Hi so my endocrinologist suggested to come off my Levo! Saying my thyroid tests are normal. I stated it’s due to medication and I won’t come off it. I have antibodies so why would they even suggest to
Come off my medication???!
Tsh - 1.32 mIU/L range 0.27-4.2
T4 12.6 pmoI/L - normal range 11.0-21.2
Awaiting mri results of pit gland too.
Just testing TSH and Ft4 is completely inadequate
Low Ft4 suggests you need dose INCREASE in levothyroxine
High thyroid antibodies confirms you have Hashimoto’s
Very important to test vitamin D, folate, ferritin and B12 at least once year minimum
In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you did this test
How much levothyroxine are you currently taking
What vitamin supplements are you currently taking
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
List of private testing options and money off codes
thyroiduk.org/getting-a-dia...
If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3
£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code
thyroiduk.org/getting-a-dia...
Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
(Doesn’t include thyroid antibodies)
monitormyhealth.org.uk/full...
10% off code here
thyroiduk.org/getting-a-dia...
Only do private testing early Monday or Tuesday morning.
Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery
Thankyou for the test links.
I stated it’s due to medication and I won’t come off it.
You are correct. I wont say what I think of your endo other than maybe he should retrain.
it’s awful I couldn’t believe my appointment.
My jaw dropped. What an absolute dunce your endo is.
That's ridiculous! What is he trained in? Some endos are diabetes specialists and know very little about thyroids.
I see that you have TSH and T4 results, but not T3. Any chance that you can get tests to include T3 as well?
By the way you haven't shown where you live. Is it UK?
When adequately treated on levothyroxine Ft4 is likely to be at least 60-70% through range
FT4: 12.6 pmol/l (Range 11 - 21.2)
Currently Ft4 only 15.69% through range
Email Thyroid U.K. for list of thyroid specialist endocrinologists and doctors who can actually understand a thyroid test result
tukadmin@thyroiduk.org
Thankyou I will email
meanwhile get full thyroid and vitamin testing done
GP should test vitamin levels
Maryah85 ,, it is best to give more information on your history when posting ... i just looked back to your first post .. haven't read any more yet, but on that one your "pre levo" tests wer suggesting a pituitary problem , TSH 2 . with below range fT4 and insulin like Growth Factor was over range .
The antibodies that were over range were TGab . which can be present in several other conditions as well as hashimoto;s .. (your TPOab were ( just) in range )
Your Results before treatment with levo:
fT4 10.1 [11.00 - 21.20]
TSH 2.03 [0.27 - 4.20]
Results after taking 25mcg levo:
TSH : 0.66 [0.27 - 4.20]
FT4 :10.7 [10.0 - 23.0]
FT3 : 4.3 [3.1 - 6.8]
TPO Ab : 33 [0 - 33 ]
TGab 493 [0 - 114]
Luteinising Hormone Level 4.8 [ IU/L]
Insulin Like Growth Factor 1 Level 43.5 [10.2 - 40.7]
Prolactin Level :289 [102 - 496]
Your TSH became supressed on a very low dose of Levo .and your TPOab were later measured as (just) positive at 35[0-34]
on 50mcg Levo:
TSH 0.08
fT4 14.6
fT3 6.1
TgAbs. 488 [0 - 115]
TPOAb 35 [0. - 34]
Without knowing all the details of what happened next, by reading the rest of your history , or by you giving us more info in this post... it IS ( just 
) possible that this endo had an intelligent reason for suggesting what he did .
It certainly looks from that first post as though your problem had some element of central hypothyroidism/or pituitary element to it ...and the case for it being "definitely hashimoto's" with TPOab at those levels is not as clear cut as just saying "well i have antibodies" . lots of people have TGab , and ( i think ?)several other diseases can show TGab ...that is why the NHS prefer to use TPOab for confirmation of autoimmune hypothyroidism .
i don't know how reliable this reference is , but it does seem to confirm that high TGab 's can be present for 'other' autoimmune reasons (apart from thyroid) such a Rheumatoid Arthritis , Coeliac disease palomahealth.com/learn/high....
Thanks for your reply and information. I am confused myself and hoping my mri results show nothing and that my thyroid is ok. I will continue to take 50 levo.
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