Advice : Hello I’m after some advice from my... - Thyroid UK

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PrincessAnnie profile image
8 Replies

Hello I’m after some advice from my favourite knowledgable people again😁

I’m due to test my bloods myself on the 24th of October and I’ve been contacted by the community blood team today to have bloods taken on the 25th,I’ve been referred by the endo as it’s been six months since I started my T3,I was thinking of just going ahead with my own bloods to see the difference as the endo bloods aren’t being done until 9.15 and I’d rather have my antibodies and vitamins checked ,I have a test to use anyway as I couldn’t do them when they were due as I was going on holiday for two weeks and I was due to do them the Monday before I went but was unable to post them due to the postal strike.

Due to being moved on to the capsules I had to drop my T3 from 15mg to 10mg as I wasn’t able to split doses so I started that the day after I went on holiday so that’s why I never used the test when I came back as I wanted to wait the 8 weeks on the new dose,I upped my levothyroxine to 100mg a day as that’s what the endo put me up to when he started my T3,I had enough pills to make the 75mg up until I needed a new prescription,I took 75mg one day and 100mg the next and alternated like that,I’m aware I could’ve got the 75mg from my 100mg pill,after the valuable advice given on here,but I thought I would give the 100mcg a go just to see.

I’m currently taking 100mg of levothyroxine and 10mg of liothyronine a day taken just after 5am in the morning,I know to take last dose of levothroxine 24 hours before the test but as I’m currently taking a 10mcg of liothyronine in capsule form I’m unable to spilt the dose so was looking for some advice on that,any help would be as always greatly appreciated❤️

As far as the endo is aware I’m taking 100mg of levothyroxine and 10mg of liothyronine in the morning and 10 at night,I’m so nervous incase he tries to reduce,or even take away,my liothyronine as I don’t feel I’ve yet reached my optimal level,last bloods I did myself my TSH was below 2 and that’s given me the fear that he tries to stop it🥹

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PrincessAnnie
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8 Replies
SlowDragon profile image
SlowDragonAdministrator

Well you MUST explain you were (forced?) into accepting T3 capsules that can’t be split

But wait see what results show

PrincessAnnie profile image
PrincessAnnie in reply to SlowDragon

How will I take my liothyronine the day before the test though will I not take it in the morning and just take it 8 to 12 hours before the test?

SlowDragon profile image
SlowDragonAdministrator in reply to PrincessAnnie

personally I would take it in morning as per usual

You can’t split it easily…..so that’s that

If they are going to insist you have capsules….you need two 5mcg capsules per day…..or if dose needs increasing ….3 x 5mcg capsules per day

PrincessAnnie profile image
PrincessAnnie in reply to SlowDragon

The endo doesn’t know I only take the 10mg though,I might just be honest and say I only take the 10 as I got put on the capsules as I’ve tried the 20 and my last results I had done showed that to be slightly too high🤷‍♀️

SlowDragon profile image
SlowDragonAdministrator in reply to PrincessAnnie

You may need 15mcg per day ……extremely high number of us seem to end up on 3 x 5mcg per day

NHS 20mcg tablet @ £56 per 28 tablets cut into 1/4’s and taking 3 x 5mcg doses per day is significantly cheaper at approx £42 per 28 days

Or £28 per 28 days if only taking 2 x 5mcg per day

3 x 5mcg capsules @ £55 per 28 capsules =£165 per 28 days

PrincessAnnie profile image
PrincessAnnie in reply to SlowDragon

I was taking 15mcg a day but I wasn’t able to test my bloods before going on to the 10mcg a day due to the postal strike,then as I was away on holiday,I had been on the 10mcg for two weeks.

I was taking the 15 in the morning I’m wondering if I’d have been better splitting it like you said.

SlowDragon profile image
SlowDragonAdministrator in reply to PrincessAnnie

request Endocrinologist specify 20mcg tablets so you can cut into 1/4’s to experiment with 3 x 5mcg spread through the day

Typically at approx 8 hour intervals

PrincessAnnie profile image
PrincessAnnie in reply to SlowDragon

Thanks for your help🙏

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