osteopenia, Hashimotos and sjogrens

[Essexlil]

hi, my rheumatologist has prescribed Adcal and Alendronic acid. Due to oesphagitis because of Sjögren’s I don’t want to take Alendronic acid. Through research and the help of thyroid UK I now take vitamin D3 MK2 and magnesium. Pains in my chest which used to feel like a heart attack have cleared up since taking these. My spinal surgeon says it’s probably coincidence and my rheumatologist says osteomalacia doesn’t exist. How can I have faith in either - I don’t know where to turn as I don’t want my bone condition to worsen but I don’t want to take Alendronic acid as they can’t assure me it’ll do any good and I think it may do more harm on the rest of my body. Any advice will be greatly appreciated

[SlowDragon Administrator]

Suggest you test FULL thyroid and vitamin levels yourself at least annually

You’re further ahead with more up to date treatment by taking vitamin D, vitamin K2 mk7 and magnesium

all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

monitormyhealth.org.uk/full...

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

article by Dr Malcolm Kendrick on magnesium 

drmalcolmkendrick.org/categ...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

2 good videos on magnesium

healthunlocked.com/thyroidu...

[Essexlil in reply to SlowDragon]

hi, thank you very much for all of your knowledgeable help - I’m going onto the links to remind myself of all of the points regarding vitamin D and magnesium. I find it extremely disappointing that a spinal surgeon and a rheumatologist treating RA don’t even know that D3 can cure chest pains. Although the medical profession don’t seem to have caught up on this information I’ve found links online reporting peoples non heart related chest pain being cured by taking D3. My chest pains we’re getting more frequent but they’ve cleared up completely since taking D3 K2 mk7 and magnesium.