thyroidoctomy

[Chara87]

hi all, just an update from my post the other day regarding my visit to a&e. I came to a different hospitals a&e and was treated very differently from the offset. I was called straight in and an endocrinologist (not mine) came to see me and admitted me. She said that my thyroid is at a dangerous levels and also that it seemed that the PTU was having a bad effect on my liver and bone marrow.

I was kept in and seen by a dietitian who has put me on a feeding tube down my nose due to the swelling and the pain. I have lost a lot of weight since my last appointment also. They have put me on steroids, thiamine. Vitamins and oramorphe. I have been in a few days now and the swelling has slightly reduced but there is still a lot of pain.

They are planning a thyroidoctomy next week due to my liver and bone marrow. Finally getting sorted x

[pennyannie]

Hello Chara :

Thank you for the update and guessed this was going to be the outcome, and being kept in hospital.

I'm sorry you have had such a bad experience and alarmed that two hospitals can be so different in their treatment of patients :

OK - rest, try and turn off and catch up on some vitamins and minerals, even via a tube !

Tale good care :

[Chara87 in reply to pennyannie]

thank you yes everything’s through the tube now due to the size of my thyroid nothing will get past.I’ve also got to stay in my own room due to very low white blood cells? It’s been quite a week 😂 thank you for your support x

[pennyannie]

bajmon

[Anthea55]

Hi, you've really had a bad time.

Just a brief comment - I googled for 'PTU thyroid side effects' and one of the things it came up with is 'swelling of the neck'.

We don't always go by Dr Google, but the more info we have the better.

Good luck!

[Chara87 in reply to Anthea55]

I also read that it reduces white blood cells but so does the thyroid itself I think because of how high it was and all the other symptoms such as heart rate/leg rashes/temperature and the rest they feel it is the actual thyroid causing most of the chaos. But also my bone marrow and liver is not looking great either and because carbimazole did not work either they have just decided to give the surgery. I know I will be under active by this point but starting from the start with this new specialist may help more than what I’ve had with my overactive. They are just managing my symptoms for now until the surgeon is available x

[bajmon]

I'm glad you have managed to get to someone better than before. I know straightaway you needed to be admitted ASAP. This wasn't too be ignored! Good luck with the surgery!