Just to let members know if anyone is interested that Roseway Labs now offer a private prescribing service for various treatments including low dose Naltrexone, as well as thyroid medications, Erfa, Armour and Liothyronine.
The prescriber is an NHS GP who offers phone consultations on Wednesdays. They also dispense the medications as well.
I've just received my first bottle of LDN from them as a potential Fibro treatment so fingers crossed 🤞
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Thank-you, useful to know in case one of my GPs gets awkward. If I tell them I will have to get it prescribed privately they might come around to continuing the (private) prescriptions.
Be aware the GP will charge but not necessarily prescribe, even after sharing blood tests that suggest otherwise.
I dont know about the thyroid meds protocol as I wasnt consulting for that reason. Just thought it might offer a cheaper alternative to private Endo.
thats great news many thanks for sharing. 😊
I used the service last week. The prescriber was lovely. I was totally disorganised, unlike me, but I have a lot on my plate, and completely forgot the call and to send the relevant paperwork. She asked me to tell her about my thyroid history in outline and why I wanted to try Armour and then happily prescribed for me. I asked for 2.25 grains a day to start with and it's on it's way. I have to send blood results in and book another call with her in 4-5 months to see how I'm getting on. It was so easy and so gentle.
My private endo won't prescribe Armour. Sadly. The process cost £30. Well worth it.
Hey just found out today my endo now can’t write me a private prescription. How does the appointment work? Do they decide on your t3 dose based on your bloods? I am going to run out of Thybon Henning before the appointment 😬 as thought my endo would prescribe today but he can’t now apparently!x
Why can't he? Did he explain? My private endo will write me private scripts for Thybon Henning which I then get fulfilled at Roseway Labs.
The Roseway Labs prescribing service cost £30. Was very helpful and I found the doctor very nice to talk too. I had no problem getting what I needed. I didn't even provide bloods at that stage. I have to send in bloods and have a quick chat with her about them before I can get a refill prescription, which I will need to do in March.
I am going to post a full update tomorrow but he said that the NICE guidelines have changed and there is no support for t3 so he can’t!x
That's crazy. I saw my endo a couple of weeks ago. He made no mention of such changes. He won't write a script for NDT but is happy using T3. It takes years for the NICE guidelines to change about anything. I doubt this has happened in the last 2 weeks.
I will post the other bits as it might give context! I think he is trying to wash his hands of me x
I think he no longer wants to prescribe T3, and he is on the ThyroidUK list x
It certainly sounds like he's making excuses. They never expect us to call their bluff and look things like the NICE guidelines up.
The NICE thyroid guidance has not changed since first published except two minor issues. This is the link and the guidance as published in 2019.
Thyroid disease: assessment and management
NICE guideline [NG145] Published: 20 November 2019
The downloadable PDF has some very minor update information:
Update information
Minor changes since publication
October 2021: We added a link to NICE's guideline on shared decision making in recommendations 1.1.1 and 1.6.8.
February 2020: We added a link to advice on prescribing liothyronine from NHS England's specialist pharmacy service to the rationale section on managing primary hypothyroidism.
This link was previously in a footnote.
None of that changes the substance of the guidance. Just adds two links!
If the endocrinologist was prescribing since November 2019, I call his bluff over blaming changes in NICE guidance.
Quicker from London than Scotland then 😉 I'll be looking out for updates 🤗
Do you know how often you have to repeat the consultation?
The prescriber has left me two repeats so presumably after I've used those up. So several months I'm guessing. I'm very drug sensitive so she recommended starting on 0.5 ml and slowly titrating upwards. For fibro she said final dose is likely to be 4.5ml daily.
Same with Scotland then 😉 didn't think to ask but initial script for 3 months though like you say will last longer due to the slow build up
Think I read somewhere that it only has a 60 day shelf life... though that might only be the sublingual version? 🤔
Edit...
Maybe not that long
How long does LDN last in fridge?
