accord  doesn’t make 25mcg tablets

beware 25mcg Northstar is Teva

Northstar levothyroxine being phased out this month 

 Many patients do NOT get on well with Teva brand of Levothyroxine. Teva is lactose free.

Teva contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome 

Teva is the only brand that makes 75mcg tablet. 

So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half

But for some people (usually if lactose intolerant, Teva is by far the best option)

Aristo (currently 100mcg only) is lactose free and mannitol free. 

Wockhardt is very well tolerated, but only available in 25mcg tablets. Some people remain on Wockhardt, taking their daily dose as a number of tablets 

 

List of different brands available in U.K.

thyroiduk.org/if-you-are-hy...

Posts that mention Teva

healthunlocked.com/search/p...

Teva poll

healthunlocked.com/thyroidu...

Once you find a brand that suits you, best to make sure to only get that one at each prescription.

Watch out for brand change when dose is increased or at repeat prescription.

Government guidelines for GP in support of patients if you find it difficult/impossible to change brands 

gov.uk/drug-safety-update/l...

If a patient reports persistent symptoms when switching between different levothyroxine tablet formulations, consider consistently prescribing a specific product known to be well tolerated by the patient. 

academic.oup.com/jcem/artic...

Physicians should: 1) alert patients that preparations may be switched at the pharmacy; 2) encourage patients to ask to remain on the same preparation at every pharmacy refill; and 3) make sure patients understand the need to have their TSH retested and the potential for dosing readjusted every time their LT4 preparation is switched (18).

Astro16 profile image
Astro16 in reply toSlowDragon

Thankyou so much ! Slow Dragon

Ive learned two things from your replys ,i didnt know that cold hands were thyroid, and also that switching brands is bad, so i will have a word with my gp when i see him , i have printed out what you said, i will stick it in my diary so it will remind me , thankyou soo very much

regards

Ms M underwood

SlowDragon profile image
SlowDragonAdministrator in reply toAstro16

Do NOT start any B vitamins until got folate, B12 levels tested

Come back with new post once you get folate, B12 and ferritin test results

You need to know exactly how low Vitamin D was

NHS Guidelines on dose vitamin D required depending on results

ouh.nhs.uk/osteoporosis/use...

GP will often only prescribe to bring vitamin D levels to 50nmol.

Some areas will prescribe to bring levels to 75nmol or even 80nmol

leedsformulary.nhs.uk/docs/...

GP should advise on self supplementing if over 50nmol, but under 75nmol (but they rarely do)

mm.wirral.nhs.uk/document_u...

But with Hashimoto’s, improving to around 80nmol or 100nmol by self supplementing may be better

pubmed.ncbi.nlm.nih.gov/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there.

Test twice yearly via NHS private testing service when supplementing 

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function.

There’s a version made that also contains vitamin K2 Mk7. 

One spray = 1000iu

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with thyroid issues we frequently need higher dose than average

Vitamin D and thyroid disease 

grassrootshealth.net/blog/t...

Vitamin D may prevent Autoimmune disease 

newscientist.com/article/23...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Interesting article by Dr Malcolm Kendrick on magnesium 

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

humanbean profile image
humanbean

One problem that loads of us have is that we develop low nutrient levels because of low stomach acid. The low levels of stomach acid mean our bodies can't extract nutrients from our food very easily. Low stomach acid is a very common symptom of hypothyroidism.

If you could cure your hypothyroidism your stomach acid might improve - but nobody can do that, as far as I'm aware. As a result your vitamins and minerals might improve with supplementing, but as soon as you stop supplementing your nutrient levels will drop back to what they were before supplementation started because your underlying condition hasn't changed. Sometimes getting your thyroid hormone levels optimised might help with stomach acid, but it is not guaranteed. And it is difficult to get thyroid hormones optimised because doctors think TSH is all they need to know - and TSH is a pituitary hormone not a thyroid hormone. They don't really care about Free T4 and Free T3 or nutrients.

One thing you really need to take on board is that doctors usually only care about blood test results when dealing with thyroid disease. They don't care about symptoms.

Astro16 profile image
Astro16

Dear Humanbean,

Yes I dont know where you are in the world, but our nhs here in uk is in a mess, unfortunately .oh wouldnt it be great if we could cure hypothyroid and any type od thyroid disease or any disease for that matter. I have asked for a nutritionalist, and my gp only gave me an n line session with loads of folk, which was useless as all she thought was that we were all eating too much!! i take Milk thistle , as its supposed to help with digestion, and Magnesium and Vit B and D when i can get it, but its hard to get Vit d more than anything where I live !! i may ask the doctor for it if he will add to my prescriptiion. Youre right unless i can find a specialist that deals with the thyroid, GPS do only care about the blood results,, not the sypmtoms!!

Thankyou for your time

kind regards

Astro 16

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