so sorry to hear that you’re not feeling too good, I’ve had similar problem, rah 4.9 so told to increase t3 which I pay for, increased then dropped to 0.02, but feeling well now told to drop again, GPS just don’t know how to treat hypothyroidism.
I would ask to go back to your previous dose, explain that the last test was unexpected and retest when you have notice and not taken meds etc for whatever pause time you need.
Doctors do this knee jerk reduce Levo/T3 thing but often its a one off result and no change in meds is necessary. Caught like this myself a while ago.
Wait 6-8 weeks then test early morning and last 2.5mcg of T3 8-12 hours before test
Get FULL Ft4 and Ft3 plus TSH tested together
If GP says " I have to reduce your dose because the guidelines say i can't let you have a below range TSH" .....
The first paragraph in the NICE (NHS) Thyroid Disease, Assessment and Management guidelines says :
nice.org.uk/guidance/ng145
"Your responsibility
The recommendations in this guideline represent the view of NICE, arrived at after careful consideration of the evidence available. When exercising their judgement, professionals and practitioners are expected to take this guideline fully into account, alongside the individual needs, preferences and values of their patients or the people using their service. It is not mandatory to apply the recommendations, and the guideline does not override the responsibility to make decisions appropriate to the circumstances of the individual, in consultation with them and their families and carers or guardian. "
Comprehensive list of references for needing LOW TSH on levothyroxine
"Not one of the 2 GP’s., Involved by pure chance, asked how I felt."
They never do! In 14 years, I've never been asked what my symptoms are by any GP, 'Blood test' does it all eh. Well, the NHS has been trashed by this awful, reactionary government. Had your telephone 'diagnosis' yet?
This is precisely why so many of us resort to self- treatment… doctors, even endocrinologists in my experience haven’t the first clue about the thyroid! They treat the blood test rather than the patient sitting in front of them clearly unwell. I avoid them like the plague! Since the lockdowns, my only contact with the endo has been an annual phone call to ensure I get signed off for the next 12 months’ worth of T3. Even on the phone you get the feeling they haven’t got the time of day for you, so why should I? The only good endo I ever had was my first one who was a little more “old school”, who listened to me and prescribed me the T3 in the first place. He sadly retired a few years ago since when I’ve seen a continuous parade of ignorant numpties who couldn’t find their way out of a wet paper bag tbh!
Unfornately I get caught every time because of ongoing treatment for a hormone cancer snd it’s at these appointments they meddle u necessarily it’s not really connected . They Just can’t help spouting all the rubbish about how they know best !!
I too had an unexpected blood test, having taken my thyroid meds 2hours before. GP dropped my T4 by half. I phoned and told him the results were skewed as the peak absorption happened at around 2 hours. He said it did not work like that. I told him not to reduce the dose, but he did anyway. So much for "working in partnership".
My results turned out to be within the ranges! I had another blood test yesterday, not taking the tablets as advised on here. It will be interesting to see the results...
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Levo and Carbimazole lowers digestive Enzymes?!
Persuading GP to increase Levo
GP wants to reduce my Levo...🙁
TSH going up on Levo?
If GP says no to Levo increase, what then?