Storing the Medicine - LDN Liquid should be stored in the fridge once opened and can last 30 days, or 12 months unopened. Capsules should be stored at room temperature in their original container for up to 6 months
LDN 2020 Patient Information Packetldnresearchtrust.org › sites › files › Patient-Info-a4_0
Which version did you go for?
Ask your pharmacist or doctor for more
advice if you need it. LDN comes in several
forms: tablets, capsules, liquid, sublingual
drops, troches, lozenges, and a cream.
Ive got the liquid. Capsules are more expensive and you cant adjust the doseage.
There was an info sheet included which was very thorough. It didnt say the LDN needed to be refrigerated but to be on the safe side I will do.
looking forward to comparing… apparently sub lingual is rank 😆🙃
The liquid is quite pleasant. You need to hold it under the tongue for a few minutes, like CBD oil. Am keeping expectations reasonable but hopeful. I'm not on any Fibro meds anymore due to lack of effectiveness and hideous side effects.
I've been med free for over 7 years but in the last year I feel like Fibro symptoms are rearing their ugly head again. And LDN has very few side effects so I thought I'd give it a try.
I’m using it and don’t find it bad at all. Get mine from Scotland but find their system very disorganised, almost running out quite often. It’s been very helpful for my symptoms.
Are you taking it for Fibro or thyroid symptoms, if you dont mind my asking?
Fibro, particularly chemical sensitivities but it has greatly increased my stamina and reduced my aching. Seems to increase my T4 & T3 tablets effectiveness so I’ve had to reduce my dose. Very useful.
Not helped at all with insomnia though and still sensitive to many chemicals though a little less. I’ll definitely keep going with it.
Hope you find it works for you.
I've started taking a natural remedy for sleep that includes sour cherry extract, chamomile and 5HTP. I cant tolerate any of the usual meds they prescribe for insomnia like Amytriptyline. I've found it very helpful. Sleep has been a massive bugbear for years.
Could u tell me the name of your sleep remedy please? Keep waking at 3am, not good. Amytriptyline gave me awful nosebleeds, very strange.
Thank you
Its called Relax On, by Lifeplan. I buy it from High St store Savers. Its around £3.49 for 60 tablets. It says one tablet but I take 3. One wasn't strong enough for me.
My experience of the Roseway Labs prescribing service last week was excellent. It cost £30 and I got just what I asked for, Armour 2.25 grains a day. Repeat consultation and send in blood test result first, in 4-5 months time to see how I'm getting on.
How much was the prescription, please?
Ah, now that I can't remember! Checked. 100 x 1 grain tablets = £128. 100 x 1/4 grain tablets = £115. I wanted the 1/4 grain to experiment with. They are expensive though, so I hope I don't need them long term.
Thank you! £30 is certainly cheaper than the £100 I pay to the consultant!
Was the Dr amenable to pres riding what you asked for or was it difficult?
Also curious about this and what the prescriber's attitude to TSH is. FancyPants54
She was lovely and totally amenable to what I wanted.
Hi, just came across this post. Do you mind if I ask whether you needed to provide details of a formal diagnosis in order to get the prescription?
Thanks 🙏
Yes they did ask me to upload my Consultant letters confirming I have Fibromyalgia. I'm not taking LDN for thyroid.
Thanks for the response, especially considering it was an old thread!
No proof needed.
That’s helpful, thanks 🙏
it was an altogether pleasant experience. Which we thyroid patients are not used too!
That’s heartening! Thanks again.
Hello. This is great news. I am taking t4and t3 and the moment. I usually buy t3 from Greece but i can't find t3 available to buy anymore. It would be very helpful if you could send me more details please. I don't know where to call and who to contact. Thanks
helvella has posted links in a post above....hopefully you will find them helpful....
MariaZetta, Link to Roseway Labs website: rosewaylabs.com
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Roseway Lab
Roseway labs for Liothyronine 20mcg Thybon Henning. So helpful.
GP prescribing Liothyronine!!! 
Prescription chasing to correct basic prescribing errors
