Eeeek! Telephone consultation with an Endicrino... - Thyroid UK

Thyroid UK

137,641 members161,422 posts

Eeeek! Telephone consultation with an Endicrinologist tomorrow.

Earlyriser profile image
17 Replies

Hi lovely people. I’ve been referred to an Endicrinologist by my GP and received a telephone call today to say the consultation will be by telephone tomorrow. I haven’t got a clue what to expect but want to have answers to any questions ready. Has anyone had a telephone consultation that can offer any pointers? I have a lump on one side of my thyroid....any ideas on what he will do about this would be welcome.

Many thanks

Written by
Earlyriser profile image
Earlyriser
To view profiles and participate in discussions please or .
17 Replies
fuchsia-pink profile image
fuchsia-pink

You posted blood results 10 months ago - do you have anything more recent? what meds are you currently taking? Do you feel well? If not, other than the lump you mention, what are your main symptoms?

Because really you want to feel well, be optimally medicated, with your latest blood results nice and high (free T3, free T4 and key nutrients) with your TSH not too suppressed (because that always freaks them out, even though it shouldn't) ....

Write down what you want to cover so you don't get overwhelmed/brain foggy when it's actually happening.

Good luck :)

Earlyriser profile image
Earlyriser in reply to fuchsia-pink

Hi Fuschia-pink and Slow Dragon thank you for your good wishes.

I had decided to not bother with the doctors anymore because I didn’t seem to be getting anywhere (like many others). I had a blood test done in October privately with the following results:

TSH 4.86 range 0.27 - 4.2

T3 4.95 range 3.1 - 6.8

T4 12.5 range 12 - 22

TPA 17 range 0 - 34

Thyroglobulin 17 range 0 - 115

Vit D 55.1 range 50 - 175

B12 active 150 range 37.5 - 187.5

Ferritin 47.8 range 13 - 150

Folate 6.29 range 3.89 - 19.45

I was going to start taking thyrogold but found a lump in my breast, quite a large lump developed on one side of my throat and my blood pressure was around 200/120 so had to go to the doctors and didn’t start taking the thyrogold. I was then referred to the breast clinic, a blood test was done and I was given amlodipine. The lump in my breast is a blocked duct, so all ok I went back to the GP. It was only when I said didn’t she think I ought to have a scan or something on the asymmetrical lump in my throat that she referred me.

I am not feeling good. I have put on about 3 stone, my stomach is bloated, my temperature is always around 35.5, my pulse is around 55, I could sleep for England (go to bed around 9 and have to force myself to get up around 9). I am always tired, sometimes very anxious, sometimes very down.

Thanks to you both

SlowDragon profile image
SlowDragonAdministrator in reply to Earlyriser

You need thyroid ultrasound scan of thyroid

20% of Hashimoto's patients never have raised antibodies

healthunlocked.com/thyroidu...

Vitamin D is still far too low, needs improving to at least around 80nmol and around 100nmol maybe better

Folate too low.

What B vitamin supplements are you currently taking ?

Ferritin still low

SlowDragon profile image
SlowDragonAdministrator in reply to Earlyriser

Have you ever tried strictly gluten free diet?

SlowDragon profile image
SlowDragonAdministrator

Just going to say similar to fuchsia-pink ...

10 months ago your results showed below range Ft4

healthunlocked.com/thyroidu....

Are you now on levothyroxine?

If so how much

When were vitamin D, folate, B12 and ferritin last tested

What vitamin supplements are you currently taking

Obviously you need FULL thyroid and vitamin testing

Thyroid should be retested 6-8 weeks after each dose increase in levothyroxine

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Earlyriser profile image
Earlyriser in reply to SlowDragon

Hi Slow Dragon. I have put most of the information in the reply to fuschia pink. I am not on anything except vitamin d3 at 100ug+ k2 at 100ug.

fuchsia-pink profile image
fuchsia-pink in reply to Earlyriser

Well those results are pretty rubbish, so not surprised you're not feeling great...

As SlowDragon says, your nutrients need to be better, and your TSH is much too high and your free T3 and free T4 are way too low ... and I wouldn't want your blood pressure either!

Any reason why you were going for thyrogold rather than levo?

Suggest you give the endo a chance, and get started on something to help those results.

Good luck - and let us know how you get on x

Earlyriser profile image
Earlyriser in reply to fuchsia-pink

I thought you had to have a prescription for Levo so tried different doctors at the surgery but they just said ‘we’ll do another blood test and if we don’t ring it’s fine. No need to come back’. Not expecting much tomorrow. I was self injecting b12 until October but stopped because of going through gp. Xx

SlowDragon profile image
SlowDragonAdministrator in reply to Earlyriser

Just keep underlining how low Ft4 and Ft3 are

Insist on ultrasound scan too

Standard starter dose of levothyroxine is 50mcg.....ask for trial

Earlyriser profile image
Earlyriser in reply to SlowDragon

Thank you both so much for your help, support and information

Earlyriser profile image
Earlyriser in reply to SlowDragon

the Consultation went extremely well. An appointment for an ultrasound is being made (I don’t think the GP had told him about the lump because he seemed surprised when I mentioned it and asked questions like which side is it on and how long have I had it which I would have thought the GP would have told him). He is sending me a slip to have bloods taken and arranging thyroid replacement therapy to start with a follow up appointment in 2/3 months depending on the blood test results. Thank you so much for your help, I would have been so nervous without your input. Xx

Earlyriser profile image
Earlyriser in reply to fuchsia-pink

the Consultation went extremely well. An appointment for an ultrasound is being made (I don’t think the GP had told him about the lump because he seemed surprised when I mentioned it and asked questions like which side is it on and how long have I had it which I would have thought the GP would have told him). He is sending me a slip to have bloods taken and arranging thyroid replacement therapy to start with a follow up appointment in 2/3 months depending on the blood test results. Thank you so much for your help, I would have been so nervous without your input. Xx

fuchsia-pink profile image
fuchsia-pink in reply to Earlyriser

Excellent new - thank you for the follow-up x

LAHs profile image
LAHs in reply to fuchsia-pink

Thyrogold is NDT, Levo is T4 only. Thyrogold is supposed to be a good one, it's from New Zealand sheep.

fuchsia-pink profile image
fuchsia-pink in reply to LAHs

I don't doubt it - I just asked because in the UK levo is much easier to get hold of, much cheaper, and the thing that is prescribed routinely by doctors :)

LAHs profile image
LAHs in reply to fuchsia-pink

Sorry it's bovine, not from sheep. But New Zealand stands.

Earlyriser profile image
Earlyriser in reply to LAHs

Thank you LAHs. 🙂

You may also like...

Telephone consultation

I have just had a telephone consultation with a gastro nurse , gp referred me even though I had no...

Virtual (telephone) Endo consultation

'virtual consultation' by telephone. I've had a letter arranging a date and time for a telephone...

Telephone consultation with gp

results were about 3 weeks ago. Ive now got a telephone conversation with another doctor at the...

Consultant review on tomorrow. Latest bloods. Any comments gratefully received, thanks 😃

55-4.78) T3 3 (3.5-6.5) T4 9.8 (10-18.7) Any ideas what on Earth my body is doing?!

First consultation tomorrow, what to ask please?

first consultant appointment tomorrow at Winchester Hospital and I'm hoping for some tips on what...