Telephone consultation

[Starmen]

I have just had a telephone consultation with a gastro nurse , gp referred me even though I had no symptoms just decreasing Ferritin. It was a complete waste of time which I expected. He insisted my Ferritin levels were normal I tired to explain that with Hashimoto's they need to be optimal I quoted the NICE guidelines which I have taken from this site to quote what he said "the NICE guidelines are going to be scrapped soon anyway....!" He offered to refer me to endocrinologist I refused I have seen 3 on NHS recently.

Is it correct that NICE guidelines are going g to be scrapped soon?

My GP insisted I have this consultation.

[SlowDragon Administrator]

As a vegetarian with Hashimoto’s you’re going to struggle to maintain good iron and ferritin levels

Previous post with full iron panel results

healthunlocked.com/thyroidu...

Suggest you read the many posts and replies by humanbean on improving low iron/ferritin

[Starmen in reply to SlowDragon]

Will do. However is it true that NICE guidelines are goibg to be scrapped?

[SlowDragon Administrator in reply to Starmen]

No idea…..CCG’s are going

[Starmen in reply to SlowDragon]

The reason I ask is because we collect a lot of our back up information as directed to take to consultations... But not read about the guidelines being scrapped ...🤔

[humanbean in reply to SlowDragon]

CCGs are going to be replaced by "Integrated Care Systems" (ICS). I don't know anything about them, but just looked them up on Wikipedia :

en.wikipedia.org/wiki/Integ...

One thing I notice from that article (which is very brief) is that there is no mention of ICSs being responsible for standards in any way - they just seem to be organisations of accountants, whereas the CCGs were mainly groups of GPs and they did have a clinical role in determining what GPs in their area could do, what they could spend money on, even what they could test for. Each CCG even had their own version of the BNF - the British National Formulary - and those versions of the BNF often excluded T3 from their lists, or referred to them as "red drugs" i.e. drugs which doctors were forbidden to prescribe.

If the ICSs are not going to be responsible for guidelines in each area I wonder which organisation will be?

The idea that general practice in the NHS is going to have no guidelines to work from is absurd. We'd end up with treatments for conditions that are just old-fashioned snake oil, or the doctor's favourite hand-cream.

I'm sure there will be guidelines for GPs - but my guess would be that lots of treatments will be removed from those guidelines and referrals will be even more likely to be denied than they already are.

[Starmen in reply to humanbean]

Thanks for this very concerning ...

[SeasideSusie Remembering]

NICE guidelines for Graded Exercise Therapy (GET) for CFS/ME were due to be scrapped:

bbc.co.uk/news/health-59080007

Can't find anything about guidelines for hypothyroidism being scrapped.

I imagine he's talking out of an orifice other than his mouth!

[Starmen in reply to SeasideSusie]

Very true 😂

[Doris11 in reply to SeasideSusie]

😂😂😂😂

[SeasideSusie Remembering in reply to Doris11]

😊